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Certain HIV positive, but negative tests (Page 110)

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September 2nd, 2014
Experienced User
I'm seeing a Rheumatologist and a Neurologist in a few days. Hopefully they'll be able to help me out a lil bit.

Today is a bad day. I don't have many symptoms, but I can't see anything bright in my future. Suicide has been a constant thought throughout the day.

Going to the dentist in a couple of days. I'm having first symptoms of periodontitis. Idk if they will be able to do something about that. I'm so scared for my teeth, which I've always taken care of.
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replied September 4th, 2014
Experienced User
Hi and thanks for your help
10 months of my unprotected oral and vaginal exposure with a lady i have done more than 40 times elisa hiv1/2 negative. and at 10 months mark i did a CMIA antigen antibody hiv test negative, also had VDRL, TP negative. 9th month rna less than 10 means negative.
i have a white tognue and dry mouth and have red spots like acne on my chest and neck.
my questions:
1: am i negative after all these tests?
2: do i need more tests? or wait longer time?
thanks for your help
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replied September 2nd, 2014
Experienced User
I'm seeing a Rheumatologist and a Neurologist in a few days. Hopefully they'll be able to help me out a lil bit.

Today is a bad day. I don't have many symptoms, but I can't see anything bright in my future. Suicide has been a constant thought throughout the day.

Going to the dentist in a couple of days. I'm having first symptoms of periodontitis. Idk if they will be able to do something about that. I'm so scared for my teeth, which I've always taken care of.
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replied September 2nd, 2014
Extremely eHealthy
J,

I feel for you, I've had days where ending it seemed like a great idea, we've all been there. Please hang in there.

When you have your dental appointment, please have them check your x-rays to see if the roots of your teeth have shrunk, most of us have drifting teeth from this illness, recall that the disease is corrosive to bones, especially the roots of our teeth.

Best wishes.
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Users who thank TonyDewitt for this post: jammy88 

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replied September 3rd, 2014
Experienced User
TD,

thank you. I will. Took X-Rays 6 months ago, so if something abnormal comes up, they'll catch it immediately. Hope there's still time to manage the condition.

I'm seeing the Rheumatologist on Saturday. Looks like it's one of the best Rheumatological clinics in the country, so hopefully I'll be able to get some help.

Many thanks for your support.

J
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replied September 3rd, 2014
Extremely eHealthy
J,

You're very welcome for the support - I appreciate your appreciation Smile

Rheumatologists might be your best hope, since the disease causes inflammation, they might be able to detect that via an auto-nuclear test. Otherwise, you'll be given the "crazy" label that we've all received.

Best wishes.
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replied September 3rd, 2014
Experienced User
luckily, there's no possibility of me being marked as 'crazy', since my ID doctor has referred me to these Docs (Rheum + Neur). And she knows I'm not crazy. I was lucky to find the right person. Hopefully I'll be able to deal with this. I want my life back! I'm too young to give up.

thank you,

will keep you posted,
J
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replied September 4th, 2014
Experienced User
Hi and thanks for your help
10 months of my unprotected oral and vaginal exposure with a lady i have done more than 40 times elisa hiv1/2 negative. and at 10 months mark i did a CMIA antigen antibody hiv test negative, also had VDRL, TP negative. 9th month rna less than 10 means negative.
i have a white tognue and dry mouth and have red spots like acne on my chest and neck.
my questions:
1: am i negative after all these tests?
2: do i need more tests? or wait longer time?
thanks for your help
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replied September 6th, 2014
Experienced User
please check for this
**Streptococcus pyogenes
Staphylococcus aureus
**Bacillus anthracis
**Procalcitonin: blood test marker for generalized sepsis due to bacterial infection..
**Blood culture..
**Pseudomonas aeruginosa
**Mycobacterium
**Tuberculosis
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replied September 4th, 2014
Experienced User
Lately, on Italian HIV forums, I'm seeing a lot of people complaining about our symptoms and repeatedly testing negative for HIV.
That's the new epidemic. When will the medical industry recognize it?

