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Certain HIV positive, but negative tests (Page 9)

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replied May 12th, 2012
Experienced User
TonyDewitt, ill share this with my friends to sign.
We should take this on social networking sites where millions of people can sign this petition.

Scared49, agree with you, we both have symptoms.Dosent looks like HVP can cause these symptoms.
I dont feel energetic anymore, dont feel hungry, wake up from bed yearning and keep yearning all day.Legs are going week and getting smaller in size.Stomech gives me a bad time digesting anything.
Reading about HTLV people get symptoms 20 years after infection, but i have started gettting these after day2 and this is my week 8 continuing.

All please refer to the below link where people are sharing their experience and talking on medicine.

God bless us all..
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replied May 12th, 2012
Experienced User
Hey All, What does 97% people asymptomatic for HTLV mean. does it means that these people do not show any symptoms throughout their life?
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replied May 12th, 2012
Experienced User
This is what I just found.
Blurbs


About me:
I am someone trying to get the word out about a fatal disease called HTLV 1 & 2. When i was in Junior High, I remember a woman coming to my school telling us about how she contracted HIV, and how serious it was. She talked about the way she caught HIV and other ways it could be contracted, she also talked about the need to be tested, and ways to stay safe from getting it or passing it on to others if you had it. I have been tested many times over the years for HIV, and each time it my tests came back negative. I lived my life exstatic, knowing that i am disease free. However one day i went and donated blood to a bood bank, and a couple of weeks later they called me back stating that i am uneligible to donate blood any longer because my blood test said i was positive for HTLV 1 & 2. I was so confused because i was unsure what HTLV 1 & 2 was. I had never heard of it before. I went online and read about it and what i read angered me. I read that HTLV 1 & 2 is a disease that can be fatal, and is a distant cousin to HIV. In fact HTLV 1 & 2 was founded before HTLV 3 & 4 wich is now called HIV. The united states doesnt even recognize HTLV 1 & 2 as a disease that is an epidemic. What makes me so mad is that people go there whole lifes believeing that because they have been tested for STD's such as HIV and there test came back negative they are fine. They live out there lifes having children and families, not knowing that there is another disease they may have, and the fact that they may have passed it on to their children and loved ones. If one person is infected and they do not know they have it or where they got it from how many others will be infected. I want to get the word out about this disease, i want people to get tested at a blood bank. I want people to know rthat just because you dont have HIV, does not mean you are in the clear. I am despearate to get the word out on HTLV 1 & 2, i want to make a change, and save lifes. Please save your own and get tested.

Read more: HIV and AIDS Forum - Certain HIV positive, but negative tests page 8 http://ehealthforum.com/health/certain-hiv -positive-but-negative-tests-t229803_140.h tml#ixzz1ugIbc7Gd
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replied May 12th, 2012
Experienced User
Hi guys. I have got my htlv resuls negative.
Tests negative hiv hcv hbv ebv cmv all negative
Please like i said early on htlv is very very rare
Even harder transameted then hiv. Please not to worry htlv so much.
I thinks strss cause many problems and symptoms
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replied May 12th, 2012
Experienced User
Good to hear about your results UK_Worry. But HTLV is a serious disease and is not an isolated disease.
Dalton076 I Agree with you completely. '' Just people dont have HIV dosent mean they are clear'' Without knowing people spread this disease to their loved once, coz the disease is asymptomatic till the time people develop related disease.

I have posted the below link and comment on FB, please encourage people to post this and share with millions of people. http://www.ghfn.org/1-topics-general-pages /htlv-1
(Apparently no one cares that no treatments for HTLV exist; there's dozens of treatment for HIV, Hepatitis, etc but no treatments for this, probably because it's considered an "old" disease that no one gets anymore. Unfortunately, 20 million people are infected, and the number is actually larger because most people don't know that they have the disease until they're diagnosed with rapidly fatal cancer, or end up in a wheelchair. Thank the medical community and drug companies for not caring; the unfortunate children that are born with this disease will experience paralysis (like what happened with Polio) before they reach the end of their teenage years. Something needs to be done to bring awareness to this very serious, very debilitating, and very deadly virus, in order to get research on a cure, drug, vaccine started)
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replied May 12th, 2012
Extremely eHealthy
Dalton,

Thank you for the excellent, concrete example that HTLV is a REAL problem and can ruin your life, your spouse's life, and your children's lives as well. It's time that we band together as responsible people and ask the government and drug companies to do something about this terrible disease. I have created two petitions on SignOn site - please everyone sign these petitions and ask your friends to also sign. There are also links to these petitions on the HTLVhelp site.

