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Certain HIV positive, but negative tests (Page 12)

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May 23rd, 2012
Experienced User
Ok so I keep gettong these panic, anxiety, fear attacks! So deppressed I dont even go to the gym becuase I rather sleep.. I keep waking up with HIV in my mind. Its such a horrible feeling.

Ok so here are the symtoms im going thruogh right.now... Minor Flollucitis, random but pains that shoot to random spots on my body, somethimes I get a slight pain or sensation in my anus, (anybody else?) Minor tingling in fingers and toes, very itchy body random places recently my hands started itching inside my skin, slight blurred vission, and pain in my insides like on the left side of my back something seems inflamed or enlarged, tendor tendons around my joints(minor pain) and the thing that frieghtens me the most is this throat thing(going on 5Weeks now)

Well those are all the symtoms im facing, vety hard to ignore and try to pretend nothing is wrong, so yes I do still have HIV in my mind, hpv,hsv,htvl,sypillis,scabies mites of some sort. Im going to a clinic soon. I need a proffessional insight. A Dr a an std clinic told me I should get a mouth swap to check for std in my throat, so I will do that, but it seems after I narrow it down to a certain std something doesnt add up, like I vould have multiple stds or something rare.. But ok guys let me know wat ur results are.

Scared49 I have alot of the same symptoms as u. Plz update us thanx..
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replied May 23rd, 2012
Experienced User
Hi Scared, You can check for HTLV symptoms on Google. I have this from thebody.com where in some one is talking about his symptoms.

TonyDewitt, Would you know what is the window period for HTLV is that 90 days for conclusive result.I have all possible symptoms of HTLV. just waiting for next week to get tested.
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replied May 23rd, 2012
Extremely eHealthy
tested HIV antibody negative outside the three month window
Depressedman,

If you've tested HIV antibody negative outside the three month window, then you don't have HIV. However since we all share similar symptoms, you should consider HTLV and other infections.

Best wishes.
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replied May 23rd, 2012
Depressedman what bout your girl is she still having symptoms or did they stop
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replied May 23rd, 2012
Experienced User
Depressedman, i have all these symptoms even more than you mentioned. Tingling on body and legs, Blurred vision,neck pain,pins and neddles on leg, Left arm goes numb with neuro problem, constipation,lower back pain,skin is so sensitive i get bruises very quickly. My symptoms started 3 days after protected sex with night sweat, diarreah, bumps on neck, back and face, muscle pain and body burning.Diarreah was there uptill week 7. Followed by constipation.HIV test at week 8 was negative.I can only think of HTLV now, which i am very sure i have it with these symptoms. The other thing with HTLV is that no one is sure how is it transmitted sexually. Many forum say it is through sexual contact, which means even Latex condom wouldnt protect soem one with this virus. I am getting my slef tested for week 10 next week.Also not sure about the window period. few people say the incubation period is between 30- 90 days before seroconversion for this. Ill pray for you all and god helps us. Whatever mine or your test result is please sign the petition, lets come together and fight this virus which is been ignored for 40 years.
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replied May 23rd, 2012
Experienced User
HIV Symptoms confused with HTLV
Depressedman, i have all these symptoms even more than you mentioned. Tingling on body and legs, Blurred vision,neck pain,pins and neddles on leg, Left arm goes numb with neuro problem, constipation,lower back pain,skin is so sensitive i get bruises very quickly. My symptoms started 3 days after protected sex with night sweat, diarreah, bumps on neck, back and face, muscle pain and body burning.Diarreah was there uptill week 7. Followed by constipation.HIV test at week 8 was negative.I can only think of HTLV now, which i am very sure i have it with these symptoms. The other thing with HTLV is that no one is sure how is it transmitted sexually. Many forum say it is through sexual contact, which means even Latex condom wouldnt protect soem one with this virus. I am getting my slef tested for week 10 next week.Also not sure about the window period. few people say the incubation period is between 30- 90 days before seroconversion for this. Ill pray for you all and god helps us. Whatever mine or your test result is please sign the petition, lets come together and fight this virus which is been ignored for 40 years.
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replied May 23rd, 2012
Most of my symptoms are seeming to be calming down which is putting me under the impression that it is non other then hiv I still can't sleep just thinkin of it and waking up feeling it I know my life is over. I been gettin a lot of back pain too. I wish I could give it advise to you guys but I'm the rookie in this forum everyone except me are past their window period.
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replied May 23rd, 2012
Extremely eHealthy
Thanks for your declaration to fight HTLV
AdviseMe,

Thanks for your declaration to fight HTLV, which has been ignored for four decades, and for your efforts to sign the HTLV related on-line petitions so that we can get this virus recognized and hopefully dealt with.

