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Certain HIV positive, but negative tests (Page 102)

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November 4th, 2013
Extremely eHealthy
Time for a symptoms list:

1. Hair loss.
2. Dry skin.
3. Occasional sores one various parts of the body - arms, torso, nose, etc.
4. Drifting teeth - also mentioned on TheBody site. Xrays have shown serious bone loss on teeth roots.
5. Female partners experiencing chest rash.
6. Eye floaters.
7. Muscle wasting in the shoulders, legs, hips, and rear.
8. Lower back pain.
9. Ear ringing.
10. Arthritic pain in the joints, fingers, knees.
11. Liver pain (currently resolved thank God).
12. Constipation.
13. Difficulty defecating, due to loss of nerve control.
14. Inconsistent stools, usually multi-colored, indicating candida infection.
15. Additional ear wax, sometimes blood.
16. Itchy skin everywhere.
17. Occasional candida infection in the folds of the skin (groin, nose, ears, knees) - currently resolved.

Best wishes.
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replied November 5th, 2013
Experienced User
Hello Guys. I did not kill myself nor the girl after all. I took amosxillin and B12 for like 2 weeks and felt so much better. am not fully okay but i know with time i will be. how did i get to do this. a Dr. gave my son amoxillin and he got better. also i did wbc and was told my monocytes was 0. meaning that microphages was also low so bacteria was having a field day in y system. am no doctor but i know i had to give my system some help and that si what i did. another blood test show that my monocytes are coming up 1%. and all the flu like sysmptoms have stopped. still having loose stool and eye issuse though but am giving them time.

The lady that i got this from is very healthy or pretends to be very healthy and has said she is willing to be exermined by health practisioners as she has no STDs.
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replied November 5th, 2013
@TOny
Are you gooing to take a combo antibody/pcr test on november 7? If results are negative, do you still believe that you have HTLV?
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replied November 5th, 2013
Extremely eHealthy
I don't have the money to keep testing, it's very expensive for me, I still owe money from the previous testing. I believe I have HTLV regardless, since the number of articles that describe undetectable HTLV (even with PCR testing) is considerable.

Best wishes.
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replied November 6th, 2013
Experienced User
hello
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replied November 5th, 2013
Experienced User
Today I got a new symptom. I went to the toilet, wiped... felt an insanely painful sensation in/on/at my anus on what particular spot. Checked toilet paper and there was blood on it. Than looked in the mirror and saw (NSFW, hairy butt (not butthole)):

http://i43.[image removed]/iwnpep.png
http://oi41.[image removed]/24zj5eo.jpg


I also noticed a grey area on my anus and a sort of bump which is painful. It doesn't look like an anal wart. Anyway I found several possible causes of the painful bump. One of which is a bad bloodflow in that area. Given the fact that my butt often gets numb when just sitting on a chair + broken bloodvessels on my body + the spots on my butt, i think this all leads to a bad bloodflow in my body causes by whatever i may have.
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replied November 6th, 2013
Extremely eHealthy
I have the same problems since getting sick - not being able to sit for long, and then sudden anal pain, even when I am sleeping. I think it's caused by the general wasting syndrome of this illness.

Best wishes.
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replied November 6th, 2013
Experienced User
Thanks. I don't get anal pain when I am just sitting though. Yeah could be indeed.
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replied November 6th, 2013
Hi guys,

Just wanted to leave some words as support here.

The internet isn't kind to us, searching for medical problems always show the most popular search results and because everyone is worried about HIV or cancer they're usually the first thing to pop up.

The symptoms of HIV are so general that they can be connected to a million other viruses, bacteria and hormonal imbalances. People with symptoms should consider getting a full medical check-up.

Mono - Epstein barr for example never leaves the body and can play havoc with your immune system for years. 90 percent of all humans gets this virus so if you haven't had it chances are a lot more real that you've got mono instead of HIV. My body never really recovered from it and whenever I put myself under too much stress or get ill the symptoms come back (swollen glands, sore throat, fever, fatigue) but even something as minor as an infected tooth can play havoc with your immune system.

Another thing I would consider is checking your hormone levels (especially your thyroid gland). A lot of the things like feeling feverish, weight loss, muscle soreness can be related to your thyroid. The thyroid is also really susceptible to stress and worry so being in this vicious loop makes things worse.

