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Certain HIV positive, but negative tests (Page 98)

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September 23rd, 2013
Experienced User
The infection disease control doctor said "you don't have HIV, that's for sure. You might have something that hasn't been discovered yet but you don't have HIV"

When will it be discovered. After we die?
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replied September 23rd, 2013
Extremely eHealthy
No, it won't be "discovered" after you die, millions of people have died from HTLV already. Doctors are already aware of this disease, and my infectious doctor said right to my face that the medical protocol for this disease is to do NOTHING and watch the patient die. Oh yeah, you'll get some pain medication, because they don't want you to suffer too much on your way to death, but again NO treatment for the disease, they just stare at you until you're dead.

Best wishes.
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replied September 23rd, 2013
Experienced User
Why? Because there's nothing they can do for us?
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replied September 23rd, 2013
Extremely eHealthy
Because NO ONE CARES about this disease - there's thirty drugs for HIV and NOTHING for HTLV.
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replied September 23rd, 2013
Experienced User
How do they know the same drugs won't work for HTLV?
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replied September 23rd, 2013
Extremely eHealthy
They tested those drugs, and they don't work. Why aren't there drugs to treat HTLV? Because no one cares about HTLV - we are totally screwed if we don't make our own path through this. We're not going to live happily ever after with this, we're going to be crippled or dead.
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replied September 23rd, 2013
Experienced User
Hi TonyDewitt,

Are you sure it is htlv?
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replied September 23rd, 2013
Extremely eHealthy
Yes.
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replied September 23rd, 2013
Experienced User
Tony
Can you provide a link to a site that I can to help myself evaluate if it's what I have? I really appreciate it.
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replied September 23rd, 2013
Extremely eHealthy
TRW,

My understanding of HTLV is from years of reading literature covering research studies of HTLV, there's no one place that deals with HTLV. People like AdviseMe and OverStressed have done way more research than me, and I am humbled by the amount of impressive information that they have marshalled. I understand that this is frustrating for someone who comes along asking what this is, how it's dealt with, etc. We are very much alone on this and the only way that it's going to be understood completely is by our own doing.

Best wishes.
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replied September 23rd, 2013
Experienced User
Thanks Tony
Do you think I have HTLV? I can post my symptoms again if it helps. I tested neg for HIV and my CD4 is normal but I have many HIV symptoms
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replied September 23rd, 2013
Experienced User
I aquired this death sentence 9 years ago
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replied September 23rd, 2013
Experienced User
Hi testsRwrong,

do you think it is a htlv? Can you have some ideas?
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replied September 23rd, 2013
Experienced User
Feng. I don't think it's HTLV. I just googled and found very little in common with my symptoms. I think I have something much closer to HIV. My symptoms match too closely to be anything else, unfortunately.

I'm not so sure about Tony Dewitt. I'm getting suspicious about his sincerity...just a feeling I have.
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replied September 24th, 2013
Experienced User
Ken,
You don't have hiv, your cd4 count is 1200 at 9 years after your exposure. And your hiv tests always come back negative. What ever is causing your symptoms is not HIV.
What was your exposure?
Did you have unprotected vaginal sex?
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replied September 23rd, 2013
Experienced User
Hi TonyDewitt,

why do you think it is a htlv? Can you have some proof? can you share me your proof?
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replied September 23rd, 2013
Experienced User
Hi TonyDewitt,

why do you think it is a htlv? Can you have some proof? can you share me your proof?
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replied September 24th, 2013
Experienced User
Hi guys,

HTLV I/II ImmunoComb II assay came back today (15 months since exposure) - neg

Everything is NEG so far. What a crappy virus...
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replied September 24th, 2013
Experienced User
JB,
What else have you tested for?
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replied September 24th, 2013
Experienced User
D,

It was the most advanced package of STD Panel including HBV/EBV/.. I don't have the file right now.
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replied September 24th, 2013
Experienced User
That's great news jb but like us all we don't know what it is. I was tested for htlv at 3 months and 6 months and was also neg and have been neg for everything else..
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replied September 24th, 2013
Experienced User
I told Tony, this is not htlv, its a bacteria.

