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Certain HIV positive, but negative tests (Page 123)

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July 8th, 2015
Experienced User
well I figured you knew that, I do have some really good info on a strain of enterovirus that a bunch of people caught, even people living in this guys apartment building caught it from him, hes documented everything all symptoms an what week they came on an left all his doctors as of course I have been doing as well even the conversations with doctors ,but all his symptoms are mine to the tee,now these viruses we know can cause similar symptoms,but I want to just explore this option as well, he stated you can be sick for years with this an it can even cause heart attacks,which was the case for one of his friends who then died,i can get the link if you are interested in this information,if anything its amazing reading about what happened too them when he,his family,an group of friends all got this enterovirus an there journey is ongoing,they are looking for answers as well. the rider STILL RIDING HARD!!!
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replied July 9th, 2015
Experienced User
yes my friend,

even enteroviruses can cause similar symptoms. Some people get ME/CFS after catching enteroviruses.

I don't know, in my case I still feel that something's very wrong with me. But having no gammopathy is a big relief. Don't really know what to think.
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replied July 9th, 2015
Experienced User
agreed with that jammy, I too am here , I know something is wrong, even thou I don't feel sick my body is telling me somethings not right, an its much easier for my doctor to just dismiss it all with these neg tests an ignore it, I have told him you just cant leave me out here like this, but he is,until something changes in my blood or somewhere where they can start to see something will they take me serious? I sure am glad you don't have that gammopathy jammy, like to know your going to be around for a very long time, I afraid only time will tell, what sucks is im a single guy an my date life has stopped til I know whats going on,an the doctors don't care bout your life,on hold! I tell doctors am I contagious or not I need to know so I can get on with my life, i get no answers from them, so im stuck. thank you god, for Harley motorcycles, lol the rider! everything is always better when i ride. enjoy an take care jammy my friend.
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replied July 9th, 2015
Let's see the link to that, therider. I'd be interested to see what his symptoms were.
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replied July 9th, 2015
Jammy I've got what you've got. Fat is melting off my face and back of my hands. Yellow skin. Creases in the skin on my chest/neck area. The facial fat loss gets worse when I drink alcohol or eat chocolate. Drinking too much coffee is bad too. All of the other symptoms are gone for now.

Have you tested for Brucellosis? It seems to have identical symptoms and it's airborne which would explain why so many people around me have it.
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Users who thank PatientZero123 for this post: jammy88 

replied July 10th, 2015
Experienced User
patient zero 123; ,maybe you have what jammy has,an perhaps not? remember a lot of these viruses share the same symptoms an some people get only some of the symptoms that's what makes it so hard to figure, a few people may not get any? I have those links for you here please read all the info you going to be amazed by this information, you start to wonder about all the crap going around out here,an the doctors for the most part, are clueless. Research enterovirus foundation and chronic sore throat/ mood virus, therider
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replied July 13th, 2015
Experienced User
TR,

I wonder if we will ever be able to figure out what we have.
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replied July 13th, 2015
Experienced User
Hello Patient0123,

thanks for your post. I haven't tested for Brucellosis, but I know it shares all the symptoms we have.