Blood sugar is another thing (if you get a dry mouth, vision problems, infections in the genital area, poor wound healing, oral problems it could be because of diabetes or pre diabetes).

One more thing I'd like to add is that you can't underestimate the power of the mind and the power of stress. Stress can weaken your body and immune system and even trigger conditions like CVS. Stress triggered anxiety and panic attacks for me (after a period of serious work and personal stress) and honestly I think that any symptom can be related to it to a certain stage.
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replied November 6th, 2013
Extremely eHealthy
DB,

Thanks for your words of support. I got mono when I was 29, and you're right, it was devastatingly horrible for a year and a half. That's a long time to be sick, and even then it took ten doctors to diagnose me! Tomorrow will be my two year anniversary of getting infected with what I believe to be HTLV. Of course the doctors don't want to deal with that, the same way they didn't want to deal with mono when I was sick with it.

HTLV does affect the thyriod, and sure enough one of my girlfriends who has lost weight has a thyroid problem. HTLV also affect the salivary gland, causing dry mouth, along with vision problems, poor wound healing, infections in the groin, and oral problems (especially candidia infections).

While I appreciate your "stress" diagnosis, you should also realize that doctors use the "stress" diagnosis when they can't diagnose a patient. These are the same doctors who refuse to test for HTLV, so it's easy to see that the circle is complete - no testing for HTLV, no diagnosis for HTLV, no treatment for HTLV. In other words, people with HTLV are ignored by the medical system, and that is unacceptable.

Best wishes.
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replied November 6th, 2013
Thanks Tony,

I totally agree with your point as I have faced similar situations where doctors simply tell me that all my ailments are due to stress. I understand that your situation must be really deteriorating. I honestly can't understand why a doctor wouldn't test your for something if you ask for it (if it's as simple as getting some blood - urine and sending it to a lab).

There are obviously people here with proper medical conditions but a lot of stories come over as anxiety related.
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replied November 6th, 2013
Extremely eHealthy
You're welcome DB,

The situation is worse than you described - doctors won't even mention nor suggest HTLV testing. In other words, patients are never told about HTLV, nor given the option of testing for it. The fact that HTLV testing is NOT part of the standard STD panel speaks proves the cover up by the medical industry.

Best wishes.
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replied November 6th, 2013
@DB
Hi, I totally agree with everything you say!
I have only so far tested positive for EBV and CMV (latent now)This has made havoc in my body, but I am thankful I have tested negativ for every STD including HIV and HTLV up til 17months! I probably will never be as healthy as before this dreadful encounter, but I am thankful I did not catch any of these killer viruses. And yes, stress will not help! I am now focusing on an immunilogical panel, which hopefully will put me on my path to recovery.....

take care.....
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replied November 7th, 2013
Hi all,
problem is that instead of proper HTLV testing doctors says that it caused by EBV. EBV have almost everyone. So they will tell you that there is no need to treat...

Tony, will you test PCR in near feature?

Take care
Tomas
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replied November 7th, 2013
Experienced User
I tested positive for EBV, but it was from a long time ago and it wasn't active. My DR told me my symptoms aren't caused by that. I went to an alternative DR. once and he told me that something caused my EBV to rise again. I believe my normal DR and so I don't think this is caused by EBV. Btw 90% of adults have had EBV in their lives. Also, my EBV didn't cause any symptoms when it was active. I didn't even know I had had it before testing!
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replied November 7th, 2013
Extremely eHealthy
Same with me for both EBV and Lyme disease.
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replied November 7th, 2013
Experienced User
You have lyme disease?
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replied November 7th, 2013
Extremely eHealthy
Yes, 25 years ago I lived in the forest.
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replied November 7th, 2013
Experienced User
I am sorry to hear that.

Don't you think this can be the cause of your symptoms? Lyme is a nasty, weird, disease and can cause all sort of symptoms. A friend of mine has lyme disease, he was likely born with it since his mother had it too. His mother even died from it. Anyway, he follows the Gerson therapy which is helping him a LOT, and I really mean a lot. So you might want to take a look at that, assuming you have lyme disease.

