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Certain HIV positive, but negative tests (Page 75)

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May 28th, 2013
Experienced User
Is there any women on this forum?

If not why are men only concerned about these symtoms..
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replied May 28th, 2013
Experienced User
D-man
Maybe it's because men usually do more stupid things, or maybe it's because most of women don't stress these kind of things I don't know, what is strange also is that supposedly women are more biologically and physically suseptable to STDs.
U would think there would be more women on forums like these.
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replied May 29th, 2013
Experienced User
Yeah I can see that. Man....I'm starting to think we have some new sh*t man. Scary.
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replied May 29th, 2013
Experienced User
I thought about that too. Its interesting. Maybe this doesn't impact women the same way it affects us. My Dr said there were alot of guys coming into his office complaining about the same type of issues. She didn't say women though.
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replied June 1st, 2013
Extremely eHealthy
D-man,

No offense, but women:

1. tend not to be responsible about their health.
2. are in a state of constant denial.

Consider the dozens of women that I've infected, they are clearly sick, and look me right in the face and say that they are fine. I mention HTLV to them and it doesn't faze them. And since they are convinced that they are fine, they screw other people, which is why this is a major epidemic. It's not going to stop until EVERYONE is infected, and then some news bulletin is going to come out saying that everyone has HTLV.

Best wishes.
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replied May 29th, 2013
Experienced User
Company name :Immuno-Biological Laboratories

Conduct research and development of novel therapeutic drug candidates Immuno-Biological Laboratories, Human adult T-cell leukemia

The implementation of development research human adult T-cell leukemia (ATL) novel therapeutic drug candidates in our company, in collaboration with the University of the Ryukyus, pathogenesis of virus (the "ATL" Adult T-Cell Leukemia, below) adult T-cell leukemia It will inform you of these antibodies with (neutralizing) effect, so we will continue to study as a novel therapeutic drug seeds and infection protection against HTLV-1 is. [Overview] ATL is a type of malignant cancer of the blood that causes the infection of HTLV-1 virus. The main route of transmission of HTLV-1 is a mother-to-child transmission, I will infect the child from the mother through breast milk. Low 5% and about but, HTLV-1 carriers and ATL patients (no symptoms of HTLV-1, but the person who holds the virus in the body) the estimated number of infected people, including the incidence of ATL in 2009 in Japan It is estimated that 1.08 million people around the investigation of the year. Many in southwest Japan with a focus on Kyushu-offespecially, infection is seen in limited areas Kii Peninsula, Sanriku, etc. also Hokkaido on the other. There tended to decrease the number of infected people overall, in recent years, and the increase in ATL patients with aging, moving tendency of carriers into the metropolitan area has become apparent. Prompt measures to local governments and the medical field so that in response to these, the Ministry of Health, Labour and Welfare to turnaround the first time in 20 years, to implement the HTLV-1 testing of all pregnant women, to test items of prenatal care from the fall of 2010 now be added. Treatment of ATL is difficult, currently, chemotherapy, and molecular target drugs and hematopoietic stem cell transplantation is used, but it is a situation that can not be said that going fully satisfied with its effect, in adverse reactions. In addition, vaccine to protect against infection is also under development stage. In the University of the Ryukyus in collaboration with, in basic research of ATL and the onset HTLV-1 infection for many years, antibodies that completely inhibited HTLV-1 infection, we have succeeded in fabricating Rats in the so-called neutralizing antibodies. Through the development of the HTLV-1 infection medicine that is based on this antibody, to apply, and the fact that breakthrough improvements of ATL therapeutic effect, the prevention of mother-to-child transmission of HTLV-1 will be able to is expected. The Company, in order to be able to apply to people as drug antibodies of the mouse, we humanized () of antibody, and will continue to research and development as a novel therapeutic drug seeds. More [Glossary of humanized () antibody; When you use in humans as it is the murine antibody as a therapeutic agent, there is a risk of side effects such as an allergic reaction is recognized as foreign. Therefore, in order to increase more safety, you need to modify the murine antibody, antibody to close to human antibodies. This is called humanized antibody those using the technique of genetic engineering, replaced with human antibody for about 90% of the murine antibody.
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Users who thank adviseme for this post: Definatelyworried  TonyDewitt 

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replied June 1st, 2013
Extremely eHealthy
AdviseMe,

Once again, I have to commend you for the great research that you've found! You've consistently found research showing that people are trying to cure this disease, especially in Japan where it is a big problem.