Best wishes.
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replied May 23rd, 2012
Adviseme we have the same symptoms except diarrhea I think it lasted like a day or two don't really remember. I'm takin my 8 week test on Monday if I have hiv I hope it comes out positive already I can't live like this any longer its killing me slowly
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replied May 23rd, 2012
Experienced User
Donefor my girlfriend is still feeling body pains she complains her whole body aches and her neck is achey and stiff. I feel she hides alot of her symptoms to not worry me more. She does not want to hear about stds nomore. But im stuck eith all the Regret,guilt,stress,anxiety,depression, my friends keep tell me its all in my heaf since me and my girlfriend keep testing Negative. I didnt test at twelve Weeks I tested at 11 Weeks and 2 days, and she tested at the 12 week after me anf her had unprotected sex, but what are the possibilites of me and her having false negatives after 11 Weeks and 12, ive read that vadt majority of people test positive 2-6 Weeks with 25 days being average. So me and my GF have tripled the average time, and also Dr HHH said a 6 week is almost conclusive and has never himself seen it change. And teak and dr. bob says a 3 month Negative its conclusive.
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replied May 23rd, 2012
Experienced User
Depressedman, I a have all your symptoms but even more.
This is my week 10 after protected sex with these symptoms. Dry mouth, blurred vision, constipation, tingling on body and leg, weak leg muscle, neuropathic disturbance on leg back and arms. Neck pain, pins and needles on body, some time sharp pins on body.
Skin is dry and very sensitive. i get bruised very easily.
I started my symptoms 3 days after the encounter, with Diarreah, tingling,neuro disturbance, weak bladder, dry mouth. have lost more than 6 kgs in 10 weeks. My week 8 HIV test results were negative, doctor said HIV is not my worry. I can only think of HTLV with all my symptoms. Ill be getting my self tested for week 10 next week. The thing with this virus is that no one knows how is it transmitted sexually, few medical sites say jut by sexual contact one gets infected with this virus.So even a Latex condom wouldnt protect someone.
While i am sure i have got this, i pray to god it isint this virus. Ill pray for you all, hope god saves us all form this pain and waiting time.

Also what ever our result is please sign the petition and this is a serious disease and people have ignored this virus for past 40 years. I myself wasent aware if there was this kind of virus a month before. imagine doctors asking to take psychological help for people past window period for HIV. These people keep complaing about HIV symptoms even after months and years in many HIV forums.Time for all to come together and fight for this disease.

Does anyone knows what is the windo period for HTLV test. some forum say the incubation period is 30-90days for sero conversion.
Please share if you have any info.
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replied May 23rd, 2012
Experienced User
Depressedman your 3 months HIV test result is conclusive and it is Woohooo time for you as far as HIV is concerned. Please start looking for something else if you still worried about your symptoms.

Donefor i dont think HIV is not your problem, considering your week 6 test results were negative.
Also it is such fragile virus to catch.
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replied May 23rd, 2012
Extremely eHealthy
DepressedMan,

I agree that three month HIV antibody testing is conclusive, but the bad news is that HTLV testing is not conclusive. Blood banks use 51 days as the window for HTLV, but as Mr. Sadowsky of TheBody site wrote, some people never develop HTLV antibodies. I wish that a truly conclusive window existed for HTLV, but sadly it doesn't - I even tested negative for HTLV at 135 days post exposure (on both HTLV antibody and PCR tests). That's why HTLV is more dangerous than HIV, because (1) HTLV has no treatment, (2) HTLV can be spread via unprotected oral sex, and (3) HTLV testing is not accurate. So on those three points it has worse qualities than HIV.

AdviseMe,

I still thank God every day that I don't have HIV, but I also wouldn't wish HTLV on anyone, the pain and suffering are not the 'mild illness' that doctors make this out to be. Considering that entire families are suffering with HTLV, including children, something has to be done to make the authorities recognize HTLV. Your contributions to the HTLV petitions and HTLV forum are greatly appreciated.

Best wishes.
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replied May 23rd, 2012
Extremely eHealthy
While Dr. HHH and Dr. Bob and Teak all agree that three month HIV testing is conclusive, all of them refuse to discuss HTLV. And when Dr. Bob (who was HIV positive for 20 years and receiving the best medical care in the world) suddenly died last year (God bless his soul), he died from sepsis, which is a common death for native people with HTLV. I don't have a crystal ball, but between the number of doctors refusing to discuss HTLV, and the number of people dying of HTLV related causes, HTLV is a major problem that is not being dealt with at all.

Best wishes.
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replied May 23rd, 2012
Experienced User
Tonydewitt agree with u. Also saw gallos lecture about htlv virus for 15th intl htlv conference, why did gallo only discovered the virus, why didnt he find any brekthrough to htlv vaccine for 35 years.
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replied May 23rd, 2012
Experienced User
Tonydewitt agree with u. Also saw gallos lecture about htlv virus for 15th intl htlv conference, why did gallo only discovered the virus, why didnt he find any brekthrough to htlv vaccine for 35 years.
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replied May 23rd, 2012
Extremely eHealthy
AdviseMe,

Thanks for agreeing - Gallo did his job in discovering HTLV, and now today's medical researchers need to pick up the effort against the disease. A company called Virologix had a HTLV vaccine in the late 90's but it disappeared after being purchased by Access Pharmaceuticals - that's another online petition that I would appreciate all of you signing please.
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replied May 23rd, 2012
I hope that It's not but I think It's too soon to tell. I feel like I urine in and the tip of my penis hurts when I squeez it a Lil does anyone have this and what bout when you push up against where your groin glands are at does it make a sound mine do they would make noise all night when It first started
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replied May 23rd, 2012
Extremely eHealthy
You say potato...
Ever notice that two SEPARATE conferences take place for HIV and HTLV, even though they have similar names? One is called Conference on Retrovirology and Opportunistic Infections, and the other is called International Retrovirology Conference. Being the words "Retrovirology" and "Conference" are common between the two, can't they be held together and cooperatively help each other? Is this a case of segregation? HTLV sufferers to the back of the bus?
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replied May 23rd, 2012
Meant to say like I hold urine
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