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Certain HIV positive, but negative tests (Page 89)

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August 10th, 2013
Experienced User
I have taken my 2nd htlv antibody test after 7months. Awaiting results... Just for everyone's info..
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replied August 10th, 2013
Experienced User
Also had full blood count and hiv again which also was normal.
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replied August 11th, 2013
Extremely eHealthy
WK,

Ask about your platelet counts - see if they are running high.

Best wishes.
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replied August 11th, 2013
Experienced User
My platelets are normal... I can send u a copy of my blood test if ur interested. They were 288 with a range of 150-450.. My total bilburin was slightly high but dr said it was normal
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replied August 11th, 2013
Experienced User
My platelets are normal... I can send u a copy of my blood test if ur interested. They were 288 with a range of 150-450.. My total bilburin was slightly high but dr said it was normal. I'm happy to email it to u
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replied August 10th, 2013
Experienced User
That is the same time i did mine Whoknows1, 7 months after exposure, it was negative. Hope you are feeling better everyone. Have faith
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replied August 10th, 2013
Experienced User
Ustas,
Have you been feeling better lately?
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replied August 10th, 2013
Experienced User
Yes, i am feeling far better these days. Thanks for asking.
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replied August 10th, 2013
Experienced User
How have you been?
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replied August 10th, 2013
Experienced User
Overall i been feeling better also, hopefully just a matter of time before i put all this behind me.
It's good to hear someone here feeling better now.
Your words are encouraging.
Thanks for dropping by.
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replied August 10th, 2013
Experienced User
Ustas, do you think you still have htlv? I was also neg at 4 months htlv antibody. I'm still not feeling good.
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replied August 11th, 2013
Extremely eHealthy
DW,

I thought that you weren't having any symptoms?

Best wishes.
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replied August 11th, 2013
Experienced User
Tony
I'm not having symptoms, but my anxiety level is still too high.
The more i get to know the woman that put me at risk the riskier she seems, if she didnt seem so high risk i wouldn't be worrying so much.
I think she might be a needle user also.
I don't know if this makes sense to you.
Tony,
The person I know who has htlv2 has a lower normal platelet count its at 157 when the reference range is 140-400. He has had htlv2 for about a decade now.
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replied August 12th, 2013
Extremely eHealthy
DW,

I know that you are still worried about this, but you do not have it. While we are busy trying to decide if someone is high risk or low risk, we have to accept that some people who are high risk never get any diseases, and some people who are low risk can get AIDS and drop dead. Yes, that has nothing to do with logic, but that's how random diseases are. I'm betting that your super high risk sex partner has no diseases, and that you are not sick at all. Meanwhile, tons of people who never expected to get HIV, HTLV, Hepatitis, etc are sick as dogs and dying. Thank you for the link to the AETNA list of testing, which included flower cell testing.

Everyone else,

If you are going to go to the doctor, ask for the blood smear test for flower cells. I know that other people are going to say "don't do that", but we have to start somewhere. Contrary to what you've been told, having flower cells is NOT NORMAL, and these things are what is traveling to your spine and causing HAM. At least if we test positive for flower cells, the doctors won't be able to give us the "you're crazy" excuse.

Best wishes.
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replied August 12th, 2013
Extremely eHealthy
PS: Regarding your friend with HTLV-2, I think it is worth noting that HTLV strains #1 and #2 are very different in their affect on the body, so it's not fair to use your friend's HTLV-2 as a baseline for what we are going through - our symptoms are much closer to HTLV-1.

Also, I'd like to be able to contact your friend directly, and speak to his/her doctor(s). Would you be willing to share your friend's contact info and doctors please?