Your symptoms are identical to mine. Have you find some sort of solution to improve the facial fat loss? I have creases in face and neck area, too. It's really disturbing. Weight is getting better, but skin issues are still there and it's very tough to accept.
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replied July 13th, 2015
Experienced User
I don't know jammy have a new doctor im seeing in august, it comes down too the fact do they care enough to try an put forth the effort an test for just what I may be infected with im sure its a virus of some type,im trying to see a disease doctor but they wont see me due to all my neg tests done by the primary doctors,i guess here they only deal with you after you tested pos for some contagious disease,not before, I did leave those links for patient 0123 but they were taken down by this site,i really felt that was seriously important information for this site,just goes with everything else always shot down,even with proper insurance an money I cant get the care here where I live so im switching major hospitals ,hoping that's the problem,like I stated jammy they cant even tell me if im contagious or not i always warn the people drawing blood or testing me for something that somethings going one but no one knows what so be careful, which really sets them back, 17 months my life been on hold, while ive done the right things,by getting tested, now they tell me they have nothing more to test for? these symptoms are from something the dull tongue that used to be pink,doc states its normal its not,dry skin, its summer that's not normal, swollen under arms an groin over 1 year now,ringing ears teeth marks in tongue, indgestion an bowel problems all not normal,an these are not going away,let me know how you facial problems are going jammy, whats really confusing is i feel great! never been sick, all i know is these symptoms no normal,an the are caused by some underlying cause, all this from a French kiss that lasted 1-2 seconds. hang in there guys, its a hot day an im going for a ride, therider.
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replied July 14th, 2015
Experienced User
So apparently, Curcumin is very beneficial in treating skin issues, too:

Adv Exp Med Biol. 2007;595:343-57.
Beneficial role of curcumin in skin diseases.

Thangapazham RL1, Sharma A, Maheshwari RK.

Abstract
In recent years, considerable interest has been focused on curcumin a compound, isolated from turmeric. Curcumin is used as a coloring, flavoring agent and has been traditionally used in medicine and cuisine in India. The varied biological properties of curcumin and lack of toxicity even when administered at higher doses makes it attractive to explore its use in various disorders like tumors of skin, colon, duodenum, pancreas, breast and other skin diseases. This chapter reviews the data on the use of curcumin for the chemoprevention and treatment of various skin diseases like scleroderma, psoriasis and skin cancer. Curcumin protects skin by quenching free radicals and reducing inflammation through nuclear factor-KB inhibition. Curcumin treatment also reduced wound-healing time, improved collagen deposition and increased fibroblast and vascular density in wounds thereby enhancing both normal and impaired wound-healing. Curcumin has also been shown to have beneficial effect as a proangiogenic agent in wound-healing by inducing transforming growth factor-beta, which induces both angiogenesis and accumulation of extracellular matrix, which continues through the remodeling phase of wound repair. These studies suggest the beneficial effects of curcumin and the potential of this compound to be developed as a potent nontoxic agent for treating skin diseases.
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replied July 15th, 2015
Experienced User
Abdominal pain at night is something I'm really tired of dealing with...
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replied July 15th, 2015
Active User, very eHealthy
Hi. I just got online too and thought if youve mentioned abt this abdominal pain before. What did docs say? You may want to research on activated charcoal helps also, wc works basically by adsorbing body toxins while using other medications or healing foods.
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replied July 16th, 2015
Experienced User
Hi samm,

abdominal pain started over a year ago with the disease - together with loose stool etc…
I have it at night, and it's very frequent. I was thinking about charcoal, too. Going to the pharmacy today and will try it. Thank you for your kind advice.
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replied July 17th, 2015
Active User, very eHealthy
Now i haven't been exercising, and having shoulder pains. My fault so i shouldn't be complaining!
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replied July 17th, 2015
Active User, very eHealthy
Btw, good if you get some. What i know is you take them (caps) 1-2 hr before or after a meal or other medication, so it does not interfere w/ nutrient absorption. Others use poultice when there's more powder, and i believe that works very well too. That is if you have a ready source for the activated charcoal.
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replied July 17th, 2015
Experienced User
Good info on stomach pain guys ,im sure that will help a lot of people ,stomach an bowel issues sure are part of the many symptoms of whatever these diseases are? I have been doing a lot of reading on the thyroid an now feel all my symptoms now are due to thyroid issues, whatever virus,or disease entered my body,messed up my thyroid function an its had a butterfly effect on me, I encourage you to read the causes an symptoms of underactive or overactive thyroid, theres over 40, id put up a link but they would just take it down, an jammy many of these thyroid tests are not 100 percent they state, well its 90 degrees here worked hard all day now im riding as long as I can tonite , never know how long ill be able too the rider
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replied July 19th, 2015
Jammy, I haven't found a solution to the facial fat loss. The only thing I have found is that alcohol, chocolate and anything high in sugar makes the fat loss worse. I was thinking for a while that there may be some element or vitamin in the fat that this pathogen is eating. I figured if I could then take supplements of that vitamin/element I could preserve the fat. I think I was on the wrong track.

