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Certain HIV positive, but negative tests (Page 113)

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November 7th, 2014
Experienced User
Guys-

I just woke up to a mouth full of Candida- after beer.

I had put my mind at ease regarding HIV but now.
I have a 7 week pcr, a 2, 3,4,6,7 and 14 month negative antibody

I am having a bit of a panic attack - has anyone else had this issue -

Does htlv cause candida?
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replied November 7th, 2014
Extremely eHealthy
YES!
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replied November 7th, 2014
Experienced User
Testing again - now 24 months later. Results in 5 minutes
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replied November 7th, 2014
Extremely eHealthy
WS,

I understand that you are having a panic attack, it's a result of the hell that we are all living in. But you don't have HIV. Not only have all of us been tested dozens of times, but also over a huge period of time. Before I knew DFrank, I read about a guy local to me who was institutionalized for thinking that he had HIV, even though his HIV test was negative. We all know what we have, we all know its real, we all know that we are not crazy. HOWEVER, if you flip your lid, wig out, and get put into a rubber room, you're of no good to yourself, your family, your friends, and the people on this forum. I know I'm asking much of you to keep your cool and be constructive, but look at the uselessness of the alternatives - a nut house or suicide. Consider this one of those caring slaps in face like in the old movies from someone who wants you to get a grip - I know its hard, but you're a smart guy and you can do this. You still have my phone number, call me anytime and I will talk you through this.

Best wishes.
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replied November 7th, 2014
Experienced User
Ok... Another negative -

Thanks Tony! Wow- I forgot how stressful all this can be

I recently made a friend who is actually an immunologist. I am going to see if they will do RNA scan - sorry for the insanity

Have no idea how much I value the forum
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replied November 7th, 2014
Extremely eHealthy
WS,

You're very welcome, anytime! Call me if you ever need to get crap off of your chest. I just posted an article to the HTLVhelp FB page where in 2002 an American research article recommended doing PCR testing for the Tax protein, even when the antibody test is negative. So if you do make friends with someone who has access to a lab, that's the thing to ask for.

I'm planning on going on the new version of Tenofovir when it becomes available, hopefully it will be soon and not years from now, the pain can be at times is excruciating, along with the deterioration.

I'm glad you value this forum, I do too, it's one of the very few places (besides PhoenixRising and Face Book HTLVhelp pages) that allow open discussion, unlike the censorship raised on those other medical sites.

Best wishes.
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replied November 7th, 2014
Experienced User
Hey TD,

I think TAF should soon be available in the U.S.. I'm pretty sure Gilead has just asked for FDA approval.

wyoming -- it's great that you have a friend who is an immunologist. He can really help you.

I'm sure we'll all feel better one day, guys.
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replied November 10th, 2014
Experienced User
Im so tired. I am 22 years old and I feel like an 100 year old man... Awake for 12 hours maximum, sleep 12 hours. It is different tiredness than normal tiredness I had in the past before all this. My whole body, every cell it seems, feel tired. Still no updates here as well...
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replied November 10th, 2014
Experienced User
cd4 cd7 test
thanks for your help
I got my strange cd4 and cd7 report! I never asked for cd7!

35% of blood cells are lymphocytes
cd4 expressed on lymphocytes 40.8%
cd7 expressed on lymphocytes 40.2%
cd4/cd8 ratio= 1 ref ( normal 1 to 3.5 )
hiv1/2 antibodies negative for 48 times over 1 year
hiv antigen/antibody negative at 9.5 and 12 month of exposure.
Note: my cd4% was 42% at 6 months of exposure and negative HIV1/2 the same time.
I tested for hiv antigen/antibody at 12 months mark of exposure and was negative and my wife

too negative.
what is it? what is cd7?
am i negative to hiv1/2?
is my wife negative to hiv1/2 after the negative result at 12 months of exposure?
what is cd7 for? please explain the result of the test. thanks a lot
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replied November 12th, 2014
Experienced User
hello EMIG,

how ya doing my friend? hope you got a bit better.
I'm not sure about "cd7", I guess you meant "cd8". CD8 are 'bad' lymphocytes, indicating inflammation. The higher the CD8, the more important the inflammation is.

CD4 are 'good' lymphocytes, that kill pathogens. Normal CD4 range is 800-1200 for a healthy person. Some diseases can cause CD4 to fall (e.g. HIV) or to go high (e.g. HTLV)

Best
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replied November 14th, 2014
Extremely eHealthy
M,

Same here, wiped out with exhaustion all of the time.

Best wishes.
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replied November 11th, 2014
Experienced User
Hello guys

I see that we are still having problems with our health. I am feeling a bit better these days as it relates to my symptoms. Just a few remains with me........pain in one leg, itchy skin & gas issues. The pain in the leg is an area that is very very sensitive to touch.

wish I had the experts and modern testing facilities in my country like you guys to test me properly. Right now it seems as if I am only wasting money by going to them. I have wasted enough.