If it is not sure if you have or don't have lyme disease, you should read about the tests they use in Germany to test for lyme. Their tests seem to be a lot better than anywhere else.
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replied November 7th, 2013
Extremely eHealthy
Tomas,

Excellent point - why doctors won't even mention HTLV is a total mystery to me. As far as me testing with PCR, again it's an issue of cost, I haven't even been able to pay for my past testing.

Best wishes.
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replied November 8th, 2013
Tony.
Yes, therefore I am sharing your opinions that it is very difficult to confirm HTLV positivity now. You proved us and yourself that many companies are entering into HTLV testing fields. There two reasons for that:
1) they are still looking for prober reliable test (first wins)
2) a lot of infected people marked as CFS or EBV

Tomas
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replied November 11th, 2013
Extremely eHealthy
Thank you Tomas, it's very validating to have someone finally see what's going on.
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replied November 12th, 2013
Tony,
there is one patient in Greece who was cured. Question is how doctors know that this patient was completely cured? They needs to measure viral load in blood directly. May we should order this test...
Tomas
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replied November 6th, 2013
Experienced User
I am saving up money to visit mayo clinic rochester and asked this guy to help me out:

, but so far no reply from him. Perhas you guys can post there as well if you want to visit a private clinic, of course it's begging but I didn't care if I begged or not.

Who knows how much this visit will cost (could easily cost 10k-20k). I think mayo clinic is definitely worth a shot. But unfortunately it is really expensive and I am not insured for foreign hospital visits.

Also this might be interesting:
http://rarediseases.info.nih.gov/research/ pages/27/undiagnosed-diseases-program

I suggest we all send an email to the provided adress by that link when you are in need of a diagnosis.
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replied November 7th, 2013
Experienced User
Link was deleted, but was a link from Dan Bilzarian on instagram where he was saying he would give away at least 100k by christmas for people in need of help.
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replied November 11th, 2013
Experienced User
This is certianly HTLV.

All my symptoms are back in full force.
and even more

1 - Big pimples on face.
2 - rumbling stomarch
3 - hard and soft stools
4 - worst sorethroat i have ever had in my life
4 - eye floaters
6 - Son has cough with wife also
7 - thign pain
8 - white tongue
9 - Red palms
Eye floaters
10 - Brain fog and concentartion span issues.


This thing is so contegious. it was just a few seconds of intentional exposure from a devilish lady.

am so confused i dont know what to do. How did this lady get this infection.
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replied November 11th, 2013
Experienced User
how long have u been on amoxicillin?

i really think u have tyhoid fever, please check the "carrier stage" treatment

If it is really htlv the amoxicillin treatment u had before wont help u at all
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replied November 11th, 2013
Experienced User
please also check what would happen if we suffered from chronic gallbladder inflamation
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replied November 11th, 2013
Extremely eHealthy
JP,

HTLV has been around for 100,000 years, which is a THOUSAND times longer than HIV has been around. Instead of asking how did this woman get infected, you should be asking why isn't everyone infected with HIV. Everyone has sex, therefore everyone should be infected. It's a miracle that the human race has not become extinct via sex.

Best wishes.
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replied November 12th, 2013
Tony,
there is one patient in Greece who was cured. Question is how doctors know that this patient was completely cured? They needs to measure viral load in blood directly. May we should order this test...
Tomas
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replied November 13th, 2013
Extremely eHealthy
Tomas,

Yes, cured, as evidenced by lack of symptoms. The article states that the patient had a detectable HTLV by both antibody & PCR tests, where as we've taken those tests and can't test positive. I am more than willing to endure 8 months of Azacytidine in order to end the horrible pain I am suffering with.

Best wishes.
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replied November 15th, 2013
Extremely eHealthy
PS: It should also be noted that the patient had NO risk factors for HTLV - a married, monogamous, non-drug using, 58 year old male. This is important because it shows that HTLV can be transmitted in ways other than the traditional pathways of sex and IV drug use. Same goes for Derrick on the HTLVhelp face book page - monogamously married with kids, and the Caribbean house cleaner as well - also monogamously married with kids. Both Derrick and the Carribean woman worked with floors, so perhaps floors are a vector for HTLV via mice feces?
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replied November 15th, 2013
Experienced User
Wow this website was failing me. I'm glad to see that it's running the way it should be.
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replied November 17th, 2013
Experienced User
Anyone done any recent testing?
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replied November 18th, 2013
Experienced User
Anyone heard from scared?
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replied November 18th, 2013
Extremely eHealthy
No.
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replied November 18th, 2013
Experienced User
it looks less and less people go on this website to talk about the virus.
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replied November 18th, 2013
Extremely eHealthy
Feng,