Thank you very much.
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replied May 12th, 2012
Experienced User
Hey uk_worry, how did you get tested for HTLV? Doctor? Std clinic? Hospital? Also what about cmv how did you get tested for that?

You guys should get tested for hpv as well. I'm starting to think this is what I may have.

This is a real shame that they don't have a drug to suppress HTLV as deadly as this is this is their way of controlling the population that's all. It's also a shame that people can have something and knowingly infect someone without any regrets. I know it's not right to do certain things in life but if I had a deadly std the last thing I would do is want to pass it on to someone else. I mean you have to know when something's not right with your body and wouldn't that want to make you go get tested? I'm so scared and angry inside about the possibility of not being around much longer. I know something's wrong with me soar throat for months now??? Pain in my neck, arm pits, spine, and groin these are all symptoms of lymphoma and throat cancer. Dry mouth for months now??? Salivary gland cancer??? Head aches, light headed ness, blurred vision off and on. Brain cancer??? I mean my exposure was 24 weeks ago is it possible for hpv to do all this in this short of time? The only thing running through my mind everyday is what about my wife and kids? I know it wasn't right what I did but I didn't deserve this I'm the provider for the house and I let everyone down. I pray every day this isn't something serious but all these symptoms I know something's very wrong. I'll pray for all of you as I hope you will all do the same. God bless everyone.
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replied May 13th, 2012
Extremely eHealthy
Save the world from HTLV
Dear Scared,

Thanks for your prayers and certainly you have my prayers as well, you're at least dealing with this honestly and openly instead of buying into the denial that isn't a real disease. Like you, I feel like I let my family down, and like you they depend on me. God bless you & please let's make this known that this a real problem and not a case of insanity - we have to do everything to get this message out before the entire world gets infected because of the neglect of the government and medical industry to warn people about this disease - everyone needs to think about their children and loved ones and ask themselves would they want this for the people they care about. You obviously care about protecting others from this, and I respect you greatly for that. I was never warned about this, and I'm sure that you weren't neither.

God bless you.
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replied May 12th, 2012
Experienced User
Congratulations uk_worry on your results. I also ned to get tested for HTLV.

I do hope u r feeling better now knowning u r fine in all areas uk-worry.
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replied May 13th, 2012
Experienced User
hi scared

do the test for HPV,but HPV asymptomatic in 95% of people,only people with Ig problem will develop genital wart ,which is the only symptom,so you can check by yourself HPV symptoms.
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replied May 13th, 2012
Experienced User
hi dalton76

you should try to find what type of HLTV you have 1 or 2 ?although it is very difficult to differentiate between them,but try to do that specially if you are living in developed country , because type 2 cant cause any disease in human ,but type one can cause disease in small percentage of affected people.
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replied May 13th, 2012
Experienced User
I haven't checked yet, muhamad. I posted what this girl said, and she didn't even knew she had it cause she had no signs at all. One day she just went to a blood bank to donate blood, and they called her back and told her that she was positive for HTLV. They also said that it was descoverd befoe HIV, and that HTLV 3 and 4 is HIV, but HTLV 1 and 2 will not turn into Aids, but it will still kill you, and when it turns to cancer, then it'll kill you in a few months. So Scared, blood banks is one of them that will test you
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replied May 13th, 2012
Experienced User
Scared

tested htlv 1 htlv 2 at my doctor. ( my gp) as well as CMV

USTA

thank you brother yes i feel perfecly fine now. No nore test needed
As my hiv test was pcr rna and hiv duo test
Same for hbv hcv. All test was pcr and antibody test
m nt worriyi so much about HPV as they clear up they self in time
Rarely cause serious problem but always have reAson. Like smoking drinking etc

Thank you for your supports
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replied May 16th, 2012
Experienced User
HTLV, this is really something to ponder. After searching all these days, i finally gather some information on it. It has become a cause for concern now.

The symptoms i experience, are synonymous with HTLV.

I'll try and find the site and give to u guys.
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replied May 17th, 2012
Experienced User
Hey guys, any updates?