Everyone else,

I will bet the farm that if any of you try any of the future treatments for HTLV (e.g. the treatments that AdviseMe has mentioned, the antimetabolites that I have mentioned) you will feel better, and I dare say YOU WILL BE CURED. This is not going to go away by itself, and it is not going to be cured with antibiotics - antibiotics only work against bacteria, and this is a virus!!!

Best wishes.
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replied June 2nd, 2013
Experienced User
Tony can you give us a summary of the treatments you and advise me have stated?

Also do you have a persistent headache? the headache I have is severe!
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replied June 5th, 2013
Extremely eHealthy
MGFCG,

1. Tofacitinib - an inhibitor of JAK used for arthritis.
2. Azacytidine - an antimetabolite used for leukemia.

AdviseMe has posted some GREAT articles on Japanese efforts to treat HTLV, some even using the word 'cure'. Recall that HTLV is a BIG problem in Japan & Brazil, so it just can't be swept under the rug like it is in other parts of the world.

Best wishes.
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replied May 29th, 2013
Experienced User
Quick update. All tests came back normal.. Specialist has sent me for further tests. Not sure what further tests exactly but I think it's all autoimmune and other general tests.
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replied June 1st, 2013
Extremely eHealthy
WK,

Were you tested for HTLV?
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replied May 29th, 2013
Experienced User
I22,

What was your risk? And to answer your question Hepatitis B can lead to liver failure and eventually death.
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replied May 29th, 2013
Experienced User
Ustas and scared can you guys please look into stomach bacterial infections and body fungus/worms/bugs I feel like are answer is there.. I'm gaining weight and stuck at 190s when my weight was 175. Something ain't right .. becuase my throat and nose are always stuffy but if i poop i feel alot clearer.. i also looked at worms symtoms and they all match.. tingling ankles and wrists weight gain. Joint pain and sore muslces. Plus at the 1st three months i had a bald spot on my head like a eing that went away like at month 6 or 7. Im not sure. But bald ring like worms? Possibility..

Also i swear this is true!! My boss told me a story like 4 months ago about him being sick for a long time and that doctors couldnt figure out what was wrong with him. Finnally a doctor at minnesota Mayo Clinic took tests and cuaght a bacterial infection in his stomach. He told me the diagnosis but i swear i didnt put attention to it. But he mentioned that that bacteria affected his legs and muscles and joints. JUST LIKE ME NOW! SO now im waiting for the opportunity to bring it up again. He mentioned they gave him antibiotics and he was back to normal.. that the infection was due to "feces" in his systom. Possibly bird or food or maybe even human. So i will ask him soon i promise .
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replied June 1st, 2013
Extremely eHealthy
Definitely I am experiencing hair loss.
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replied May 30th, 2013
Experienced User
Hey guys,

Is anyone still experiencing really bad IBS symptoms? My stools are shot all different colors, soft broken, diarrhea . Also my gas is horrible smelling like rotten eggs and sulfur. Also the rib and flank pain I'm still having trouble sleeping on my sides.
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Users who thank Scared49 for this post: TonyDewitt 

replied May 31st, 2013
Experienced User
I'm not experiences ibs.. My main symptoms it's red and white blotchy palms and dirty tongue, pale gums.. Also occasional stomach cramps. Anyone else. For me it's been 6 months since exposure.
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replied May 31st, 2013
Experienced User
Not IBS anymore for me.Stools have basically returned to normal and i'm eating like I used to. I'm still having pains in the ribs and other places. Like random body pains. Still having stiff/pain neck and headache. Still having weird acne type issues. Still experiencing intermittent lymph node pain under arms. 3 months post exposure.
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replied May 31st, 2013
Experienced User
I also have constant phlegm in my throat.. Anyone else? Does anyone else have red and white blotchy palms besides tony..
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replied June 1st, 2013
Extremely eHealthy
Same for me.
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replied June 1st, 2013
Did you have chronic diarrhea or loose stool? As in after exposure almost everyday? What was your risk? And did you have fever and such?
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replied June 2nd, 2013
I do, and that has been one of tha majors annoyance Along with the swollen submandibular glands and the sebum in my nose and forehead. Becuase these are constant reminders of my unknown condition.

One way i found to cope with the paste/loose/broken stool is taking a potent probiotics every morning, but i have also cut alcohol and reduced dairy.

Did you do any celiac disease and lactose intolrance tests ?
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replied June 3rd, 2013
I see and no I haven't ill do tests this month to determine my problem
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replied June 5th, 2013
Extremely eHealthy
Scared,

Im guessing that you have a yeast infection, eat yogurt once a day to keep that & your stools under control.