All the best guys and sorry that we are going through all of this.
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replied November 12th, 2014
Experienced User
Hi ustas,

It's good to hear from you again.

Glad you're feeling a bit better. Sorry about your leg pain. Which country are you from? Is your partner getting better, too?

Do you still walk ok or your walking ability got worse? Try with vitamin B1-B6-B12 to have some relief with your leg pain. I would also suggest taking omega 3-6-9.

Best
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replied November 14th, 2014
Extremely eHealthy
Ustas,

The vitamin B class of drugs does go far in suppressing the virus (and in turn symptoms). Recall that Prosultiamine is a derivative of vitamin B.

Best wishes.
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replied November 12th, 2014
Experienced User
Hi guys,

Forgot to add something: my neuro symptoms have been getting better since I've started taking nervonic acid. It might be worth a try if you deal with stiff neck, headache, leg pain. It's used to treat Multiple Sclerosis, too. It basically helps in 're-building' the myelin sheath.

Here's a link suggesting diet adjustments for myelin / neuro-symptoms: http://www.ehow.com/how_7894361_repair-mye lin-sheath-food.html

Best
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replied November 15th, 2014
Experienced User
Hey, where can I buy nervonic acid, in what form? Thank you. Best.
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replied November 15th, 2014
Experienced User
Hi msa,

Nervonic acid is a supplement. It's basically Omega-9. In my country it comes together with vitamins B1, B6 and B12.

You can ask your local pharmacist for a supplement which includes it. It is normally included in supplements for neuro-protection.

Hope this helps.

Best
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replied November 13th, 2014
Experienced User
Bad news from HTLV Registry FB page:

Right before Election Day, Congressman Chris Gibson received a Response from (Wrongfully-in-Office) CDC Director T. Frieden. CDC replied they "Can't ensure 'HTLV' will be added to CDC/CSTE's National 'Reportable Diseases' List". But even worse, they Didn't Respond to Cong. Gibson's observation that there are No Printed "HTLV" Pamphlet(s) or Poster(s) for the Public (not in/by the U.S.) So probably in December, we'll be Writing/Distributing a New "Criticism/Rebuttal or Refutation of the U.S.'s Harmful & Unacceptable 'HIV-only' Public Health Policy(s)"...R. Engnath, 11/11/14


WTH is wrong with these people?!?
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replied November 17th, 2014
Experienced User
Hi All,

Have you guys checked for monoclonal gammopathy ?
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replied November 19th, 2014
Experienced User
HOW TO REDUCE THE EXTENT OF MITHOCONDRIAL DAMAGE

CoQ10’s Rejuvenating Power
Coenzyme Q10 (CoQ10) powerfully safeguards mitochondria from age-related decay and death through two principal pathways.

It plays an essential role in the electron transport chain, facilitating the efficient transfer of electrons into ATP for use in cellular function.16 CoQ10 resides primarily on the inner membranes of the mitochondria; 95% of all cellular energy production depends on it.

CoQ10 also acts as a powerful free radical scavenger, neutralizing their lethal action and dramatically reducing oxidative damage. The more available CoQ10 in the mitochondria, the less free radical damage.16 This is one of the reasons why the highest CoQ10 concentrations are found in the most energy-intensive organs: the brain, heart, liver, and kidneys.17

CoQ10 levels in our vital organs, like the heart, steadily rise after birth and peak at about 20 years of age. After that, they undergo a continuous decline.18 Fortunately, three decades of cutting-edge research have shown us how to restore CoQ10 levels in the mitochondria to slow and even reverse the effects of aging.19-22

In pre-clinical models, CoQ10 supplementation protects tissue from lethal DNA damage and increases lifespan.23 It boosts mitochondrial function and total energy output in heart muscle in aging animals.24 And in animal models, lifelong CoQ10 supplementation has been shown to decrease oxidative damage in skeletal muscle, increase native antioxidant enzymes, and favorably modify age-related changes in muscular energy metabolism.25

Until 2007, the only form of CoQ10 available was ubiquinone. Unfortunately, the ubiquinone form ofCoQ10 has limited absorption.26 Another form of CoQ10, known as ubiquinol, remains up to eight times longer in the blood.27,
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replied November 19th, 2014
Extremely eHealthy
Anything that helps mitochondrial energy processing is helpful against HTLV, since it interferes with mitochondrial energy processing, causing fatigue and weight gain.