It can be passed through even hand shake an saliva. sanitation takes care of it but once its in your system.

lets answer this questions

1) Did you shave the pubic hair before the exposure?
2) did you shower after the exposure?
3) wash your hands and privates after
4) must of the sex must have hppened outside loctions unknown to you. not your house. so likely a skin related issue.

lets think back.
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replied September 24th, 2013
Experienced User
Hi johnpeters,

I agree with you. firstly let me tell your question:
1)I don't shave in the public
2)I have an protected oral sex about 10 min, then do a wash, later go to bed. except this, I do nothing.

most of people in our country is got by sex. I can collect their information about this if you meed.
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replied September 24th, 2013
Experienced User
Hi JB,

you test hltv? htlv test is negative? can we now suppose it is not hiv or htlv?
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replied September 24th, 2013
Experienced User
TR,

I think this is a retrovirus. HTLV relates to the family of viruses and is (imho) able to produce ARS as HIV does. That's why this "thing" partly mimics HIV symptoms. Why not. And as the virus is a retrovirus it also suppresses our immune systems but not the way it HIV does.
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replied September 24th, 2013
Experienced User
Hi jasonbourne,

1)if it suppresses our immune systems, why CD4 count is ok?
2)suppose it is a retrovirus, what can we do next? wait to death? can we do something to save ourselves? because the symptoms let me so bad.
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replied September 24th, 2013
Extremely eHealthy
Feng,

1. HTLV does NOT suppress CD4 counts, if anything it INCREASES them. This is what causes HTLV T-cell cancer in the long run, the overproduction of T-cells. This is why our CD4 count is okay or as my doctor put it, "superman t-cells", since the idiot doesn't realize that TOO MANY t-cells are as bad as TOO FEW.

2. Suppose it is HTLV, what do we do next? Find a doctor or researcher who is willing to inject a rat with your blood & then test the rat for HTLV. That's what they did in Israel and it worked.

3. Suppose that you are still denying that it is HTLV, but you want to go on the treatment I listed anyway - find a doctor who is willing to prescribe Prosultiamine, TAF, or Azacytidine.

I hope that this answers all of your questions.

Best wishes.
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replied September 24th, 2013
Extremely eHealthy
I receive this message today:

===================================

Re: Re: HTLV...
I don't know your motive but I am pretty sure you aren't sick. What is your motive?

===================================

I am NOT replying to any messages that address me in such a manner as to say that I am not sick. Anyone who addresses me this way can expect to NEVER hear from me ever again.

Best wishes.
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replied September 24th, 2013
Experienced User
I want to share a point here.

If you do not have ESR/ CRP elevated, you do not have active infection.

So we are not really having systemic infection.

What causes our symptoms very likely comes from pathogens hide in gut/ stomach/ digestive tract. Toxins produced in the digestive tract is being absorbed into blood and causes immune suppression and other symptoms.

I really recommend everyone take high doses of raw garlic and probiotic. This is the only way to treat this now. Not only frank get relieved by this, I already talked to more than ten China aids like disease sufferer who claimed themselves "fully recovered" doing so.
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replied September 24th, 2013
Experienced User
I want to share a point here.

If you do not have ESR/ CRP elevated, you do not have active infection.

So we are not really having systemic infection.

What causes our symptoms very likely comes from pathogens hide in gut/ stomach/ digestive tract. Toxins produced in the digestive tract is being absorbed into blood and causes immune suppression and other symptoms.

I really recommend everyone take high doses of raw garlic and probiotic. This is the only way to treat this now. Not only frank get relieved by this, I already talked to more than ten China aids like disease sufferer who claimed themselves "fully recovered" doing so.

When your stool gets normal again, you will be symptom free.
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replied September 24th, 2013
Extremely eHealthy
Hope,

Your suggestion to take probiotics and garlic is a good suggestion, I am also doing so. And yes, my sedimentation rate is slightly elevated.

