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Certain HIV positive, but negative tests (Page 108)

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August 1st, 2014
Experienced User
The chances are astronomical that ebola will threaten anyone living in a developed countries.
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replied August 3rd, 2014
I had used condom during sex in 2003. But i felt fever and night sweat after a weak. I got tested after one year. I got negative. I got one information that from 2003 all tge hiv test kit are changed and after that it shows negative result even it is positive. I got confused. For clearing doubt i took local hiv patient to get test to him. But he got positive. He is taking ART treatment. But i heard that testing kits do response positive to whom takes ART Treatment but not hiv positive person. Is it true
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replied August 3rd, 2014
I had used condom during sex in 2003. But i felt fever and night sweat after a weak. I got tested after one year. I got negative. I got one information that from 2003 all tge hiv test kit are changed and after that it shows negative result even it is positive. I got confused. For clearing doubt i took local hiv patient to get test to him. But he got positive. He is taking ART treatment. But i heard that testing kits do response positive to whom takes ART Treatment but not hiv positive person. Is it true
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replied August 3rd, 2014
I had used condom during sex in 2003. But i felt fever and night sweat after a weak. I got tested after one year. I got negative. I got one information that from 2003 all tge hiv test kit are changed and after that it shows negative result even it is positive. I got confused. For clearing doubt i took local hiv patient to get test to him. But he got positive. He is taking ART treatment. But i heard that testing kits do response positive to whom takes ART Treatment but not hiv positive person. Is it true
|
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replied August 3rd, 2014
I had used condom during sex in 2003. But i felt fever and night sweat after a weak. I got tested after one year. I got negative. I got one information that from 2003 all tge hiv test kit are changed and after that it shows negative result even it is positive. I got confused. For clearing doubt i took local hiv patient to get test to him. But he got positive. He is taking ART treatment. But i heard that testing kits do response positive to whom takes ART Treatment but not hiv positive person. Is it true
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replied August 3rd, 2014
Guys don't forget to look on here and post if you think you have a similar thing:

www(dot)unknownstd(dot)freeforums(dot)net.

We are getting a community of people together to try and figure these out.
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replied August 5th, 2014
Experienced User
Hello guys....just checking back in...So i'm at about 17 months with this...all test negative..HIV, HTLV etc...still having random pains...digestive issues are ok now..I have been taking a daily probiotic...my headaches are still severe but they come and go..i've been taking a migraine medicine daily and that seems to have reduced the number of headache days per month...I'm still have skin issues...dry skin, rash, stuff of that nature...I believe my immune system is compromised...even though my tests fall in the normal range, when I compare my WBC and Platelets to a time before I was infected by whatever this is, the numbers are now significantly lower...I am sure something is killing me slowly and causing all types of random issues but none of the test so far have given doctors reason to take me seriously...I do have more appointments coming up this month and hopefully I'll make some progress... I hope you all are doing better... Tony, Wyoming, Ustas and everyone else...
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replied August 10th, 2014
Extremely eHealthy
Thanks MGFCG
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replied August 6th, 2014
dear sir,
i am college going girl i had sex in the sense we smooched deeply but without cut on lips of each other
he putted his penis on my vagina but i was scared and he too so just touched not inserted at all .

now i am worried will it cause hiv or aids please help me out i am too worried

actually it was first time for both of us.
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replied August 6th, 2014
Experienced User
Hello everybody.

Does anybody having stool issues. My stool is looking black at times like there is lots of blood in it.

Just can't understand why none of us is giving a positive test for anything that is bothering us.
This is like punishment to us. Just pain and discomfort everyday.

All the best guys.
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replied August 11th, 2014
Extremely eHealthy
Ustas,

If I recall correctly, you & me were infected around the same time (Nov 7, 2011 for me). My stools are of concern as well, but for me it's light colored and borderline diarrhea. I read that light colored stools could mean a blockage of bile, which could lead to a life threatening situation.

That aside, I agree with you, pain & discomfort every day, I don't know how people are expected to live like this. In addition to my sister, my cousin and his wife have turned up with this. This is worth mentioning because none of us know the same people, meaning that this thing is so widespread that people I know are getting it from people I don't know. The world's screwed if it doesn't start dealing with this epidemic soon.

Best wishes.
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replied August 9th, 2014
Experienced User
Me too. From Italy
Hi guys. I'm writing from Italy. Thank God I found this forum. I knew it was Htlv, I just knew it. Idk what to do.

My story: March 7th, I got offered to try a hookah pen while being at a restaurant with coworkers and some of their friends. I don't smoke, however that night I was kinda having fun and thought "why not". So I tried for a few seconds. After 4-5 seconds some blood suddenly got into my mouth, and I felt attacked by an external pathogen (same noise made by retroviruses..if you look on youtube you can find some info). My tongue gets kinda paralyzed and I feel this little blood drop burning in my mouth.

Since then, I have never been the same person anymore. Tingling, ear ringing, fever, sore throat, swollen lymph nodes, trush, fatigue, urinary problems, backache, numbness in legs, difficulty walking, brain fog, short-term memory loss, et (i could go on with the list)

Am followed at one of the best Italian Infectious Diseases centers. Done almost all of the tests , so far, everything negative: Hiv, Cmv, Syphilis, Hep C, ANA, etc). Got a lumbar puncture 2 days ago with Lyme disease test. Also, waiting for Htlv results but Idk if they will ever come back positive. I know this is what I got. Exposure is ridiculous and every doctor told me you can't get anything serious from a hookah pen. Most of them laughed and told me I need psycho therapist. Finally I found a great ID doctor, willing to help me, one of the best in the country. She told me: "idk whats wrong with you, but i know you have something". Also, she told me I don't have htlv, cuz she has never seen this test come back positive. So maybe thats the problem: the test doesn't work well. We will see.