Best wishes.
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replied November 19th, 2014
hey guys i have the same exact symptoms as you are,rapid weight loss,joint and muscle pain,hair loss,chronic diarrhea etc.all very severe same as my wife.did a lot of test full std test all non reactive,stoll test,tyroid,colonoscopy,chest x ray,cbc,also check my kidney blood sugar...all normal.i visited 5 different stupid doctors they tell me everything is perfecly fine which is not.guys look i don't no else what to do but the only option left for me is suicide
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replied November 20th, 2014
Experienced User
Hi pal,

look, it's really too early for you to give up. Don't do anything stupid and fight this illness.

If you read thru the posts, you'll find a lot of supplements you can take to get better.
I'm sure you can.

I understand your current feelings, we've all been there with suicidal thoughts. But trust me, it's not worth it.
Best
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replied November 20th, 2014
Extremely eHealthy
I started Atkins a few weeks ago, since I have both gained weight AND lost muscle mass since I was infected. Overall, I feel better, partly because I believe that the lack of carbs give the yeast infections (skin, mouth, intestines, and rectum) less to flourish on.

Best wishes.
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replied November 20th, 2014
Experienced User
Thank you TD,
good to hear you noticed some improvements. My only doubt concerns kidneys: aren't you afraid of damaging them by eating too many proteins? Since we're also dealing with general organs inflammation. I know we're dealing with a lot of issues, I was just asking cuz I want to know your opinion.

Best
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replied November 20th, 2014
Extremely eHealthy
A low carb diet has been proven to be better cardiovascularly than a low fat diet. Since HTLV does damage to the cardiovascular system, such a diet would be a nice countermeasure to that damage. Avoiding carbs does not necessarily imply "too many proteins", since vegetables are also allowed. Generally any additional proteins are passed out as fecal matter.

Best wishes.
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replied November 20th, 2014
It’s been four month since my exposure and I tested Neg through out the window period not to mention that my exposure was unprotected blow job I received from a hooker. I’m still having symptoms, tingling/ticking sensation in feet,muscle weakness and pain, muscle spasm, joints pain, dry and itchy throat, headache, iflamed taste buds and blurred vision.
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replied November 21st, 2014
Experienced User
everyone here go and test for mycoplasma/ureaplasma
it makes the same symptoms which we all share with negative hiv tests.. I tested positive for ureaplasma 1 million copy/ml
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replied November 21st, 2014
jammy88 thanks man for giving me hope cause i think i'm losing my mind,hope you guys are doing some improvement.got to make an appt. to another doctor and this time praying he'll figure out what's wrong.
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replied November 22nd, 2014
Experienced User
you're welcome man.
We're always here to give support if u'r having a bad time. Please remember that your life is still precious. You need to fight. It's too early to give up. I'm not saying this is going to be easy, however things can improve. We gotta remain hopeful and strong.
Best
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replied November 23rd, 2014
Experienced User
From PubMed 'The Gut Microbiome and the Brain'.
Only the abstract is available:

"The human gut microbiome impacts human brain health in numerous ways: (1) Structural bacterial components such as lipopolysaccharides provide low-grade tonic stimulation of the innate immune system. Excessive stimulation due to bacterial dysbiosis, small intestinal bacterial overgrowth, or increased intestinal permeability may produce systemic and/or central nervous system inflammation. (2) Bacterial proteins may cross-react with human antigens to stimulate dysfunctional responses of the adaptive immune system. (3) Bacterial enzymes may produce neurotoxic metabolites such as D-lactic acid and ammonia. Even beneficial metabolites such as short-chain fatty acids may exert neurotoxicity. (4) Gut microbes can produce hormones and neurotransmitters that are identical to those produced by humans. Bacterial receptors for these hormones influence microbial growth and virulence. (5) Gut bacteria directly stimulate afferent neurons of the enteric nervous system to send signals to the brain via the vagus nerve. Through these varied mechanisms, gut microbes shape the architecture of sleep and stress reactivity of the hypothalamic-pituitary-adrenal axis. They influence memory, mood, and cognition and are clinically and therapeutically relevant to a range of disorders, including alcoholism, chronic fatigue syndrome, fibromyalgia, and restless legs syndrome. Their role in multiple sclerosis and the neurologic manifestations of celiac disease is being studied. Nutritional tools for altering the gut microbiome therapeutically include changes in diet, probiotics, and prebiotics."
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replied December 1st, 2014
Experienced User
Hi All,

A recent tweet from Fabiola Martin (HTLV researcher) says HAMLET-P trial to treat Ham/Tsp is 'going well!!'.

Hope one day this will just be an old, bad dream.

I hope you all are doing ok, despite everything.

My symptoms have been on and off, as usual. The last couple of weeks has been a bit more positive. I have to thank several neuro-protective supplements, which are doing their job.