Oh, and only yesterday I read about Bioniz and their research for HAM treatment. I spent one year at UC Irvine in California. I'm glad some people located in Irvine are trying to help us out Smile

How are you guys doing with symptoms?

take care,
J
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replied September 10th, 2014
Extremely eHealthy
Since I was infected, I had been corresponding with a guy named Alberto from Italy who was infected via a Columbian woman. He has serious HAM issues, but since the doctors told him that he was "crazy", he went on to marry, causing his wife and unborn child to be infected - they too have problems walking. I'm afraid that he's dead, because the last time I heard from him he had come down with Mycosis Fungiodes.

Best wishes.
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replied September 10th, 2014
Experienced User
I remember you told me about that. Very sad story. Finding a good Dr. you can totally trust is really really tough, especially in our case. Will keep you guys posted on how my 'journey' with this thing goes.
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replied September 4th, 2014
Experienced User
So I went to the dentist and my gums are slightly receding. I was visited by a periodontitis expert, who told me he's sure this is not periodontitis and my gum looks fine (pink colored). Anyways, I told the dentist about my health issues and asked to get X-Rays and dental impressions in a couple of weeks. Because I know something's wrong.
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replied September 4th, 2014
Experienced User
Hi and thanks for your help
10 months of my unprotected oral and vaginal exposure with a lady i have done more than 40 times elisa hiv1/2 negative. and at 10 months mark i did a CMIA antigen antibody hiv test negative, also had VDRL, TP negative. 9th month rna less than 10 means negative.
i have a white tognue and dry mouth and have red spots like acne on my chest and neck.
my questions:
1: am i negative after all these tests?
2: do i need more tests? or wait longer time?
thanks for your help
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replied September 5th, 2014
Experienced User
EMIG,

you're definitely HIV negative.
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Users who thank jammy88 for this post: EMIG 

replied September 5th, 2014
Experienced User
Thanks Jammy88 so what do you think? i have been reading all the 110 pages here. some people said it is H.poli other said it is HTLV. others don't know
i am worried about the subtypes of hiv1/2 CRFs and HIV1 C,E, O and N
do they show on Elisa test? that type of burning sensation from side to another, feeling it burns under skin of face , elbows, knees... oh my god. what is that...
i wish everyone gets better soon, we all do mistakes Allah forgives us. but admitting and regretting our mistakes will help too..
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replied September 6th, 2014
Experienced User
EMIG,

I'm not able to tell you what you have. I can only say you gotta keep pushing with doctors and try to understand what's going on. We are all in the same boat.
Today I was told by the Rheumatologist that I'm depressed and there's no way to have a diagnosis now. What the hell.. I wish he had my disease, so he could understand.

Btw , I'm not giving up and we'll keep checking with doctors. Sooner or later, we will all feel better. We have to.

Please keep praying God. He's the only one who can save us.

Best wishes.
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replied September 10th, 2014
Extremely eHealthy
Specifically have the X-rays checked for shrinkage in the roots of your teeth, remember than this disease attacks bone and can cause drifting teeth as a result.
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Users who thank TonyDewitt for this post: jammy88 

replied September 4th, 2014
Experienced User
please read carefully this page
TonyDewitt wrote:
Time for a symptoms list:

1. Hair loss.
2. Dry skin.
3. Occasional sores one various parts of the body - arms, torso, nose, etc.
4. Drifting teeth - also mentioned on TheBody site. Xrays have shown serious bone loss on teeth roots.
5. Female partners experiencing chest rash.
6. Eye floaters.
7. Muscle wasting in the shoulders, legs, hips, and rear.
8. Lower back pain.
9. Ear ringing.
10. Arthritic pain in the joints, fingers, knees.
11. Liver pain (currently resolved thank God).
12. Constipation.
13. Difficulty defecating, due to loss of nerve control.
14. Inconsistent stools, usually multi-colored, indicating candida infection.
15. Additional ear wax, sometimes blood.
16. Itchy skin everywhere.
17. Occasional candida infection in the folds of the skin (groin, nose, ears, knees) - currently resolved.
------------------------------------------ ---
https://sites.google.com/site/newhivaidsli keviruschina/
specially the teeth drifting it is HIV like virus