This disease is very elusive because it infects the cells that are supposed to be defending our bodies from infection, resulting in immune suppression of the idiopathic type, meaning that our immune cells act stupid, resulting in our poor healths. This is how so many HTLV patients die from simple ordinary sepsis (e.g. Doctor Bob, native tribes, several research patients, etc).

Yes, we have an abundance of T-cells, but enough of them are stupid clones, zombies, or whatever term you'd like to use. A test these clones (called a clonality test) would reveal how many of these we have.

How would you feel if a doctor told you that your T-cell count was good but also that a significant number of your T-cells were of this clonal, pre-cancerous type? That would certainly prove that the infection was systemic and active.

Best wishes.
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replied September 24th, 2013
Experienced User
Tony. What medical school?
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replied September 24th, 2013
Experienced User
Tony Dewitt
If anyone goes back and reads Tony Dewitts messages from the beginning, tell me if it doesn't start sounding phony. I don't know what he is up to but it's not honesty. I doubt he is sick at all. Would be nice to hear from him what he's actually trying to achieve..
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replied September 24th, 2013
Extremely eHealthy
TRW,

Besides the insulting private message that you sent me, you've now insulted me twice in this forum. Frankly I don't know who you are and why you think that you can address me this way, but people come here for answers and help, not for your asking me what medical school I went to nor alleging that I am not sick and phony. You owe me an apology at the very least.

Everyone else,

This is why people who I've met from this forum (Scared, AdviseMe, WS, JB) don't post here anymore, because of this abuse. Those people I mentioned have gone far to figure out what's wrong with us, and aren't posting here because of abusive backlash like this. So who suffers? The people who came here for answers and help and understanding. In the past I've mentioned that other forums exist where abusive posts like the ones above are not allowed, and I have no problem going somewhere else.

Goodbye.
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replied September 24th, 2013
Experienced User
Hi Tony,

I think our t cells are suppressed, not saying the number, but its functions.

I would rather think this is a problem caused from the toxins released from the pathogen in gut, rather than the pathogen itself infected the immune cells.

In china, three institute did cultures on bacteria for a batch of patients. 307 institute in beijing also used some virus DNA recognition method to look for virus.

As for bacteria, a few pathogen has been identified but not sure about if it is the root cause of our symptoms.

As for virus, nothing has been found (they look for new virus)

Columbia university found nothing as for virus as well. They take some blood sample drawn last year from china to test it. Nothing has been found. They are looking for possibilities to do one more blood drawn, (which i mentioned earlier), but due to some reasons it couldnt be commenced. If there are any news, i will let you know.

However, based on these evidence, we are unlikely infected by HTLV, or even virus.
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replied September 24th, 2013
Experienced User
Everyone,
Just because someone is infected with something doesn't mean everyone on the forum has the same thing.
I remember someone here mentioned they were diagnosed with scabies but nobody else had that.
Some of us could be experiencing symptoms for the same reason but not everyone here has the same thing, and i dare to say some might be experiencing symptoms due to non-sexualy related reasons.

However we should be investigating every possible sexually transmitted agent.
JB, whoknows, and Hope, are good examples to follow in my opinion.
JB has been tested for many things his list is long, so is whoknows'.
Hope is trying to be diagnosed by a research group at the university of Columbia, which i truly beleive is about as good as it gets in attempting to be diagnosed.

A diagnosis is the first step we need to reach in order to accomplish our goals, which are to be, treated, cured, or assured.
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replied September 24th, 2013
Extremely eHealthy
DW,

Is there a contact information for the research group at Columbia University? Can someone provide that please?

Best wishes.
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replied September 24th, 2013
Experienced User
Tony,
IsThereAnyHope is more familiar with what the research group of the university is about, i suggest you ask him.
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replied September 24th, 2013
Extremely eHealthy
That's why I asked can someone provide that please?
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replied September 24th, 2013
Experienced User
Guys,

What I had one week post exposure looked exactly like ARS. I was 100% sure regarding HIV. From that point I'm still thinking this is a virus.