Best wishes.
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replied May 31st, 2013
Experienced User
--
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replied May 31st, 2013
Hello everyone, I just wanted to share my story as I am worried I also haven't taken an hiv test yep but I bought an oraquick and did a regular blood and urine check.

amyways...

Around 5 months ago I met this girl online, unknowing of her sexual histoy or anything and we hooked up that night I never heard or seen her again. We had sex and I used a condom, but I sucked her nipple and did a short oral could this cause my worries? Within the following weeks I had a sore in the top out my mouth, had flum sore throat, fever for week, and now its low grade at present which comes and goes, ive had a rash, and bumps, diareah and loose stool. I a, worried to death and cant brimg myself to get a test. until now. can this be hiv?
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replied June 1st, 2013
Experienced User
Ace
Have you had your throat cultured for posible chlamidya, ghonorea, or other bacterial infection?
Maybe since you performed unprotected oral on her you should be prescribed antibiotics for those bacterial infections just to be covered in case.
I could almost guarantee you don't have hiv.
You should go to a std clinic and explain to them what happened they should test you for hiv, syphilis, ghonorea, and chlamidya for free but tell them that you might have a bacterial infection in your throat due to the oral sex.
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replied June 1st, 2013
Hey man, thanks for the info, no I haven't but I will within the coming weeks go and get a HIV and all those test and I hope everything will be ok with me, I hope its not HIV or itwill ruin my world, I'm only 23!

So have you had any high risk exposure @ definitelyworried?
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replied June 1st, 2013
Experienced User
Ace
Yes, I had unprotected vaginal contact, wich is a much higher risk for hiv than yours.
If they find a bacterial infection in your throat it will be curable.
Your hiv test surely will be negative.
You could keep us posted but none of us are going to be surprised if u tell us your hiv test came back negative.
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replied June 4th, 2013
Did you get low grade fever and loose stool for multiple days? Loose stool be going on 4 months past exposure and had a fever like 4 weeks after expose and now its back again and has been goin on for like a week its ( low grade)
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replied June 1st, 2013
Also I have a slight low grade fever which comes and goes sometime, although a doctor told me I can feel hot but not have a fever? In June I will finally had the courage to get tested
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replied June 1st, 2013
Also I have a slight low grade fever which comes and goes sometime, although a doctor told me I can feel hot but not have a fever? In June I will finally had the courage to get tested
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replied June 2nd, 2013
Do the chlamidya, ghonorea, or other bacterial infections make you have flu like symptoms, loose stool , low grade fever and stuff like that?
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replied May 31st, 2013
Hi all:

I'm knew to this forum, and just like everybody here, I've been tested negative for all the different type of STDs, yet still have some symptoms since my exposure (vaginal, oral and anal intercourse - some of it protected until the condom broke, with a CSW in Argentina in 06/06/09).

I've had a plethora of symptoms I'll post later with dates, but the most annoying ones are:
- the gastrointestinal problems - I haven't been able to have the same type of BM since my exposure...it switches from completely liquid to paste like viscosity. It seems to be some kind of malabsorption
- The swollen sub mandibular glands. exactly one month after the exposure.
- An annoying sebum secretion rn the nose, cheeks and forehead, regardless of the temperature.
- My innerr cheeks are so swollen that I sometimes end up biting them
- An annoying sound in the throat, which members of forum about this, call a "por-rock" candy or fizzing sound.

Now, I've done a lot of research online to find out what might be happening with me, didn't find anything that would explain my symptoms. hence I'm tired of hearing doctors telling me you are fine, go find a shrink...

Researching online, there were very few papers & cases which describe undetectable Ab/Ag ELISA/EIA test in someone with HIV symptoms, but most of them end up being detected in the PCR test (bDNA, RNA, NAT, some seem to be more sensitive than others but eventually all of them seem to detect viral load).

In almost all the cases I read, as soon as the HAART therapy was initiated, the EIA/ELISA test were able to catch the Ab/Ag.

The explanation for this phenomena has been that the infected individual had such a poor immune system that no Ab/Ag were being produced ( which would happen wehn CD4 would go <50), hence the EIA/ELISA couldn return a positive result.

I know this might sound a bit crazy, but has any of you already tried to get a PEP (post-exposure prophylaxis) for HIV ? If so what was the outcome ? Has any one come across the idea of inducing the virus to come out so that it can be detected and properly treated ? What do you think ?
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replied June 1st, 2013
Experienced User
Resperanza
Thanks for sharing your experience with us, Im sorry to hear that the condom broke for you.
4 years is a long time to be to be stressed out about this, shoot 2 years is a long time.
Ill tell you what I think about hiv antibody, if you were infected with hiv and you had no antibody response you would probably be dead by now or very sick at best. You mentioned that the cd4 count would be lower than 50 if this was the case, i agree, in that case getting a blood count would reveal that infection. However i think its near impossible for this to be the case for anyone here. Again just my opinion.
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replied June 1st, 2013
Experienced User
Resperanza
I do believe you when you said you have researched a lot over this period of time, maybe you could add to this list of STDs, if so, it would be appreciated.

