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Certain HIV positive, but negative tests (Page 99)

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September 27th, 2013
Experienced User
Hi everyone,

I hope everything turns out well for all you guys and you find closure soon. I won't be back on here anymore this has completely consumed my life I wish I could find this woman and kill her. I've ruined my life, my wife's and my kids. How STUPID could I have been knowing the responsibilities I had. I hate these drs. and feel like killing them as well. I'm so angry and depressed and not going on like this anymore. I used go be so strong but now I know I'm slowly dying and I'm not living like this anymore. I hope ALL of you have better outcomes than I did. Good bye guys...
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replied September 28th, 2013
Experienced User
Hang in there, we are all suffering here.
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replied October 3rd, 2013
Experienced User
Don't leave man. We all feel the way you do. Just hang in there for now and lets ride out together man....
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replied September 28th, 2013
Experienced User
I tried posting a document where you could fill in your contact email, time of symptoms, risks, extra details, etc. So we could have the information here organized and in case of a forum shut down could still keep in touch with each other. However my post has been deleted because of the personal (email) information...
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replied September 28th, 2013
Experienced User
yes, you can send to furture1987 at yahoo dot com, I will collect them. thanks a lot.
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replied October 1st, 2013
Extremely eHealthy
M,

I was also worried about the forum shutting down, so I paid for the HTLVhelp web site with my own money. Also the Phoenix Rising forum is a great place to go, no one get judgmental or nasty like here.

Best wishes.
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replied September 28th, 2013
Experienced User
Hi All,

I'm from China, I have the same symptoms with you, and in our country, more people have the issue. but the country and doctor say it is caused by anxiety. I know it is not caused by it and now I'm despair. in order to keep information if the forum is closed, please send email to me, thanks a lot.email: furture1987 "at" yahoo "dot" com
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replied September 28th, 2013
Experienced User
I still belive this is HIV since all my symptoms is similar to it for almost 6 years. My email hassanmat8 at gmail dot com . I really need to know who else can prove this is HIV because i need HIV medecation for me and my family.
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replied September 29th, 2013
Experienced User
how can we do next, just wait to death?
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replied September 29th, 2013
Experienced User
how can we do next, just wait to death?
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replied September 29th, 2013
Experienced User
Scared, before you try and meet your doom. How much worse have you gotten? And what is wrong with your children, are they sick too?
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replied September 29th, 2013
Experienced User
Scared, did u hve ur children before the exposure?
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replied September 29th, 2013
Experienced User
My eyes are hurting me now and pain over my body.
HIV does not show symptoms for that long.

Guys, we need to take a Proactive approach if we really want to find the cause of out problems.
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replied October 2nd, 2013
Experienced User
Hi Ustas,

what Proactive approach we can take now? can you have some ideas?
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replied September 30th, 2013
Experienced User
What can we do now there no doctors can help us. We will die slowly one by one and my family will watching me die in pain.

Yesterday I go to gym and do this body pump workout but my leg is really hearts and I really fill dizzy and fainted at the middle of the session. This is not normal for me before as iam really healthy and full stamina in the gym and now iam loosing my muscle gain slowly.

Really need help from any STD doctors I belive this is HIV.
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replied September 30th, 2013
Experienced User
no significant increase in ESR - meaning that not a systemic infection, that implies, even though with whole body systems, the virus/ bacteria probably not in bloodstream.

Which is the place in your body that allow up to billions of bacterias/ fungi living without vigorous immune response? your large intestine.
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replied September 30th, 2013
Experienced User
no significant increase in ESR - meaning that not a systemic infection, that implies, even though with whole body systems, the virus/ bacteria probably not in bloodstream.

Which is the place in your body that allow up to billions of bacterias/ fungi living without vigorous immune response? your large intestine.
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replied September 30th, 2013
Experienced User
What I personally also experience is that I feel a lot of stinging pain all around my body (on the surface, these stings are on the surface of my skin or a little bit below it. The duration of these stings often vary between 1 second and 10 seconds ), when I later check out the spot where it stinged I often see a small red dot.

The sizes of these red dots vary, the 5 largest now are around 2mm, the smallest are probably unseen by the human eye. Furthermore often the colour of my skin is lost around these spots, the largest white spot is around 7mm.

Please note that I did not have any red dots before all these started nor the stinging. Of course I might have overseen the smallest red dots, but I am 100% sure that I never had 2mm red dots on my body before.