I have read recently that adipose tissue (subcutaneous fat) is recognized as an endocrine organ (i.e., it produces hormones). So I'm thinking now that there could be something hormonal going on.
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replied July 29th, 2015
Experienced User
Patient0123,

I feel like we have problems with collagen in face. I'm currently trying a tretinoin cream; it is supposed to help rebuild collagen. Will let u know if something changes.

My parents have the same signs in face. I don't know what to do.
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replied August 10th, 2015
Experienced User
Hello - everyone - I am basically in the same place. Minor symptoms but most everything is fine - however, I do have some small infection on my leg that will not go away. I think it is due to a lowered immune system and I am still relatively slow to heal from mosquito bites and cuts. So I think there is something still with me even if I am fighting it.

I read an article recently that's said that many patients with Ebola who recovered had signs of the virus in soft tissue like their eyes. My eyes have always had some issue with this infection so ... This seems to make some sense. We were infected with something, it took us a while to fight it off, we still have residual issues like eye pain or small immune issues -

I just wish there was a way to identify the issue
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replied August 10th, 2015
Experienced User
Hello wyoming,

glad to hear from you again.

I totally agree with you. I have myself some issues with my body… All the Drs. I saw told me it will take time to totally recover… I hope to get back in shape one day.

Good news is that I'm getting my weight and muscular mass back. I don't have monoclonal gammopathies, so I'm assuming I will be fine one day.

Hope everyone is getting better.
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replied August 14th, 2015
Experienced User
hi All,

So my issues are still there… I've been dealing with a tremendous headache for the last 2 weeks… especially when walking.

I was not used to having headaches, prior to the infection.

I'm scared and worried, but don't know what to do. I know that no Doctor can help me, so looking for a diagnosis or a treatment would be pointless.

I hope to get better one day.. or I'll go crazy.
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replied August 16th, 2015
Experienced User
jammy wat up? just got in from 12 hour Harley ride in 92 degree weather feeling great! what ever this is that crawled in me better grow some balls if it wants to keep me down,im not stopping, til they seal the lid.an even then good luck stopping me, ok heres what im doing, I ve changed my diet me an my son built a garden at his home an my house lots of veggies all organic, must be all organic all your food jammy , your body has to be able to cope just mainly with this virus not all the gmo, an toxins,in your food as well, fruits too esp blueberries, all the berries for that matter, all pure, good anti- oxidents, put them in with your fresh veggies that's what I do, an drink o2 water, lots, get your ph levels correct, you can buy the test kits on amazon i have so much more energy my body has taken upper hand in this battle with diet alone,amazing now an lots of protein, now i stopped taking the turmeric/curcumin because it is like a pepper an it made me sweat at nite an made my heart race, thanks to sammo i got that chlorella spirulina an man that stuff i like way better for inflammation, an digestive tract really is awesome my heart beat is down to 50-60 beats per minute now, instead of 100-120 an i feel way better, well i always felt good ,but great is better, now im also going to get this cortisol, an some iodine to try an get my thyroid back insinc with my body this virus has thrown everything off, an that's why you have head aches jammy, the virus has your whole system out of step, an yes no doctor can help,those people don't know whats up or down, they only know how to hand out toxic drugs, more toxins for the body to fight plus virus, fuel your body with the best fuel, an look for natural solutions for your headache, if i can get my thyroid function back in time with my body other ill be awesome, don't go crazy get mad take charge forge ahead. enjoy your summer therider.
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replied August 18th, 2015
Experienced User
thank you my friend,

despite my issues i'm still feeling better than 1 year ago and i'm determined to fight this thing.. I will be in Miami from 25th to 31st August, so hopefully i'll get able to chill and have some fun.. which is what i need right now.