Best wishes.
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replied August 13th, 2013
Experienced User
Tony,
Thanks for your encouraging words, i hope you are right, because i don't know what to believe.
You could ask my friend himself about his Drs. info, I'm willing to direct you to his contact info because i know how much better it will make you feel.
I will call you personally one of these days/nights to do that.
I'm just worried that you might mess things up between our friendship.
So before i direct you to his contact info i want tell you what I don't want you to tell him.
I'm trusting you, i hope I'm not making a mistake.
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replied August 11th, 2013
Experienced User
The posibility of me having HTLV still lingers in my mind.

Definatelyworried, the girl that i had the exposure with, might know there is something about her. I hardly see her these days. It's like she is hiding from me. We use to communicate about the exposure but she started getting angry and i dicided on soughting things on my own. She is a high risk person i think. Hope i'm wrong about that.
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replied August 11th, 2013
Experienced User
The posibility of me having HTLV still lingers in my mind.

Definatelyworried, the girl that i had the exposure with, might know there is something about her. I hardly see her these days. It's like she is hiding from me. We use to communicate about the exposure but she started getting angry and i dicided on soughting things on my own. She is a high risk person i think. Hope i'm wrong about that.
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replied August 11th, 2013
Experienced User
Ustas,
If you don't mind me asking, what was your possible risk exposure?
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replied August 12th, 2013
Experienced User
Does she show any signs of synptoms and has he been tested for anything?
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replied August 11th, 2013
Experienced User
Well my symtoms remain the same..

I am in the Emergency at the Hospital. My girlfriend has a really bad headache and her left breast hurts really bad and her hands numbed up and locked up. I'm really scared.I thought she was gonna die. DDoctors haven't ran any tests. But I wanna request a few mris. I hope she gets back to normal. I feel so sad and depressed. Il let you guys know how it goes.
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replied August 12th, 2013
Experienced User
Doctors don't know what's wron with her.. but suggested s ghost e might have a Cystin her breast. And I think in her head too. I'm so scared sshe's going thru this..

I've looked into "Echinococcus" look it up please. We might be getting closer to the answer
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replied August 13th, 2013
Experienced User
Definatelyworried-My exposure was, unprotected sex with a girl who i think had multiple sex partners. Before anything happened, i asked her if she was clean of STDs and she said, YES. Condom was used at first, but it was removed for more stimulation.


Whoknows1- The bad thing is that, we no longer communicate. This was because i was trying to work with her to find out what was wrong, but instead, she said i was accusing her for my ill feelings. She didn't feel pleased about it and she was starting to get boisterous, so i decided on getting things done all by myself and just leave her alone.
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replied August 13th, 2013
Experienced User
I forget to tell you that i don't know if she had experienced or is experiencing any symptoms. I rarely see her and when i do, i don't steer at her. That's how embarrassed i am with my mistake with that girl.
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replied August 13th, 2013
Extremely eHealthy
The Medify site has a list of HTLV-1 treatments by ranking, and I noticed that reverse transcriptase inhibitors like AZT and Tenofovir are listed, along with stem cell and bone marrow transplantation:

Rank / Name / Number of studies
1 Zidovudine (Retrovir) 7
2 Chemotherapy 7
3 Recombinant Interferon 4
4 Neoadjuvant Therapy 1
5 Pyrvinium Pamoate 1
6 Bestrabucil 1
7 Prostaglandin A1 1
8 Ivermectin (Stromectol) 5
9 9-deoxy-delta-9-prostaglandin D2 1
10 Cyclopentenone 1
11 Tolperisone 1
12 Fucoidan 1
13 Liver Transplantation 1
14 Double-Balloon Enteroscopy 1
15 Steroids 1
16 oligo(A) 1
17 Albendazole (Albenza) 2
18 Tenofovir 2
19 Pentamidine (Pentacarinat) 1
20 Chlorambucil (Leukeran) 1
21 Beta Carotene (B-Caro-T) 1
22 Arginine (R-Gene 10) 1
23 Prednisolone (Predsol) 4
24 Vincristine (Oncovin) 2
25 Immunosuppression 4
26 CAPD 1
27 Cytarabine (Alexan) 1
28 Etoposide (Vepesid) 2
29 Podofilox (Wartec) 2
30 Doxorubicin (Adriamycin) 3
31 Daunorubicin (DaunoXome) 3
32 Immunoglobulins 1
33 Cyclophosphamide (Endoxana) 3
34 Hematopoietic Stem Cell Transplantation 1
35 Dihydrotachysterol (AT 10) 1
36 Estradiol (Depo-estradiol) 1
37 Highly Active Antiretroviral Therapy 1
38 Bone Marrow Transplantation 1
39 Stem Cell Transplantation 1
40 Prednisone (Decortisyl) 1
41 Cyclosporine (Sandimmune) 1
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replied August 13th, 2013
Experienced User
Just an update on my testing. I have tested negative for htlv serology after 6 months...
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replied August 14th, 2013
Experienced User
Anyone else done any other testing and have results?
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replied August 14th, 2013
Experienced User
I met her n married with my wife in 2011 i was really confident that nothing happen to me. I take a lot of pyschtri drug from dr. so it really make me fill damn gud so the wed happen. Than in 2012 i have a baby boy but now i saw a lot of thing is not right between me wife n my baby we all have the same sytomp.
1. Dry mouth
2. Bloter stomach
3. Eye flooters
4. Loose stools

I really confius what actually happen to me and my family. I hope u will just be fine im thingking that mine is a late HIV virus is not HTLV. But i just had a rapid test with my wife last month and the result is negative its really make me confius. Do we have cure with this virus i fell like i killing me and my family softly.
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replied August 14th, 2013
Extremely eHealthy
HM,

We have all been told that we are crazy, and that there's nothing wrong with us. Alberto from Italy got the same story, and he got married and had a daughter, and now all three of them (he, his wife, and his daughter) are sick; seven years into being infected, he now has Mycosis Fungoides, a HTLV related disease. The virus is NOT HIV, it is HTLV. Traditional HIV drugs are not effective against HTLV, except for AZT and Tenofovir. The cure drug for HTLV is Azacytidine, but in order to get that, you'd have to find a hematologist who cares enough to save your life. The current medical approach is to wait until the patients are near death to treat, then try to treat them. As you can guess, that horrible approach usually results in death and should be made a crime.

Best wishes.
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replied August 14th, 2013
Extremely eHealthy
J Clin Invest. 1995 Feb;95(2):547-54.
The cutaneous T cell lymphoma, mycosis fungoides, is a human T cell lymphotropic virus-associated disease. A study of 50 patients.
Pancake BA, Zucker-Franklin D, Coutavas EE.
Source
Department of Medicine, New York University Medical Center, New York 10016.
Abstract
For nearly two decades it has been suspected that the cutaneous T cell lymphoma, mycosis fungoides (MF), and its leukemic variant, the Szary syndrome, are caused by the human T lymphotropic virus (HTLV-I/II). Arguments against this concept included the finding that only a small number of MF patients have antibodies to HTLV-I/II and that attempts to detect proviral sequences by mere Southern hybridization of extracted DNA usually met with failure. However, we have reported repeatedly that HTLV-like particles emerge in blood mononuclear cell (PBMC) cultures of practically all patients with this disease. In several instances, the particles were identified as HTLV by immunoelectron microscopy as well as biomolecular analysis. With the assumptions that the virus in MF patients may have become detection by Southern hybridization alone, the extracts of freshly isolated PBMC of 50 consecutive patients were subjected to combined PCR/Southern analysis. Here we report the presence of HTLV pol and/or tax proviral sequences in 46 out of 50 (92%) of the patients tested. In addition, five of the patients, who lacked antibodies to HTLV-I/II structural proteins, were found to be seropositive for tax. It thus seems reasonable to conclude that MF/Szary syndrome is an HTLV-associated disease and that lack of an immune response does not preclude infection with this type of virus.
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replied August 15th, 2013
Experienced User
..
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replied August 15th, 2013
Experienced User
..
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