Best wishes.
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replied September 6th, 2014
Experienced User
Hi guys,

new interesting article:


Effects of nutrients on matrix metalloproteinases in human T-lymphotropic virus type 1 positive and negative malignant T-lymphocytes.

www(dot)ncbi(dot)nlm(dot)nih(dot)gov(slash )pubmed(slash)25189759


Abstract
Experimental and clinical studies have revealed the effectiveness of a specific nutrient synergy (SNS) mixture composed of ascorbic acid (AA), lysine, proline, arginine, epigallocatechin gallate (EGCG) and other micronutrients in targeting crucial physiological mechanisms involved in cancer progression and metastasis. HTLV-1 causes adult T-cell leukemia (ATL). The spread and metastases of ATL as well as other tumors has been associated with matrix metalloproteinases, especially the gelatinases MMP-2 and MMP-9. The objective of this study was to investigate whether SNS, AA and EGCG affects the gelatinolytic activity of MMP-2 and its transcriptional and translational levels in HTLV-1-positive and -negative malignant T-cells. The results indicated that SNS and EGCG caused a dose-dependent decline in the activity, transcription and translation of MMP-2 after treatment with SNS and EGCG, while AA was only able to inhibit the activity at maximum doses tested and to some extent, the protein expression levels of MMP-2, without affecting their transcriptional levels. The highest activity was noted in the case of SNS which is likely to be due to a synergistic effect of the different constituents in the formulation. These results point towards the potential integration of SNS in the anti-invasive treatment of ATL and related diseases.



PLEASE TRY ADDING THESE NUTRIENTS TO YOUR DIET AND SEE WHETHER YOU EXPERIENCE SOME BENEFITS !
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replied September 29th, 2014
Extremely eHealthy
I'm already taking some of these: Vitamin C (ascorbic acid), Lysine, Licorice Root, Pau D'arco, Olive leaf extract, Skullcap, etc. I do firmly believe these make a difference in my pain & suffering.
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Users who thank TonyDewitt for this post: jammy88 

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replied September 7th, 2014
Experienced User
hi guys,

since we're probably all dealing with a cancer virus here, I'd like you to consider eating anti-cancer foods. Here's a link:

www(dot)helpguide(dot)org(slash)life(slash )healthy_diet_cancer_prevention(dot)htm


Keep fighting guys.

ciao
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replied September 7th, 2014
Experienced User
Hi friends out there. today i started to develop red eyes and itchy ones, also some brown spots i have noticed, the strange feeling of burning around knees, jaw. oh Allah, what is going on? my knees, finger toes joints turning into brown... itchy ears!! oh my god! how long will it last like that??
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replied September 8th, 2014
Experienced User
EMIG,

I guess it's something viral. But I'm not a Doctor. Keep fighting and try to get a proper diagnosis for it.

All the best.

J
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replied September 8th, 2014
Experienced User
Thanks Jammy, besides my new red eye, I have developed itchy ears, itchy under skin. throat problem! i feel there is something inside... what about everyone here?
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replied September 8th, 2014
Experienced User
Personally, I'm experiencing serious issues with my legs. Other than that I'm getting better. Just tired.
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replied September 8th, 2014
Experienced User
sorry to hear about your legs issues, but have tried to test by pcr rna? or pcr dna?
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replied September 8th, 2014
Experienced User
well , I've been trying to get tested almost for everything so far. I'm seeing a Neurologist in a few days, and then I'm gonna get hospitalized. Hopefully they'll be able to find out what's wrong with me. But I don't know if there will ever be the possibility to feel better.