We can only talk about the problem for so long - unless we start talking about solutions and / or attempts at solutions, we won't have much to say. Is anyone taking any of the following:

1. Prosultiamine? (300mg daily).
2. The new version of Tenofovir (tenofovir alafenamide fumarate)? (10mg daily).
3. Azacytidine? (the oral version - not sure what the oral daily dosage is).

I'm sure the answer to all of these questions is no. I'm giving all of you the road map to feeling better and perhaps being cured. I'm sure that any of these drugs (or combinations of them) would help us fight this disease and possibly cure us. Start networking and talking to people in the medical business, especially all of you in Asia, where Prosultiamine is made.

If anyone of us is resourceful enough to get these treatments, please let the rest of the group know. Otherwise we're just spinning our wheels talking about our lousy symptoms, and that gets old fast, especially now that I'm past the two year mark.

Best wishes.
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replied November 20th, 2013
Experienced User
Hi TonyDewitt

I don't suggest you use Prosultiaminem, becuase it have side effect. and according to the doctor suggestion, you don't use it more than 30mg daily. I'm in Asia, can buy these.
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replied November 20th, 2013
Extremely eHealthy
Feng,

Then you should read the medical article where patients were given 300mg daily & experienced symptom relief. Since it's a derivative of vitamin B-1, there's no concern for overdose. Curcumin also has no set overdose limit, some patients take as much as 6,000mg. Currently I'm taking 2,000mg and have no overdose situation.

Best wishes.
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replied November 18th, 2013
Experienced User
My eyes have gone really red...
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replied November 19th, 2013
I am here guys.
Whoknows1: Chlamydia can be in eyes too. But HTLV causes also inflammation of the eyes.
Tomas
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replied November 19th, 2013
Experienced User
I've tested negtive for clamydia...
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replied November 20th, 2013
Experienced User
Hello, everyone - I thought I had an appointment with an Infectious Disease dr., after reading my history and test results - they declined to see me.
I recently picked up a normal cold - and amazingly, all my other symptoms went away (5 days or so) - Besides the cold - I actually felt better. Basically my immune system found something more useful to fight for a few days.

Cold is now gone, symptoms are back. Testicle, chest, eye pain + headaches and tiredness.

I am exploring a few more ideas these days - retesting for everything and adding on to the list. We should trust the symptoms and work with as many dr's as it takes.

I believe we will find what is causing this issue and we will find a solution.

I appreciate this site - and your updates. It keeps me grounded.
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replied November 20th, 2013
Extremely eHealthy
WS,

Thanks for checking in, it's always good to hear from you. Part of me is surprised that they declined to see you, the other part is not - the medical industry is going from denying this thing exists to all out fetal position. Now that my sister got this, I realize that this is a much bigger epidemic than I originally thought. I also had a headache for three days that was unbelievably bad - also seeing the same in one of my girlfriends. For several of my girlfriends it has messed up their period schedule. I've counted 56 people infected that I know, not including anyone on this forum.

Best wishes.
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replied November 21st, 2013
Experienced User
Hi TD,
In our country, as I know, I have counted more than 500 people infected, and all of them discuss it in QQ.
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replied November 21st, 2013
Experienced User
I was just browsing google and came across STLV. Is his the same as htlv or is it completely different? Anyone heard of this?
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replied November 21st, 2013
Extremely eHealthy
Same thing, we got STLV from simians and our human version of it is HTLV.
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replied November 21st, 2013
Experienced User
Thanks for that tony.. Appreciate it
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replied November 21st, 2013
Extremely eHealthy
WK,

You're welcome - I wish I could do more. This f-in thing is killing me.