Best wishes from Italy,
J
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replied August 18th, 2015
Experienced User
Miami AWSOME! north beach area is fun, bring plenty of money if your drinking , the drinks are not cheap there, but its a fun city. I have gotten no where again with the doctors here as well, lots of head sratching, an shoulder shruds. I beginning to see the problem thou, they simply don't know what to test for,an I said I believe its a virus? I had antibotics, so that covers bacteria, right,i feel great, but these symptoms I once had didn't come from no where? I said test for all viruses they wont do it, so im right where you are jammy no diagnosis, they fear getting in trouble running all these so called un called for tests. im slowly getting better as well, really wish they would have let me post those articles on endoviruses, it seems to match all my symptoms exactly an that guy stated hes had issues last ten yrs lol, but you didn't hear that right jammy, go to Miami an have a blast!!!! ive had lots of fun last 3 times there.
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replied August 21st, 2015
Experienced User
Lol, i don't think I will drink too much - cuz my symptoms get worse with alcohol -, but yeah, I will have some good Mojitos.. Wink

Concerning symptoms, I'm still dealing with neurological stuff. Which is scary.. Idk if I will ever get rid of this thing.
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replied August 21st, 2015
Experienced User
jammy what type of neuro -- issues? my swelling issues are almost gone now what a relief ,so nice to move arms an legs freely, swelling started 6 months after exposure til now,14 months, have very mild ringing ears, tongue still thin white coating which I believe is bacteria build up from un balanced system. bowel still some issues,sometimes normal sometimes not, otherwise im good strong, good energy, but its a day to day jammy like you said, never know whats around corner,yea we may never recover from whatever this is, but as long as I can live my life im good, let me know if you want me to leave link on endoviruses in your mail box it lists all the symptoms,you may be amazed. therider
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replied September 2nd, 2015
Update: Negative for brucellosis.

This is spreading widely now. Jammy, you know how easy it is to spot the facial fat loss in people; almost everyone in my city has it now, which I imagine must be true for many other major cities across the world if it's happening here.

Hopefully this is something that we'll get over in time. No idea what it is. Still waiting to test for Mycoplasma Fermentans which seems like a good candidate.