Do you think I'll go to Hell if I commit suicide? I think in a few years I'll end my life… if I have a debilitating illness with no treatment available. I'm a strong person, but this would be too much.
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replied September 8th, 2014
Experienced User
hey! friend! in Muslim religion Allah says ( ( ( 53 )
meaning (Say Iaebadi who have transgressed against themselves, do not despair of the mercy of God that God forgives all sins: for He is Oft-Forgiving, Most Merciful) it means no matter how big was our sin- we admit it we ask forgiveness and never lose hope in his forgiving.. please dont think about any bad idea.. yes we might lose our family wives, kids because of this illness. but if we suicide then! then it is not the end! then we find ourselves in hell! by this way 2 hells!! ok
have you tested for hiv1/2 by pcr?
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Users who thank EMIG for this post: jammy88 

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replied September 9th, 2014
Experienced User
Thanks EMIG. I'm 26 and have infected my parents with this ! I got this thing by sharing hookah pen for few seconds. I'm still not able to accept the thing I'm dealing with. We'll see what doctors say.

Hiv was negative at 15 weeks, more than conclusive , I was told.

but again when I get hospitalized I'll get tested again for everything.

thanks for your support.
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replied September 8th, 2014
Has anyone tried Pentosan Polysulfate?, I see there is a recent patent on it reducing HAM symptoms.
Might be interesting to see if it helps.
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Users who thank PennaBianca for this post: jammy88 

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replied September 9th, 2014
Experienced User
thanks for the information. PennaBianca, are you Italian ? I'm from Italy. ciao
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replied September 9th, 2014
Experienced User
Here's the article concerning PPS utilization for HAM/TSP. Many thanks PennaBianca! Hope somebody will be able to benefit from it.

http(dot)(double slash)link(dot)springer(dot)com(slash)arti cle(slash)10.1007(slash)s13365-014-0244-8# page-1


Again, it's Japanese researchers who deeply studied into it.
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replied September 9th, 2014
Experienced User
I keep wondering how could it be possible that no AntiRetroviral drug exists for HTLV. There are so many for HIV, and the two viruses are very similar indeed. It wouldn't be that hard to develop something functional… I'm asking everybody here to please pray God for research to be successful in the development of such a therapy. So that we do not end in a wheelchair.

Thank you and have a good rest of the week.

J.
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replied September 10th, 2014
Extremely eHealthy
J,

Like I said, Tenofovir (TDF), and it's new formulation (TAF) are supposedly very active against HTLV.

Best wishes.
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replied September 10th, 2014
Experienced User
Hi TD,
Glad to hear from you again. I'll try talking to my Dr. about that. Many thanks as usual
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replied September 9th, 2014
Experienced User
10 months with symptoms and negative hiv results
I am sorry to hear that! me too, i think i infected my wife with this too. who knows! till now i have tested ( oh you know something, i bought with 1000 USD more than 100 pieces of home hiv1/2 finger prick blood check ) and i made at the hospital more than 40 elisa hiv1/2 but just i say they are 12 for people not to think i am crazy. also i had HIV1+O/2 rapid test a small cassette put finger prick blood. all negative till 10 months mark. facing itchy skin. some parts of skin turning dark brown like knees, toes joints. till now my throat has a problem for 9 months!!. what is that?? could HIV be delayed to seroconvert? are we all infected by the HIV- LIKE virus! or HTLV?? i have the feeling of sleepy eyes, and weak body almost everyday! you need to test for blood pressure too!!
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replied September 9th, 2014
Experienced User
EMIG, please stop testing for Hiv ! You don't have Hiv (luckily). But… I think this thing is even worse, since no Dr. is able to diagnose it.

It's been 6 months since my accidental exposure with that infected blood. I'm trying it all and I'm not able to get well.

I wish you to find the cause of your problems… please try hanging in there and not giving up. I know it's not easy at all…. Sad
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replied September 9th, 2014
Experienced User
thanks friend! i wish i could help everyone including me!!
itchy ears is very hateful feeling.
this week end i will go to test ( by Allah willing ) for tuber in lungs, and other bacterial stuff.. please. do a bacterial culture ( blood test )..
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replied September 9th, 2014
Experienced User
Jesus Christ and Allah will help us, my friend. I'm sure they will. We are good people. We have admitted our mistakes. Somehow, we will be helped.

All the best, EMIG.
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replied September 10th, 2014
Experienced User
Hi guys, how ya doing today? My legs are definitely concerning me.