Besides that, which sounds that something might also be wrong with my blood, my limbs get really numb really fast. Whenever I sit on a chair nowadays my whole butt is numb after like 10 minutes.

I have shown my dr. the largest red dots and he said that these dots are broken bloodvessels. To me this sounds that something is wrong with my blood. However all the bloodtest I have taken so far do not show any weird counts or something like that, other than the slightly increased ESR in the beginning.
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replied September 30th, 2013
Experienced User
How much was your ESR reading MSAM?
Mine was 20 when it should have been 15.
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replied October 1st, 2013
Extremely eHealthy
Ustas,

Mine was 23. We're elevated, just not significantly.

Best wishes.
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replied October 1st, 2013
Extremely eHealthy
Just a few points:

1. This is NOT HIV.

2. Everyone who openly wrote about either killing themselves or someone else should realize that the forum is going to be shut down as a result. In this day and age you just can't go on the web talking about killing without it being taken seriously. I've tried to talk all of you out of doing anything related to killing because that does NOT further our cause or help us get treatment and recognition for this disease.

3. Scared, I've tried to call you a few times, please give me a call so we can talk.

4. EVERYONE - prosultiamine has been deemed SAFE and CHEAP and EFFECTIVE against this disease. PLEASE consider trying a one month supply to see if it helps you.

Best wishes.
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replied October 1st, 2013
Experienced User
How do u get it?

I agree this is not hiv..
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replied October 1st, 2013
Experienced User
Tony, are you over 50 as yet? If you are 50 and over, then your ESR should be 20 but if you haven't yet reach 50, then you should be measuring 15.

RE: Killing someone or self.
I believe this site has prevented that from happening because this is the only medium that most of us have to talk to someone about the problems we faced. None of us should really think about killing themselves because you might just throw away your chance of being helped. I did send Scared a private message asking not to commit suicide. I wish i could hear from him just be certain he has not gone through on that decision.

I am grateful for this site and you guys because you are the only one that listen to me. We need to be more helpful to each other rather than tearing down each other.

Another day on earth is another chance to give God thanks and to encourage and help others.
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replied October 1st, 2013
Extremely eHealthy
Ustas,

No, Im not over 50 yet.

As much as I think it helped for us to talk about our feelings of desperation, suicide, and murder, anyone else reading this would have all of us put away. So please refrain from writing that you want to kill people.

And yes Ustas, absolutely we have to help instead of tear down each other, perfectly said my friend.

Guys, please give me an answer on the prosultiamine - it's the best we can do right now. If it makes all of us feel better than we know that we are making progress against this disease.

Best wishes.
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replied October 1st, 2013
Experienced User
Hopefully scared gets the help he needs, god bless!!
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replied October 1st, 2013
Experienced User
Thid has gott to be a BACTERIAL INFECTION. MY FRIEND WHO HAD SEX WITH THE SAME PROSTITUTE AND ALSO GOT MY 1ST SYMPTOMS WAS TREATED WITH "AMOXICILLIN TREATMENT" PLEASE PEOPLE GIVE IT A SHOT STOP TORTURING YOURSELFS WITH FALSE HTVL CRAP.

AMOXICILLIN IS IN THE SAME MEDICINE FAMILY AS PENICILLIN PLEASE GO TELL YOUR DOC A GOOD REASON WHY U NEED IT. EVEN IF U HAVE TO SAY YOUR PARTNER WAS TREATED FOR IT AND NOW YOU NEED TO BE TREATED. IT WILL WORK.

IM MAKING MY APPT TODAY.
I WONT BE HERE FOR A WHILE. I FEEL BETTER OFF THIS SITE.
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replied October 3rd, 2013
Experienced User
Don't leave man. Come back and tell us if your treatment was successful!
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replied October 1st, 2013
Experienced User
Depressedman, please provide us with an update after your treatment with the medicine amoxicillin. Thank you in advance and I hope this will work for you. What did the dr. told your friend?
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replied October 1st, 2013
Experienced User
i got my priscription!!! I WILL BE BACK IN 15 DAYS TO PROVIDE THE OUTCOME..