Really we need to raise some money and awareness for this so we can get some medical research going. This isn't something that is going to show up in normal tests.
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replied September 3rd, 2015
Experienced User
p-zero 123; what were all the symptoms you had with that? I was just at doctors again, because I look an feel good they think im fine, but these symptoms came from something, still have thin white tongue that's not going away just alittle swelling now under arms an groin,once in awhile itchy eyes, very mild ringing ears but I had many in last 18 months,jammy was over in florida on vacation,therider
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replied September 4th, 2015
Hey all. Doing good. Just been away with the family. Look good & feel ok. Some issues still. Bowel sometimes normal sometimes not. No constipation or urinary issues. Do have leg pain & twitches occasionally & one red eye. Weight steady & just about / below where I was. Though have to say I'm eating a lot but not putting on what I believe I would have previously. Think that is partly down to stress / anxiety of it all. Mass just under where I was but I'm not hitting the gym as much so could be a reason. Again my bloods show only issue was borderline sodium. Everything else bang on.. That has been the only consistency to date. Jammy what neuro issues?. Saw my doc and mentioned leg pain & twitches which again can be stress caused but as a result have seen a neuro consultant who is going to run neuro tests (EMG & nerve conduction studies) to rule out any any myopathy, neuropathy & radiculopathy) once there done & hopefully clear I'm pretty much clear of any serious issue as was the cause to joining the forum. Obv HTLV was a major worry for me & all here but obv we've had neg tests for this! My worry was the HAM aspect so be glad to rule out those issues through testing. Still working hard & no daily struggles with tasks / work. spoke with numerous top consultants who believe this is stress related due to extra marital sex but have took on board my issues / symptoms & investigated them fully. Once neuro done I believe I may have to head down the clinical psychology route as believe I could be contributing to a lot of the issues (kinda phycosomatic problems..). Regards all. Scared.
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replied September 4th, 2015
scared1010 happy to hear from you and congratulation for your recovery, you know i feel am going to die, the symptoms described all the guys are with me, am seriously in pain my cd4 2298 make me crazy, guys i would talk to you , hang on guys god bless you all
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replied September 4th, 2015
hiv destroy my life
i have been in pain for 5 months, oral trush sore throat pain in eyes, wast syndrome and all what you think about the AIDS symptoms , however my lab tests all negative ELISA AG/AB RNA VIRAL LOAD UNDETECTABLE AND EVEN CD4 COUNT IS HIGHER THAN 2200 WOW, i feel that am going to die soon ,know i think to have another lab test to check my immune system how it is; any response or help guys am affraid
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replied September 4th, 2015
ok ,after a blow job with Sex worker,my symptoms is, rapid heart beat with palpitaion, pain in eyes with redness on it, sore throat somthing stuck on it, fever goes and come, stomach pain, nero pain, burning body, shingls in my chest, and arm, malaise, fatigue, dry cough, oral candida, pain in leg, insomnia, i can not swallow and eat only liquids, and many other symptoms , those symptoms are AIDS final stage but my ELISA AG/AB negative, RNA VIRAL LOAD UNDETECTABLE, and CD4 count over 2200. WOW make me crazy this number, guys i believe this is a retrovirus and i plan to get HIV medication , please when you drop a comment let us know your emails to stay in touch, emails are welcom, stay strong guys;
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replied September 4th, 2015
Experienced User
scared; good to hear from you! I too asked jammy about his neuro issues, glad too hear your doing well.we all wonder if whatever caused all our symptoms will ever be discovered, I lost faith in doctors, thousands of dollars an no answers, cant even get them too try an figure it out.hivtest 21; hang in there,lots of people here have had to face several symptoms,an seems to get better with time, what do doctors say about cd4 count
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replied September 7th, 2015
Rider we are lucky to that extent in Europe. Healthcare is free at point of entry so no payment reqd for tests. I've had full investigations which would have been expensive to rule out possible causes. Hopefully once I rule out these leg issues out which again could be stress induced (as I haven't settled since all this began and was guilty, anxious, concerned & worried the day after letting my wife down so bad). By these neuro tests, I will maybe look elsewhere for help. Realistically negative, negative, negative should suffice but I'm not able to take my mind off these issues which could be causing them (phyco-somatics) Test 21 that's a pretty big count. My WBC was 7.1 (7100) normal range I believe is 5000 - 11000? The higher the range (11000 +) is an indication of inflammation from what I read. The lower the range (- 5000) is a sign of infection. Surprised the doc never suggested looking into that a little more to find the cause of such high levels.

Regards
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replied September 9th, 2015
Experienced User
scared you are very lucky, here in us we spend thousands a year for monthly health polices that when used pay out very little an deductables are 6000 per yr. an then when you get sick doctors don't want to preform tests to find out what you are sick from because health care companies don't want to pay for any unnessasary tests, but meaning you must be very ill first,an the people the hospital knows have problems paying for all these expensive tests as well, so they do nothing.i had to fight an treaten just to get the tests I wanted ran, an I paid for it due to 6000 deductible. so you are so lucky to have health care there that works this crap here in us,DONT. then they only treat symptoms don't cure anything here. glad to hear things are more back to normal there, jammy where the heck are you? get lost in florida
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replied September 9th, 2015
Hey guys, same story here. Series of negative tests and "it's all in your head". Here's my story:

Dear Sir/Madam,

I'm a 24 year old male. I had a one night stand last October, or the October before that (I can't recall correctly) without protection, never looked back. I am unable to track down this female I was with, but I believe that she may had many partners before me, she was older. I moved on with my life and didn't even consider any STD in my mind. Fast forward this late June while drinking, I had a sharp pain in my lower back, probably involved with the kidneys. I got scared, and went to the hospital for a CBC, liver and kidney function, basically a checkup. While I was examined there, they noticed that my lymph nodes in my armpits were swollen and also I had been fighting a terrible skin condition for ages now, (folliculitis, lesions and little pimples on my chest, arms, back, knees, recently on my hands) so they ordered a HIV test. I was shocked. Got so scared, I had constant diarrhea and was unable to sleep for a while, googling symptoms of HIV, and realized I had oral trush (I'm a smoker) and two canker sores in my mouth on the sides, and chappy lips with dry mouth, so I was convinced it was going to be positive, I've read everything I could, but had to wait a week for the results. I was terrified. They came back finally. CBC normal, (including lymphocites and everything) liver and kidney normal, HIV test (4th gen ELISA Ab/Ag - BIORAD) seronegative, this was in July, so it was out of the "window period", at 9 months after the supposed exposure, or after one year and 9 months. Huge relief, and I relaxed, because "test results stump symptoms every time" -or so I have read- and would have continued on with my life if only I didn't start getting a rash on my hands, inner thighs, back, fingers, (blisters, itchy skin, painful, sides of the palms, on fingers) forehead, and my skin on the trunks also worsened, I also started getting sore skin on my face under the moustache and head, (seborrheic dermatitis I believe) also the skin on my soles and hands started peeling. I also got a sinus infection in my nose. I'd scratch my skin all day and it would get infected even more, resulting in me looking terrible. It has happened before and I didn't really care, used over the counter creams to combat it, but this time it was really horrible and I didn't know what to do, so I proceeded to go to a lab and get tested for virtually every STD a month later, because of fear of syphilis or a false negative HIV test (I faintly remember being tired for days on end and having some kind of chancre on my penis which quickly healed, but it was so long ago I can't recall correctly). (the tests were done on Aug 13th, 10 months after the incident or one year and 10 months - if I recall correctly) Results were the following:

AIDS (HIV DUO Quick) (Biomerieux Vidas) - negative
RPR (Syphilis) (Rapid Plasma Reagin Test) - negative
TPHA (Syphilis) (Core Syphilis) - negative
HEPATITIS-C Ak (Immunoassay) - negative
Chlamydia trachomatis AG (ELFA) - negative
N. Gonorrhea - negative
Soor - negative
Trichomonas - negative