Just checked ESR/ CRP data - both are very good. But how???
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replied September 24th, 2013
Experienced User
A few question to you.

1. How do you "100% sure" related to HIV? how this percentage comes?

2. ARS symptoms - this is nothing specific at all. Most of the infections in acute phase give those symptoms. Please consider read up more about other sicknesses
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replied September 25th, 2013
Experienced User
Well, I started to read HIV+ people's stories on forums, had tonsillitis, conjunctivitis (eye doctor said it's usually happens when immune system suppressed), had pain in my liver. Swollen lymph nodes. It was something like Mononucleosis disease (I think very close) which is one of the conditions HIV can mimic during ARS. But later I realized that the ARS can not last for 3 months and so, probably, it's not HIV (my 12 weeks HIV neg came back).
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replied September 24th, 2013
Extremely eHealthy
JB,

It's absolutely a virus, but it's not a virus that behaves like other viruses. Other viruses destroy cells, but this virus uses inflammation pathways to sequester itself in cells. That's why we aren't seeing cell counts drop, nor any sort of sedimentation response. Instead, it's ruining our cells by cloning our cells with copies that contain more virus. It kills our immune system from the inside out, not the traditional way a pathogen attacks. This is why all of the testing has failed us - the testing is relying on an antibody, WB, or PCR response, and there's just not enough of the virus in our serum to make those tests detectable. Traditional medicine relies on a virus invoking a massive and detectable immune response, but this virus is simply up regulating our immune systems with cells that don't do much to the point where we can't control typical fungal infections, bacterial infections, or even other viral infections.

Of course this is going to look exactly like ARS, HIV, AIDS - our immune systems are malfunctioning just the same as if we were infected with HIV. The wasting looks just like AIDS, people are stating to notice how much my body and face have changed and are asking questions. I remember the first six months of this were pure hell - I had fungal infections on my groin just like the Brazilian patients do, my feet were fungally infected as well. Uveitis and Aveolitis made a brief appearance as well - I saw the letter "C" in my left eye, and my chest hurt so bad I thought I was hit by a car. Don't let anyone tell you that this disease can't kill you, it has claims so many lives, just look at the end of life patients who have "sepsis" written on their death certificates.

We are lucky that someone in Israel was clever enough to inject a rat with a patient's blood to see that the rat developed HTLV antibodies, otherwise that patient would have just been simply another death by sepsis. We are lucky that the Japanese are using the sixty year old drug vitamin deficiency drug Prosultiamine to improve the well being of HTLV patients, and we are lucky that Gilead is reformulating TDF into TAF so that is better tolerated and more effective, and we are lucky that a patient in Greece was cured of HTLV with Azacytidine. Twenty years ago none of this had happened, and if we were infected back then we would be really screwed because we'd have no options other than suffering and dying. Now we have options, and it's up to you to exercise them.

Best wishes.
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replied September 24th, 2013
Experienced User
Tony,
The patient from Greece also had a bone marrow transplant which might have played a bigger role in his "cure", this would not be the first time a bone marrow transplant "cures" someone with htlv.
Azacytidine has the potential to be fatal, in some cases Azacytidine could worsen the situation of an htlv infection.
It's extremely novel of someone to move forward in terms of treatments of retroviral infections, but please be diligent when assuming the authority to advise people to take strong medical drugs that could be toxic and or fatal.
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replied September 25th, 2013
Experienced User
Tony,

Just look at the fresh study regarding HTLV and inflammation. Good one.