Best wishes.
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replied November 23rd, 2013
Experienced User
Hi everyone! Hope you are all feeling better.
I went to my doctor to discuss retesting and he said that he won't be testing me for anything more. Reason been, all my previous testing for major illnesses came back negative and I'm just wasting money.
I think that's happen when they are tired of seeing us in their offices and knowing they are just not capable of solving our problems.
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replied November 23rd, 2013
Extremely eHealthy
Ustas,

That's exactly what happened to me 6 months ago when I went to a hematologist - no testing, no nothing, and a $200 bill. He kept saying that the serology for HTLV is very good, like he was brainwashed. Since we know the testing for HTLV is not good, we're the ones who are labeled insane because like you said, they are incapable of dealing with this disease.

Best wishes.
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replied November 23rd, 2013
Experienced User
Hi TD,

until now, I don't think it is a htlv. we don't discuss the test is good or not, assume it is not perfect, as I know, htlv should not let people so pain. most of them should have no symptom. but now I'm very very pain, I don't use language to describe the pain. it almost let me kill myself.
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replied November 23rd, 2013
Experienced User
You don't think it's htlv or you do think it is htlv?
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replied November 26th, 2013
Experienced User
it should not be htlv.
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replied November 24th, 2013
Extremely eHealthy
Feng,

It affects everyone differently - some people I know have no pain, but I am in pain on a regular basis. Like you, I do not want to live in pain, nor die from this.

Best wishes.
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replied November 26th, 2013
Experienced User
Tony did you test positive for HTLV in 2010? i saw a post from you saying you tested positive.
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replied November 26th, 2013
Experienced User
No one on here has tested positive for hiv or htlv...
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replied November 27th, 2013
Experienced User
yes, no one has tested positive for hiv or htlv now. so we should not suspect it is htlv or hiv.
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replied November 27th, 2013
Experienced User
My twitches have stopped however my ears ring and have sore eyes and feel very fatigue. Still have white tongue an phlegm.. Also have a few red dots on my shoulders. Back neck and shoulder still sore and I have the worst sleep. Legs feel weak. I have put on weight
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replied November 29th, 2013
Extremely eHealthy
WK,

Sounds like the same symptoms I've been having. The weight gain phase will last for at least a year, then taper off.

Best wishes.
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replied November 30th, 2013
Experienced User
now I am in weight gain phase
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replied November 30th, 2013
Experienced User
I too have gained weight, but i beleive it's because of the stress i been going through, i just eat junk food and don't exercise. I haven't been able emotionally.
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replied December 1st, 2013
Experienced User
Yeh I have been eating a lot of junk good. Most weight is gained around my stomach..
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replied December 2nd, 2013
Extremely eHealthy
The weight gain is a result of the virus interfering with the mitochondrial energy processing. For the first year, I was so bloated I looked like I was the walking dead. And ironically the weight gain is accompanied by muscle wasting.

Best wishes.
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replied November 29th, 2013
Experienced User
Tony do you think we could have got this earlier and not know it? I suspect it's from jan this year. And I started feeling sick in march...
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replied December 2nd, 2013
Experienced User
I feel the whole body is bite by insect. who have the same symptoms about me?
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replied December 2nd, 2013
Extremely eHealthy
I started feeling sick right away, so I don't know if anyone has had a delayed reaction to the virus.

Best wishes.
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replied December 4th, 2013
Experienced User
how do you feeling sick right away? any symptoms?
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replied December 4th, 2013
Experienced User
If htlv has been around for thousands of years why doesn't everyone have it specially if it is transmitted by breastfeeding???
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replied December 4th, 2013
Extremely eHealthy
It's been around in native tribes on all continents for thousands of years, including North & South America, Australia, Africa, and Asia (particularly Japan). The ability of HTLV to stay in native groups but not spread entirely could be explained by monogamy, meaning only a fixed portion of a native group will have spread the virus through monogamous sex & breastfeeding. Since natural immunity to HTLV exists, it is possible for some attempts at transmission to fail in those genetically disposed to immunity from the virus. In modern times, non-native people continue to contract the virus through sexual contact with people from native areas. Places where this is a serious problem include Japan, Australia, Brazil, the Caribbean, Northern Africa, etc - anywhere that native populations come in contact with modern populations. At this point the virus is worldwide, affecting people in every country of the world. Even in the paper describing the cure of the patient in Greece remarked that HTLV has "extremely low prevalence" in Greece; however, the fact that a 58 year old, monogamous, non-drug using Greek man can contract HTLV proves that it is a serious health threat. Same goes for Derrick from the HTLV help face book page. Same goes for the house cleaner in the Caribbean. NONE of these people should have ever gotten HTLV, yet they did, regardless of their monogamy, and "clean" life. If these types of people can get HTLV, then anyone can. We need to wrap our heads around this concept if we are going to prevent the day when "everyone" has HTLV.