It was a huge relief but I still had the skin conditions the itching, and the swollen nodes, abdominal pain, gastrointestinal problems, so I decided to go to a hematologist in fear of Hodgkin's syndrome or some other cancer(s). By the time I got an appointment (Sept 3th) I had no swollen nodes, or diarrhea, still had the skin problems though. She said that the testings were conclusive, examined me and said that most likely my skin looks like this because of constant picking due to anxiety and stress, and that I had no swollen nodes and my blood looked fine so CT would not be required. She said I looked healthy, was poking me for a good hour checking for spleen, liver enlargment, kidneys, and so on, she found nothing. She said that the lymph node was likely just reactive (Hidradenitis axillaris) and there is nothing to worry about. She said I should excersise and go to a dermatologist with my skin, then let me go. So I did. The dermatologist said the next day (4th of Sept) that my skin is like this because I keep poking and scratch it, that the testing was conclusive and I'm just full of anxiety hence the symptoms. She though identified some rash on my inner thighs and genital area (she said it was probably due to heat and improper shaving) and prescribed me anti fungal pills, and a steroid cream for my skin. I'm getting it on Monday. I called the HIV hotline and they said that no further testing would be required, and that they never documented a case of late seroconversion on my country. I however, am still not convinced. Is it possible that I have some kind of rare HIV strain that is not getting picked up by tests, or am I not be able to produce antibodies against some STDs, hence the negative tests? I've read about rare scenarios like that. I have an appointment for the local GUM clinic on the 2nd of October. I'm not sure what to expect. Should I get another test(s)? My skin is healing a little bit but I still have the rash and the follicitis, again a sinus infection in the nose, it's making me insane. Anxiety is over the roof. I honestly think I may really be the case of 1 in a million who produces no antibodies against HIV, or a case of late seroconversion. I don't know what to do, the fear is debilitating and I'm unable to proceed on with my life. I can't eat, can barely sleep and I'm crying every day. I'm loosing weight fast. I've asked for psychiatric help because I obviously need it, and counseling, which I'm going to attend this month. I'm depressed, anxious, and highly neurotic, for obvious reasons. I don't know what to do. My family says I'm an insane hypochondriac, (I was not like this before that night with the back pain at all, couldn't give a rat's ass about my health to be honest, bad move I know) and all my friends turned their back on me, saying it's impossible to cope with me because I'm annoying. True that and I don't blame them, I'm basically destroying myself with anxiety and everybody hates me now. I'm all alone and can't seem to figure this one out... Any help would be great at this point, because I'm not imagining this up I'm sure, or if I do, I belong in a mental institution. I have no history of any serious disease, but I'm overweight. I'd be willing to work on that if only I could break this vicious circle of doctors, hospitals and tests. Please answer something for I am truly lost and science does not seem to help me this time. Everybody thinks I'm nuts, and I may very well be.
I'll try to convince the people at the GUM clinic to give me penicillin treatment or something other antibiotic stuff, because my symptoms look a lot like syphilis or HIV, but since I produce negative test results, I don't know if they will allow it, most likely not, and no doctor will prescribe me ART medications with negative ELISA tests, (PCR is unavailable in my country) but I don't want to die of an AIDS related sickness or syphilis obviously... I've read about rare cases of late seroconversion and of a few people not producing antibodies at all, and they say that the mortality rate is high among those people. I'm going insane. Might test a 3rd time, but what are the odds of it changing to positive, really? This whole thing was a huge wake up call for my health, but I'm unable to move on. I'm even considering suicide now, or a psych ward... Please, talk to me, sorry for the wall of text.