http://www.plospathogens.org/article/info% 3Adoi%2F10.1371%2Fjournal.ppat.1003630
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replied September 24th, 2013
Experienced User
JB, thanks.
This is a crest post because before you mentioned ESR/CRP, i never heard of it.
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replied September 24th, 2013
WHAT'S ALL THIS HLTV? I NEVER HEARD OF IT. I GOOGLE AND LOOKS LIKE LUKEMIA OR SOMETHING. I'M WORRY BOUT HIV. NEG TESTS BUT STILL WORRY CAUSE DON'T FEEL GOOD.
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replied September 24th, 2013
Experienced User
Joe,
Only about 5% of the world population knows what htlv is.
What was your risk exposure, when and where?
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replied September 24th, 2013
Extremely eHealthy
Five percent? More like .004 percent.
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replied September 24th, 2013
WHO CARE WHO KNOWS. IS IT REAL
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replied September 24th, 2013
MULTIPLE EXPLOSURES. LAST ONE WAS A YEAR AGO. UNPROTECTED EVERY TIME. SOMETIME JUST ORAL. MOST TIME. ONLY ONCE VAGINAL. NO HOOMOZEXUTL
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replied September 24th, 2013
Experienced User
Joe, what makes you beleive she infected you with something?
And yes HTLV is real.
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replied September 24th, 2013
I AM ALWAYS TIRED. I HAVFE BLURED VISOIN. I HAVE DIFFICUTLTY CONCENTRATING. OTHERS TOO. IT'S SOME FORM OF HIV I'M SURE BUT TEST NEGEATIV SO NO TREATMENT FOR ME
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replied September 24th, 2013
Experienced User
The tests for hiv are considered extremely reliable, you should feel 100% sure that it's not any form of hiv.
You could take a cd4 count, if it's too low or too high you are looking at a problem but if it's normal that will be further proof that you don't have hiv.
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replied September 24th, 2013
I DONT BELIEVE THAT. WHEN YOU HAVE SYMPTOMS YOU KNOW. IT'S BS. IM SORY. CD4 IS NORMAL. SO WHAT DO I DO?
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replied September 24th, 2013
Experienced User
Well get tested for everything possible, have you tested for HTLV, HepB, EBV, and or HIV RNA, you got to figure out what is causing your symptoms, and beleive me your hiv rna is going to be negative because a normal cd4 and a negative hiv antibody test at one year after exposure means you don't have hiv, and that is not BS, none the less, have you done an hiv rna test?
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replied September 24th, 2013
MULTIPLE EXPLOSURES. LAST ONE WAS A YEAR AGO. UNPROTECTED EVERY TIME. SOMETIME JUST ORAL. MOST TIME. ONLY ONCE VAGINAL. NO HOOMOZEXUTL
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replied September 24th, 2013
Experienced User
My ESR was elevated, however, the doctor said that anything like a hit on the leg, any wound or so, can cause the elevation. I couldn't recall having any blow or wound, so i guess i have a case to worry.
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replied September 24th, 2013
Experienced User
Ustas if i were you i would research a little about the test before jumping in to any conclusions, i also had a cd8 count that came back a little too high for comfort but it could mean anything.
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replied September 25th, 2013
Experienced User
when we talk about elevated ESR/ CRP for SYSTEMIC INFECTION, it is not a Mildly elevated ESR/ CRP. It increases many folds. I am pointing out this here because I wanna tell most of us here do not have systemic infection.

We can keep on denying the fact that HIV test was all negative, HTLV tests are all negative, etc.

We can also deny all tests from these institutes. We might still have our own believes even these results are repeatly telling you that this is not a virus/ not systemic inflammation. But i can tell that I tried out different approaches for treating retrovirus, many different anti virals/ interferons/ hyperthermia, you name it. It is just a waste of time. I spent money and time do all these. I must say please try to be more subjective regarding this. No point ignoring all evidences & facts...
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replied September 25th, 2013
Extremely eHealthy
Hope,

I like your approach, and yes, you stuck your neck out on the hyperthermia, and I really appreciate that - literally without you we wouldn't have know whether that worked or not. And I know the costs of Azacytidine and TAF are high, but I believe that prosultiamine is relatively cheap since the research article on it describes it as "safe, cheap". If you could try that and see if that makes you feel better, then that would be huge progress.

Thanks.
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replied September 25th, 2013
Experienced User
since this thing is affecting the stool, it must be in the guts or stomarch. if you guys stop hearing from me know i have killed myself. but for now am still alive.

some foods make the symptoms less. what pains me is my son and the pain his going through. saw the lady that gae me this and she was walking majestically down the street. death walking on legs.