AMOXCILLIN
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replied October 1st, 2013
Experienced User
I really hope it works! Let us all know how u go.. Just a quick question.. What are ur symptoms?
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replied October 1st, 2013
Experienced User
2 WEEKS TINGLING PENIS AND RED SPOTS ON PENIS HEAD. WEEK 5 TINGLING AND BURNING HANDS AND FEET. AFTER THAT NECK PAIN , BLURRY VISION, SORE JOINTS AND MUSCLES, WEIGHT GAIN, ITCHY SKIN, SENSITIVE LYMPH NODES, THROAT ISSUES, BURNING FEELIN IN PENIS AT TIMES, STOMACH CRAMPS, STOOL ISSUES, DEPRESSION,

I REALLY HOPE THIS WORKS FOR ME LIKE IT DID FOR MY FRIEND. HE ONLY EXPERIENCED THE TINGLEY AND BURNING PENIS , RED SPOTS ON PENIS HEAD, FLU AND WEAKNESS ABD TIREDNESS. THATS ALL HE SHARED WITH ME

WE SLEPT WITH THE SAME PROSTITUTE THE SAME NITE, ME FIRST THEN HIM.

HES NORMAL NOW. HAS BEEN WITH NEW GIRLS AND NO HEALTH ISSUES. I HOPE I CAN HAVE THE SAME LUCK.. TALK TO YOU GUYS SOON.
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replied October 1st, 2013
Experienced User
Thank for the reply. All the best and I really hope it goes well for u. Give us all some hope.
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replied October 2nd, 2013
Experienced User
Lack of evidence for HTLV tax-rex DNA in motor neurone disease
Andrews, WD; Al-Chalabi, A; Garson, JA; (1997) Lack of evidence for HTLV tax-rex DNA in motor neurone disease. J NEUROL SCI , 153 (1) 86 - 90.

Full text not available from this repository.

Abstract
It has recently been claimed (Ferrante et al., 1995, HTLV tax-rex DNA and antibodies in idiopathic amyotrophic lateral sclerosis. J. Neurol. Sci. 129 (Suppl.) 140-144) that human T-lymphotropic virus (HTLV) tax-rex sequences are detectable in the peripheral blood mononuclear cells (PBMCs) of 40% of patients with motor neurone disease (MND). In an attempt to confirm this we employed a highly sensitive 'nested' polymerase chain reaction (PCR) assay, capable of detecting single molecules of HTLV proviral DNA, to look for tax-rex sequences in the PBMCs of 43 patients with MND. We were unable to detect the presence of HTLV tax-rex in any of 43 MND patients tested, using three different PCR primer sets under both high and low stringency conditions. Using the same DNA samples we were able to detect the presence of the single-copy pyruvate dehydrogenase gene, thus demonstrating that the extracted DNA was indeed amplifiable by PCR. To further exclude the possibility that the extracted DNA samples contained unrecognised inhibitory factors we conducted spiking experiments with trace amounts (approximately 10 copies) of HTLV proviral DNA. Spiked samples yielded PCR products of the expected size. We are therefore unable to confirm the presence of HTLV tax-rex sequences in this disease. (C) 1997 Elsevier Science B.V.
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replied October 2nd, 2013
Extremely eHealthy
Background
Human T lymphotropic virus type I (HTLV-I)-associated myelopathy/tropical spastic paraparesis (HAM/TSP) is a chronic myelopathy characterized by motor dysfunction of the lower extremities and urinary disturbance. Immunomodulatory treatments are the main strategy for HAM/TSP, but several issues are associated with long-term treatment. We conducted a clinical trial with prosultiamine (which has apoptotic activity against HTLV-I-infected cells) as a novel therapy in HAM/TSP patients.

Methods
We enrolled 24 HAM/TSP patients in this open-label clinical trial. Prosultiamine (300 mg, orally) was administered once daily for 12 weeks. We monitored changes in the motor function of the lower extremities and urinary function as well as copy numbers of the HTLV-I provirus in peripheral blood mononuclear cells (PBMCs).

Results
Improvement in the motor function of the lower extremities based on a reduction in spasticity (for example, decrease in time required for walking and descending a flight of stairs) was observed. In an urodynamic study (UDS), bladder capacity and detrusor pressure and then maximum flow rate increased significantly. Detrusor overactivity and detrusor-sphincter dyssynergia improved in 68.8% and 45.5% of patients observed at pretreatment, respectively. Improvement in UDS corresponded with improvements in the score of nocturia-quality of life questionnaire. HTLV-I proviral copy numbers in PBMCs decreased significantly (approximately 15.4%) compared with pretreatment levels.

Conclusions
These data suggest that prosultiamine can safely improve motor dysfunction of the lower extremities and urinary disturbance as well as reduce HTLV-I provirus levels in peripheral blood. It therefore has potential as a new therapeutic tool for HAM/TSP patients.
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