Regards and with respect
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replied September 9th, 2015
Experienced User
worried g; all of us were right where you are now ! its really freaky , an then doctors who you think are there to care an help that's what you are paying them for don't! an you soon realize they are not the answer an find yourself alone, welcome too the club,we are all here trying to help each other, an of course we are all seeing our doctors yet, but to no avail,still hoping to find the cause, im into this 19 months now, hang in there you are not alone, an yea you must cool it around family an friends no one wants to hear about this mess, try to find things in live you enjoy doing an stay busy, don't even think suicide that's just dumb! hang tough be strong, focus on figuring this out an helping others, that's what we are all doing here. thrider
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replied September 10th, 2015
yesterday i emailed my doctor and told him am going to die soon, even he didn't agree to run an hiv test i begged him to run a cd4 count in another lab and the result was 1078 he said if you have AIDS your CD4 will be in the toilet, also run an FNS and the i have high level of leukocytes which indicate an infection and slightly low total lymphocyte 24 instead 25 PERCENT and more, this number freaked me out now my symptoms are tolerable, i have rapid heart beat with palpitations, fatigue, something stuck in my throat and my lest eye with red spot burn, i am engineer working for a very big oil and gas company and because of my health i have resigned, guys can someone explain what happened with us maybe a rare strain of HIV, because my lab test swings from day to day i don't believe the labs anymore,,,,, tired from symptoms and i feel am going to DIE soon because of RARE STRAIN OF AIDS...this is what i think.
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replied September 10th, 2015
yesterday i emailed my doctor and told him am going to die soon, even he didn't agree to run an hiv test i begged him to run a cd4 count in another lab and the result was 1078 he said if you have AIDS your CD4 will be in the toilet, also run an FNS and the i have high level of leukocytes which indicate an infection and slightly low total lymphocyte 24 instead 25 PERCENT and more, this number freaked me out now my symptoms are tolerable, i have rapid heart beat with palpitations, fatigue, something stuck in my throat and my lest eye with red spot burn, i am engineer working for a very big oil and gas company and because of my health i have resigned, guys can someone explain what happened with us maybe a rare strain of HIV, because my lab test swings from day to day i don't believe the labs anymore,,,,, tired from symptoms and i feel am going to DIE soon because of RARE STRAIN OF AIDS...this is what i think.
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replied September 10th, 2015
Experienced User
hiv test 21;cant go by symptoms a lot of viruses or bacteria, can give same symptoms, its very confusing I know, trust me things get better so relax, even stress will cause the same symptoms, an sounds like you are under loads of it,im really sorry to hear you left your job, cant you take a leave due to medical emergency,instead? now I had all of this an more, check out the thyroid symptoms, whatever happened to me knocked my body out of balance by throwing my thyroid off which gives off the symptoms you have as well, read up on it im now taking selenium, cortisol,iodine an in 2-3 weeks im sleeping well heart back to normal, no more racing, dry skin good red eyes gone, feel much more like self, your labs will change your body is fighting something as well as mine is, but I got my system balanced out again, with my thyroid, which is in your throat maybe why you cant swallow, theat can happen with thyroid issues, you can correct this yourself or see your doctor which ever you prefer,my doctor is not here to help me just take money,i will tell you this I feel great!!!! read up on thyroid issues a virus can throw it out of balance which therefore causes a lot of symptoms hope this helps, if you have inflammation issues try chlorella/spirulina it works great an is good for digestion as well, read up on selenium its awesome the rider!
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replied September 11th, 2015
Thanks the rider for your help, even my stool and my smell is not the same anymore, i have a foul body smell and the same my stool is, i try tonnes of antibiotics and corticoides nothing help, the rider can you please give me the name of the medications you are taking now, tell me you think i don't have HIV ? viral load undetectable, elisa ag/ab negative after 3months , CD4 swing but 1000 and i plan to do another cd4 lab by this week,please let me know if you have rush in chest and back... please rider help me i am here since 4 months and still struggling with many symptoms, even my labs test said am hiv negative in my head am AIDS patient, and i swear to my doctor this is AIDS symptoms, when i feel my body burn like fire i call my dr and tell him am hiv positive please put me on ARV,he doesn't want to help me, am so tired from the endless symptoms i lost also 13KG which is wasting syndrome, my last hope is you RIDE please let me the name of the medications you are taking.
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replied September 11th, 2015
rider i need ur help bro
my symptoms are killing me and in my head am AIDS patient, i tried tonnes of medicines without affect,
my symptoms are with me since three months ago some of them are gone and i still struggle with some,
my symptoms are: very serious sore throat, fever episodes, chest pain (go away),drenched sweat all the time(night and day) now the night sweat go away, burning body on fire(go away), rush in my chest(start to go away) extreme fatigue until now, insomnia (am taking nosinon help me to sleep) constipation and digestive problem until now, sensation of fear in my stomach, malaise, red spot in eyes sensitive to light until now, rapid heart beat until now, feel something inside my throat, headache from time to time, black foul stool smell and even my body smell is very bad, wasting syndrome more then 10kg, lack of apptit, heart palpitation,(white tongue) oral thrush, at this moment i have heart racing with palpitations , fever, burning eyes, malaise,fatigue, and foul smell, my symptoms are better than 2 months ago when i though am going to die soon, i run many lab test and i spean the hole day in the hospitals and clinics, NO one can realize what's the wrong, the value of my cdc blood test swing especially, lecousyte, lymphocytes, and pallets, i also run 7 hiv test all negative and all over three months mark, elisa AG/AB fourth generation, RNA viral load, all negative, my doctor if you are hiv infected your blood will swim with hiv and viral load will be over millions, RIDER can you please give a name of medication contain cortisol, in my head am extraordinary AIDS patien and i plan to mesure my cd4 count once again monday. RIDER please give the name of some medication that help you to relief your symptoms. thanx in advance bro
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