I will try the garlic stuff. guess it will only treat the candida. I just hate myself so much now. i hate myself. how this this lady get this? my son will not be normal is that what this means. the maliasain guy hassan hope his still alive?
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replied September 25th, 2013
Experienced User
JP,

I don't have any problem with stools. I'm curious that not all of us seems have all the same symptoms.
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replied September 25th, 2013
Experienced User
what are your symptoms and story.

this is mine

this is what happened.

Shave the night before
started protected attempt at insertion.
then removed condom.
unprotected oral
then she took penis and inserted unprotected into mouth of virginer.

After issues
Had genital herpes (which increases chances of contacting other STDs and HIV.) did not know thought it was a rash.

then tingling fingers and legs
Back pain
Red eyes
oily skin
fungil infection on legs
soft stool
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replied September 25th, 2013
Experienced User
same with wife and my son
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replied September 25th, 2013
Experienced User
JP,

I had problems with stools to be more precise. It was dark and smelly. But it's all gone after H. Pylori treatment.
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replied September 25th, 2013
Extremely eHealthy
We are all experiencing problems resulting from immune suppression - eye floaters, candida, etc. Since immune suppression (and candida) can happen anywhere in the body (including the digestive system), we shouldn't be so surprised that our symptoms are not perfectly equal. However, if we do match the list of symptoms that Ustas posted, so are symptoms are very much the same. And yes, treating an opportunistic infection will results in a resolution of a symptom, but the underlying problem remains.

Best wishes.
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replied September 25th, 2013
TONY. WHAT YOU THINK WE ALL HAVE HTLV? BASED ON WHAT. EYE FLOATERS OR WHATEVER? YOU ARE THE ONLY ONE ON THE EARTH SAYING THIS. WHY JUMPT OS WOS CONCLUSUSIONS?
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replied September 26th, 2013
Experienced User
Joe,

I think it doesn't really matter what we have at the moment, an unknown retrovirus or some bacteria - the main problem is that we are all undiagnosed. And this is terrible.
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replied September 26th, 2013
Experienced User
Tony,

Well, yes I've got some strange dynamics and every time I experience a symptom I change my mind between virus and bacteria.
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replied September 26th, 2013
Extremely eHealthy
JB,

And those strange dynamics are what cause confusion about this disease. Before HIV hit the news, there was a big increase in doctors ordering bactrim for PCP pneumonia. Someday they're going to look back and see increased statistics for our symptoms as well.

Best wishes.
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replied September 25th, 2013
Experienced User
Also my ESR was slightly elevated during the first stages. I mean even if HTLV increase ESR a lot more than that, it is still suspicious that many people on this forum have/had it.
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replied September 25th, 2013
Extremely eHealthy
...
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replied September 26th, 2013
Experienced User
M,

We have no data. How can we be sure? We need at least real HTLV-infected patient's ESR/CRP data statictics.
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replied September 26th, 2013
Experienced User
Apologies! I didn't mean it increases ESR in HTLV patients, could be the case or not but I don't know. I meant it is still rather weird that ESR has been kinda high among a lot/some of us, no matter what the ESR is with HTLV patients.
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replied September 25th, 2013
Experienced User
My ESR was normal..
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replied September 26th, 2013
Experienced User
I need to be checked for my ESR.
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replied September 26th, 2013
Experienced User
My ESR was normal too
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replied September 26th, 2013
HIV TEST
I had negative test 2,4,5 and 6 months after exposure. I have englared lyph nodes and burning feet(peripheral neuropaty). Should i worry?
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replied September 26th, 2013
Extremely eHealthy
DM,

You were conclusively negative for HIV after the three month mark. We're not worried about HIV here, we're worried about other diseases.

Best wishes.
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replied September 26th, 2013
Experienced User
Where abouts are you from Daniel?
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replied September 27th, 2013
From Serbia,Belgrade. Why?
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replied September 27th, 2013
Experienced User
I still belive this is HIV since all my symptoms is similar to it for almost 6 years
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