TonyDewitt, EMIG: how are you doing?

take care

J
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replied September 10th, 2014
Experienced User
CMV positive!
I have tested for CMV IGg result positive! oh my god!!
please, everyone test for CMV IGg, CMV IGm, EBV IGg, EBV IGm
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replied September 10th, 2014
Experienced User
Hi EMIG,

IgG indicate an OLD infection, not a new one. Thus, CMV is not your current concern (IgM are negative).

Almost 90% of World population have positive CMV IgG.

Best wishes my friend,

J
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replied September 10th, 2014
Experienced User
i did not check yet for IGm my friend. i will check by Allah willing tonight
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replied September 10th, 2014
Experienced User
oh ok. Let us know. I hope it's CMV then. It usually goes away on its own.
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replied September 10th, 2014
Experienced User
CMV is the main reason for bones pain cause it resides in bone marrow and i hope it is not reactivated. please friend. test for that too.
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replied September 10th, 2014
Experienced User
I did ! It was negative. Never got that virus.

I have bones pain, too. That really scares me.
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replied September 10th, 2014
Experienced User
have you checked for hiv1/2? did you do a pcr, friend?
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replied September 10th, 2014
Experienced User
not yet, i'm waiting to getting hospitalized (presumably in a couple of weeks) . They're gonna re-run all the tests and hopefully they'll find something. My main concerns are neurological disorders right now. Like I always 'feel' my legs, I'm pretty sure I have damaged nerves. This is really bad. Sad
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replied September 10th, 2014
Experienced User
Good luck friend. wish you the best
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replied September 10th, 2014
Experienced User
Thank you. Same to you, EMIG. Please keep us posted on your test results.
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replied September 10th, 2014
Experienced User
Leading Virologists Join Together to Tackle Viruses, Leukemia and Neurologic Disorders

JUNE 17, 2014: Baltimore, MD - The Global Virus Network (GVN) announced today the launch of a Task Force on HTLV, Human T-Lymphotropic Virus (HTLV), the world’s first known human retrovirus and only known leukemia-causing virus. Experts from 11 countries*, led by Dr. Robert Gallo, GVN co-founder and scientific director and director of the Institute of Human Virology (IHV) at the University of Maryland School of Medicine, Dr. Luc Willems (Research Director, National Fund for Scientific Research at University of Lige) and Dr. Hideki Hasegawa (Director, Department of Pathology, National Institute of Infectious Diseases, Japan) are leading the Task Force, which met for the first time last month.
“There are no effective vaccines against HTLV, no antiviral drugs to treat infections, and though there are diagnostic tests for the virus none yet can predict which infected person gets disease,” said Dr. Gallo who pioneered the field of human retrovirology with his groundbreaking discoveries of HTLV- 1 in 1980 and HTLV-2 in 1982. “This Task Force is critical as the global community works together to address a problem which in many countries is under-recognized and under-appreciated,” he continued.
More than 20 million people worldwide are infected with the virus, of which up to 10% will develop debilitating and sometimes deadly disease. HTLV causes an adult T-cell leukemia/ lymphoma (ATL), HTLV-associated myelopathy (HAM), spastic paraparesis, and other rare illnesses. Signs and symptoms of HTLV infection include motor and sensory changes in the extremities, inflammation in the spinal cord, a spastic gait in combination with weakness of the lower limbs, cognitive impairment, bladder dysfunction and bladder cancer. HTLV, similar to the human immunodeficiency virus (HIV), also co-discovered by Dr. Gallo as the cause of AIDS, is transmitted through sexual contact, from mother to child via breastfeeding, and through exposure to contaminated blood.
“This task force is to set the common goal among the scientists around the world to accelerate the research in order to overcome HTLV and related diseases,” said Dr. Hideki Hasegawa of Japan’s National Institute of Infectious Diseases.
The mission of the HTLV Task Force is to speed the pathway to discovery of drugs that will stop virus transmission or progression from infection to disease, in addition to educating the public about the nature of these viruses, the diseases they cause, and how to prevent their spread.
Dr. Sharon Hrynkow, President of GVN, concluded, “We are excited to be able to bring together leading experts to mobilize more research and more attention to HTLV by governments in order to help communities most affected by this insidious virus.”
*Members of the Task Force on HTLV are: Drs. William Hall (co-founder of GVN, Ireland); Eduardo Gotuzzo (Peru); Hua Cheng (USA), Viviana Simon (USA), Edward Murphy (USA), Anna Barbara Carneiro-Proietti (Brazil), Yutaka Tagaya (USA), Masao Matsuoka (Japan), Antoine Gessain (France), Umberto Bertazzoni (Italy), Toshiki Watanabe (Japan), Renaud Mahieux (France), Yoshihisa Tamano (Japan), Olivier Hermine (France), Vincenzo Ciminale (Italy), Charles Bangham (UK), Luigi Chieco-Bianchi (Italy), Roberto Accolla (Italy), G.P. Taylor (UK), Beatrice Macchi (Italy), Steve Jacobson (USA), Joseph Harford (USA), Ali Bazarbachi (Lebanon), Cal Macpherson (Grenada) and Raj Shah (CTIS, USA).
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replied September 10th, 2014
Extremely eHealthy
Loved this post, thanks! I copied it to the HTLVhelp face book page.
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replied September 11th, 2014
Experienced User
you're welcome ! Seeing some good news is always nice. We're not alone !!
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replied September 11th, 2014
Experienced User
Hi tony!
have you checked for CMV and EBV?
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replied September 18th, 2014
Extremely eHealthy
Yes, I had EBV 20 years ago, it's not EBV. I'm also CMV negative.
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replied September 10th, 2014
Experienced User
So apparently there's someone working hard on it. Let's pray for them to be fast and successful. I guess this is a bigger emergency than what was originally thought and claimed publicly.
Also, I'm glad many Italian researchers are in the Htlv task force. Hope they do a good job.
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Users who thank jammy88 for this post: EMIG 