Best wishes.
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replied December 4th, 2013
Experienced User
It's estimated that there are 20 million people in the world with HTLV1 and another 10 million with htlv2, 30 million total. That is about the same number of people infected as HIV. Worldwide.
HTLV2 being an American retrovirus be it South America or North America. None the less htlv2 is most prevelant in the American continents.

Keeping in mind what you wrote above with what i stated.
I could still wonder why, is ghonorea or chlamidya a lot more common than HTLV.
What's the difference?
Both have been exposed in to the same populations about the same time.
I do thank you tony for that explanation i have thought about it and it is one of the most reasonable possibilities.
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replied December 5th, 2013
Extremely eHealthy
DW,

To answer your question, I would say that bacterial infections such as Chlamydia & Gonorrhea are more common because they can survive outside the human body. Viruses such as HIV, HTLV, Ebola, etc need a vector to survive and be transmitted into humans. Considering that these viruses can only survive inside of a host makes one wonder why they haven't burned themselves out yet, or even yet, how many viruses may have indeed burned out through the course of human history.

Best wishes.
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replied December 6th, 2013
Experienced User
Tony,
That whole post is correct in my opinion. Thanks to you I'm starting to wonder for the first time, how many viruses have burned out as you have stated.
Excellent question. I never heard anyone ask or state that before.
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replied December 8th, 2013
Experienced User
Hi All friends

my mother recently was examined by hospital to get m3 leukemia can you have some suggestion about this
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replied December 9th, 2013
Experienced User
Feng,
I never heard of m3 leukemia,
Does your mother have leukemia?
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replied December 9th, 2013
Experienced User
yes, my mother now can't eat anything ,and the body is very very weak. someone can give some suggestion?
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replied December 9th, 2013
Experienced User
Leukemia is cancer of the blood cells. It starts in the bone marrow, the soft tissue inside most bones. Bone marrow is where blood cells are made.

When you are healthy, your bone marrow makes:

White blood cells, which help your body fight infection.
Red blood cells, which carry oxygen to all parts of your body.
Platelets, which help your blood clot.
When you have leukemia, the bone marrow starts to make a lot of abnormal white blood cells, called leukemia cells. They don't do the work of normal white blood cells, they grow faster than normal cells, and they don't stop growing when they should.

Over time, leukemia cells can crowd out the normal blood cells. This can lead to serious problems such as anemia, bleeding, and infections. Leukemia cells can also spread to the lymph nodes or other organs and cause swelling or pain.

There are several different types of leukemia. In general, leukemia is grouped by how fast it gets worse and what kind of white blood cell it affects.

It may be acute or chronic. Acute leukemia gets worse very fast and may make you feel sick right away. Chronic leukemia gets worse slowly and may not cause symptoms for years.
It may be lymphocytic or myelogenous. Lymphocytic (or lymphoblastic) leukemia affects white blood cells called lymphocytes. Myelogenous leukemia affects white blood cells called myelocytes.
The four main types of leukemia are:

Acute lymphoblastic leukemia, or ALL.
Acute myelogenous leukemia, or AML.
Chronic lymphocytic leukemia, or CLL.
Chronic myelogenous leukemia, or CML.
In adults, chronic lymphocytic leukemia (CLL) and acute myelogenous leukemia (AML) are the most common leukemias. In children, the most common leukemia is acute lymphoblastic leukemia (ALL). Childhood leukemias also include acute myelogenous leukemia (AML) and other myeloid leukemias, such as chronic myelogenous leukemia (CML) and juvenile myelomonocytic leukemia (JMML).

There are less common leukemias, such as hairy cell leukemia, Adult T-cell Leukemia and cutaneous T-cell leukemia. There are also subtypes of leukemia, such as acute promyelocytic leukemia (a subtype of AML).
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