This HTLV thing is interesting but I can't find many symptoms for it. All it says is 95% of people are healthy carriers and have no symptoms and only a small amount of people will develop complications and if they do it's usually decades after they are infected. Guys everyone get checked for hpv, there are certain strands that can cause cancers such as leukemia, and lymphoma. Look up the symptoms for theses cancers guys it's something to think about. The thing scaring me the most is the pain in my sides my spleen and liver area, the feeling of something in my throat, and this constant dry mouth. I'm praying it's not throat cancer, leukemia, or lymphoma. My neck glands are soar spine pain that I never felt before groin pain, nausea off and on loose stools, muscle and joint pains all over my body. If this isn't HIV then it has to be hpv or HTLV. It's been 25 weeks since my exposure what else can cause all of this and last this long? My doc said its ok to resume sexual relations with my wife, we've probably had sex 3 times since my exposure and I'm scared I've infected her as well. I just don't feel the same anymore.
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replied May 17th, 2012
Experienced User
I know how you feel Scared. I've been there with the loose stools, pain in my sides, liver, in my gut, stomache, but the pains didn't last long. The pains in my muscle's and joints hurt everyday, and it's interfering with my job. I've it everything that you described, except for the spine. I have two slipped disks, so I don't know about that, cause it hurt everyday before all of this stsrted. Mainly when I started all of this, it felt like something was stuck in my throat, but I don't feel that anymore. The dry mouth comes and go's. I still get pains in my ear's, and my lymph nodes hurt in my armpitt's. I saw online, and they said swollen lymph nodes in your armpitts are very serious. I called hiv/aids hotline last week, and she is certain that I don't have hiv since it had been 13 months since I got tested last. I'm now going on 15months, and haven't got tested yet, but your right about the info on HTLV. Most people don't know they have it, cause they don't have any signs.
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replied May 17th, 2012
Experienced User
Hey everyone.. So my girlfriend is getting her final std and HIV tests tommorow I hope everything come back negative.. I guess im just worried becuase for 3 Weeks now I feel like theres something stuck in my throat. (like a big lougie) but it wont go away. I been taking throat meds and now just sucking on cough drops it helps not to feel it. Also I have a pain in my armpit and under my jaw. Im scared there swollen lyph nodes. But do HIV symtoms last so long? I thought they were supposed to disapear for many years.. Also I had done bad calculations on my exposure so I actually tested on my 11 week not 12. So im going in on Monday and get tested again 13 Weeks now. And my girlfriend is going in tommorow Im praying everything goes good.. Wish us luck..

About Hpv I think my girlfriend had it for about 2 years since the docs told her but we had unprotected sex and never had any of these symtoms.. Also on her ladt test results it said that she has been exposed to HSV 1.. Im not sure if that means she has it. Im guessing it does.. I so exausted just thinking of all this and my future on the line..

Lastly I must let u guys know,, the stranger I slept with was a internet hooker. So yeah just to let you guys know thats why im so worried. prostitutes have sex with multiple guys a day! Why couldnt I been smarter.. (I was drunk) but wats done is done. And now its time to face the music.. Goodluck bros
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replied May 17th, 2012
Experienced User
Dalton, have you been tested for HTLV or checked for hpv? If its not any of these 3 what else could this possibly be? My wife's blood doctor assured her she dosent have any std's but I'm not so sure I'm scared I've infected her with something. My last HIV test at 22 weeks was a home access test which was negative. I know we have some kind of viral infection, I just don't know what it is. I'm scared dalton man I'm really really scared.
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replied May 17th, 2012
Experienced User
How do we get checked for hpv?
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replied May 17th, 2012
Experienced User
Depressedman, I know how you feel with the throat thing going on I've had this for months, this just isn't normal and I pray for both of us it isn't cancer. Your negative HIV test will NOT change I promise. Get testes for HTLV and checked for hpv as well. My wife also tested positive for hsv1 and hsv2. I don't know if I gave it to her or if she's always had it. Ihavent been tested for it so I don't know if I have it or not. Good luck to you and your girlfriend on your test results they will be negative I'm sure God bless.
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replied May 17th, 2012
Experienced User
Hey uk_worry you can check your self if you don't notice anything have your doctor examine you. Sometimes you can have hpv and the warts arent visible, there's a solution they can rub on you to see if your indeed infected. Talk to your doctor about this I'm sure he'll know or will be able to refer you to someone who knows. Good luck.
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replied May 17th, 2012
Experienced User
Hi Scared how r u?
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replied May 17th, 2012
Experienced User
Some said that HPV (warts)normally goes within 6 months. The same is said about some other STDs.Most of us here are having symptoms for more than 6 months.

My girlfriend, soon to be my wife, is having similar symptoms. She is now having muscle pain, some rash on the leg and passing excessive gas. My legs feels like they are burning and muscle pain in the lower part of my leg. The sole of my left foot hurts whenever i step of the bed in the morning. This goes away during the day.
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