What's worse, my dad accidentally brushed his teeth with my toothbrush a couple of weeks after I got infected ( at the time i wasn't even thinking of such a serious infection, since the exposure was absurd..), and now both him and my mother are showing some of the symptoms. Although they keep repeating they have nothing. I'm wasted. Idk what we will do. May God bless us. I feel like the Devil has attacked me and my family.

Thanks for reading this.
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replied August 9th, 2014
Experienced User
Also, forgot to tell.. I'm 26, and never had a risky life. No risky behaviors concerning sex, no drugs. NEVER.

And yes, have wasting (lost 10% of my weight) and several other things mentioned here. Really, I'm devastated. This is really not possible. May God show me the way.
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replied August 10th, 2014
Experienced User
Hello Jammy, welcome to this forum.
First I must tell you that I am sorry that you are going through your illness.
I hope your new Doctor will find the problem. All of us here are still waiting for a diagnosis.

Don't give up at all. I am fighting this illness for 3 years now. If I were the only one having the symptoms then I would say it's my mind playing tricks on me, but my partner is going through the same thing. She complains of the same symptoms daily.

Stay strong.
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Users who thank Ustas for this post: jammy88 

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replied August 10th, 2014
Experienced User
Thank you, Ustas.

So are you basically saying that you got no diagnosis yet? Wow. Sad How do you cope with it? How do you fight the disease? Has it affected your life consistently, or are you still able to work, etc? I'm asking cuz right now I feel really sick and had to quit my job since my brain wasn't working well at all (while I used to be really quick and intuitive in most of the things I did at my job).

It's really embarrassing. Also, if I ever get diagnosed with whatever it is, Idk if I will be given some proper treatment. I'll try to do my best. Although I should have just said 'no thanks, I don't smoke' that night. I've always lived a certain way, and one little mistake was enough to ruin it all.


Best wishes to you and the other users in here.
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replied August 10th, 2014
Experienced User
Also, I had Positive Evoked Potentials for lower limbs; and lower limbs hyper-reflexia when visited by a Neurologist (but this was 3 months ago, I wasn't even thinking of Htlv at the time). Of course I'm still able to walk and everything. That's why I want a diagnosis ASAP, in order to try to halt it, or at least make it slower..
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replied August 10th, 2014
Experienced User
Tried a sauna today at home after reading bout hyperthermia treatment for viruses and cancers. Gotta say it worked. I could barely move my neck today, and now I can move it much better and feel less ill. Gonna try pursuing this 'therapy' meantime. I was already told by my ID Dr (who at the beginning thought I had lymphoma or some sort of lymphoproliferative cancer..so yeah, Htlv is not that far from that) that if all last exams were negative, next month I will be hospitalized and re-tested for everything (cancer, autoimmunity, .).

Lets hope for the best. Please pray for me and my family, as I will be praying for you all. For real, only God can help us.
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Users who thank jammy88 for this post: TonyDewitt 

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replied August 11th, 2014
Experienced User
Hi everybody. Have you guys thought about the possibility of going to Brazil or Japan and get checked out / tested for HTLV over there? They might have better doctors for what concerns this disease, thus providing adequate treatment (at least corticosteroids, methotrexate, etc.. which seem to work pretty well for HAM/TSP).
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replied August 12th, 2014
Experienced User
So..quick update: Htlv negative, Lyme disease negative. CFS analysis : still waiting for the results


Gonna be hospitalized in September.
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replied August 13th, 2014
Experienced User
Yes Jammy, I am able to work still. Doesn't affect me so badly but the discomfort now and then is just a reminder of what is inside me. Leg pain and dark (almost black) stool are the two obvious symptoms I have now.
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Users who thank Ustas for this post: jammy88 

replied August 14th, 2014
Experienced User
Ustas,

me too. the same symptoms as you.
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replied August 14th, 2014
Don't know what this could be!!
Hi all,

I had unprotected oral sex and protected intercourse with a sex worker exactly 30 days ago. I did a HIV 4th generation test on 21st day and came back negative. I did all other STD tests and came back negative. I have a feeling is this mystery aid-like virus going round in China.

My symptoms goes on and off and they are as follows:

I have a fever, cough, red eyes, dry lips and skin, headache, burning sensation on my penis, a pressue up on my bum, twitching on my muscles, stiff groin and lower back, itchy rash on my leg, diahorrea, pressure in my ears, mouth ulcer, fatigue and hard to concentrate.

Please help if anyone of you guys have any idea what it could be.

Thanks!
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replied August 14th, 2014
Experienced User
Same as you. Same symptoms. As , more or less, the all of us. Still waiting for a diagnosis.

Try to get checked by a neurologist and get your evoked potentials checked. They might show some abnormalities as for what concerns lower limbs.
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replied August 14th, 2014
Thanks J, I'm not too sure how long I can last, I mean I cannot focus at work. I'm sure all you guys are going through something similar and I'm just repeating everything that has already been said. Have you got your evoked potentials checked J?
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Users who thank Hopeful456 for this post: jammy88 

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replied August 14th, 2014
Experienced User
Hi Hopeful,

yes I did and my lower limbs showed many issues. Basically they found an altered Central Nervous System. I'm 26 and always been very careful with respect to health. You can imagine the way I feel.

Best wishes, man. Please keep us posted and help us keep this topic 'alive'.

Thank you.

J
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replied August 14th, 2014
Extremely eHealthy
Where's the itch on your leg? Near your knee?
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replied August 14th, 2014
Experienced User
My legs are actually not itchy, they are more like stiff or something like that. Behind my knee I feel like the leg is 'blocking'. Idk how to explain.. not a good sensation, tho.
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replied August 14th, 2014
Experienced User
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