Best.
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replied December 3rd, 2014
Experienced User
hi everyone. now it is 13 months after the exposure
I am developing Allergy on face, went to a clinic and tested HIV1/2 Elisa negative 3 times this 13th month.
also tested for HIV1+O/2 at the 13 month rapid test negative.
so what is going on!!
the recent tests for me and my wife
12 month after exposure hiv antigen/antibody negative ( i and my wife )
13 month after exposure hiv1/2 Elisa and HIV1+O/2 rapid negative .
so what is going on!!
i have dry skin on face forehead and looks like allergy and itchy!
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replied December 3rd, 2014
Extremely eHealthy
E,

Why do you keep testing for HIV so long after your exposure? The rest of us have been sick way longer than you, and none of us have HIV, so why waste your time, money, and energy pursuing HIV? Better said, when will you stop testing for HIV?

Best wishes.

PS: Yes, we all have dry, itchy skin, and none of us have HIV.
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Thanks for your patience!

replied December 3rd, 2014
hi guys,I am sure that I am new victim.I dont believe god anymore.What the hell all my std came negative,I have a constant diearhhea, itchy skin,tingling over my body,some times pain in abdominal.Tony please say me that are old sufferrer still alive?Because I am about to commit a suicide now.I had a protected sex and my symtomps began after a day.I also talk that girl,she said that Im clean.
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replied December 3rd, 2014
hi guys,I am sure that I am new victim.I have mild ones now.Dry mouth,tingling itch skin, gurgling stomach.Tony please tell me that are old sufferers still alive?
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replied December 4th, 2014
Extremely eHealthy
I heard from DFrank, he's had this longer than me and is doing fairly well, even getting married, which is something I couldn't even dream of. But I can't say that this doesn't end lives. Today I was reading about Sjogren's syndrome, and they're saying that fatal cases of it have the same comorbidities as HTLV - without me saying it, Im sure you know why Im mentioning this. People like Effie on the HTLVhelp Face book page have B-cell lymphoma, and Alberto from Italy has come down with Mycosis Fungiodes within 7 years of being infected. So I can't make any promises - we all have different immune systems and are responding to this infection differently, e.g. AdviseMe is half my age and bed ridden with this. Derrick is twice my power and needs a walker to move.

Best wishes.
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replied December 3rd, 2014
Experienced User
TD,

Any suggestions on foods or treatment to help with facial outbreak?
I am thinking anti fungal - any other thoughts?
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replied December 4th, 2014
Extremely eHealthy
0. I went on Atkins - eliminating carbs has made me feel better. However, credit goes to DFrank, who originally mentioned the cutting of carbs in order not to feed fungal infections, e.g. candida of the mouth, intestines, SKIN, rectums, etc.

1. Everything antiviral - OTC supplements I take are tablets of Pau D'arco, Olive Leaf, Licorice Root, Skullcap, Lysine, Vitamin C, garlic, and a multivitamin. When I don't take these, the pain is much more severe.

2. Other antivirals - any vitamin B derivative, ideally Prosultiamine, if you're able to get it across the border. I don't know when Gilead is releasing TAF, but when they do, I want to be first in line for that. All that you need to tell the doctor is that you are involved with someone HIV positive, and you will automatically be granted as prescription for TAF.

3. Topicals - use shampoos such as Head & Shoulders as facial soap, the active ingredient of pyrithione (spelling) zinc works against atopic dermatitis outbreaks you are most likely experiencing, which are caused by fungal infections AND immunosuppression.

As with HIV, both the actual virus and diseases from immunosuppression need to be treated simultaneously.

Conditions that I am not able to directly treat but a driving me insane are major hair loss and lung pain (via aveolitis, thanks HTLV), back pain, and the occasional horrifying lesion. And my teeth are drifting like crazy because (via x-ray), the roots of my teeth are shrinking rapidly (thanks HTLV lyctic bone loss).

Be on the lookout for thyroid problems as well. This virus is a total nightmare.

Best wishes.
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replied December 3rd, 2014
I think this is a new retrovirus.Some people try everything antibiotic antiviral etc, but it didnt dissepear, just some relief.How you guys still believe the god or something, i dont understand.This world is a junk.
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replied December 3rd, 2014
Experienced User
same crap. unexplained
Still here same symptoms come and go. Right now I'm itchy all over. My girlfriend has issues with her reproductive system and the gland in her head that regulates her hormones. I can't figure out what's going on. She is also very itchy everywhere. And when we have unprotected oral and vaginal sex. We get sore throats and urinary tract infections symptoms. For a couple of days. Also weak sensitive joints.

Wish I had answers guys but nothing still. Be strong guys. I know it's hard . I get depressed time to time and turn to alcohol and unhealthy foods. Witch I've gained a few pounds. (15-20lbs) plz everyone keep in touch.
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replied December 4th, 2014
Extremely eHealthy
Dman,

Sorry for your suffering, and you gf's as well - her menstrual cycle will most likely be wrecked by this as well. Every girl I've been with doesnt have a regular period anymore.

Best wishes.
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