replied September 13th, 2014
Experienced User
tested negative to CMV IgM, EBV. IgM... so what is it?? hidden HIV? now i am having more red spots and pimples on shoulders and face?!!! oh god..
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replied September 13th, 2014
Experienced User
Hi friend, I don't know. Try to get tested for everything you can. All the best.
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replied September 15th, 2014
Experienced User
i have so so bad headache that comes from the ears to the brain and sometimes from under jaw to the ears then to the brain! oh my god..
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replied September 18th, 2014
Experienced User
Hi guys,

just a quick update. I'm going to get checked at a major Neurological Clinic in Italy. It's a European excellence for many neurological diseases and I hope to get treated for my neurological symptoms at least…

…gotta fight this. I'm not giving up at all and want my life back. And I keep praying for that Htlv task force.

Cheers.
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replied September 18th, 2014
Extremely eHealthy
Have them test for auto-neural antibody (ANA). Good luck and thanks for all of your support.
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replied September 18th, 2014
Experienced User
my ID doctor tested me for ANA 3 or 4 months ago, but it was negative Sad

anyways, let's see what happens. thank you !
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replied September 19th, 2014
Experienced User
Today I was watching the news... a miracle happened in Medjugorje (Europe, in former Jugoslavia), where a woman with multiple sclerosis was healed by the Virgin Mary. The woman was confined in a wheelchair, then - while praying - she got suddenly able to walk again after seeing a marvelous light and feeling a warm sensation in her legs. Medjugorje is a place where many miracles happened.

These are the things that really give me hope, when the medical industry can't. Keep praying guys, keep praying. One day we will all get better. We have to.

Have a nice weekend and God bless you all,

ciao
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replied September 20th, 2014
Experienced User
dear friends, i am facing harder times these days, i am developing red lines around my neck! pepper feeling under skin!
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replied September 20th, 2014
Experienced User
EMIG,

have you tested for all STDs ?
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replied September 20th, 2014
Experienced User
i tested for TP sphilphis by vdrl and TP negative. tested for hCV negative. what other STD i need to check please let me know their names, thanks alot
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replied September 20th, 2014
Experienced User
try with Chlamydia and Mycoplasma genitalium, my friend.

All the best.
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