Bacterial:
1. bacterial vaginosis (BV)
2. chancroid
3. chlamydia (CT)
4. donovanosis
5. gonorrhea
6. lymphogranuloma venereum 7. mycoplasma, genital
8. syphilis
9. treponematosis, endemic
Ectoparasitic:
10. lice, pubic
11. scabies
12. candidiasis, vulvovagina (yeast infection)
Protozoal:
13. amebiasis
14. cryptosporidium 15. giardiasis
16. trichomoniasis
Viral:
17. cytomegalo virus
18. Epstein Barr virus
19. hepatitis A
20. hepatitis B
21. hepatitis C
22. hepaptitis D
23. herpes simplex virus (HSV-1 and HSV-2)
24. human immunodeficiency virus (HIV)
25. human papillomavirus (HPV)
26. human T-cell lymphotropic virus (HTLV-1 and HTLV-2)
27. molluscum contagiosum
28. HHV8

Luckily most of these are not dangerous, could be cured, or are rare.
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replied June 4th, 2013
Community Volunteer
(1) Bacterial Vaginosis (BV) is not an STD. It is not carried by one partner and passed on to the other. It only occurs in women (hence the vagin(a) in the name). You will not find one medical body classifying it as an STD.

The same goes for yeast (12) on your list. It is not considered an STD even though it can be passed on to the other partner in servere cases maybe yeast can be classified as an STI, but not an STD.
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Users who thank kristigraham for this post: Definatelyworried 

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replied June 1st, 2013
Extremely eHealthy
I hear you on the sebum issues, I have them too, and use head & shoulders to deal with the scalp sebum, but I have tons of sebum on my face. Unfortunately, Argentina is big for HTLV.
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replied June 1st, 2013
Extremely eHealthy
R,

Other people have told you, but I will tell you too - you DO NOT have HIV! You are past the window period, period. You mentioned PEP, and since HIV drugs dont work against HTLV, taking PEP after an exposure to HTLV probably won't help (and no one cares enough about HTLV to perform a study to prove / disprove that).

Best wishes.
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replied June 1st, 2013
Hi Tony et al:

Thanks for the encouraging replies. My concern with HIV is more because the girl I met was from Foz do Iguazu (Iguazu falls), which is a melting pot for people from all over the world, so technically she could have had an "work accident" with someone from INdia, Western Africa or even Cameroon. I've two major reasons to still be concerned about HIV.

1) Check this http://www.plosone.org/article/info%3Adoi% 2F10.1371%2Fjournal.pone.0007702
Here, for HIV-1 Group M (the most common) the The two ELISAs were also strongly affected with inclusion of indeterminate results and showed specificities of 90.1% (273/303) and 93.7% (284/303) respectively , and that's with 95% CI !!!

2) Just about a month ago, my wife started to lose her right sight (damage to the optic nerve), we have been to several doctors, she tested negative for several ID, including HIV-1/Hiv-2, Toxo, etc, but her WBC (along with TLC & TNC) is it the woodsheds for almost 3 weeks, she's night sweat and low grade fever a couple of times. Besides, she doesn't fit well into any of the other two possible etiologies for this condition (optic neuritis & Ischemic Optic Neuropathy), so we strongly believe that she has some kind of viral infection, as the fever after the optic nerve inflammation.

But here comes my rant about Dr. and the medical system in this country (I explained my condition to both her PCP & her ID) and they didn't care to even get her to do a more detailed panel such as HIV & HTLV PCRs, or even a simple CMV test.

Also, we now know that some HIV strains are very weak (http://www.ncbi.nlm.nih.gov/pubmed/214305 30), which would explain the slow progression in some individuals, based on good host anti-HIV genetics. So some VL are not even detected by the most sensitive PCRs, and considering the serum dilutions used in the majority of the ELISA/EIA essays, it might also not generate enough Ab/Ag for detection.

I don't want to alarm or panic anyone here - clearly there is something out there that the medical & research community might be missing the beat, otherwise this thread would not have almost 80k views. Please consider this a brainstorm discussion, which I hope it can spark some healthy ideas & discussions.

Stay healthy and keep in touch.

R
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replied June 6th, 2013
Experienced User
Resperanza
Thanks for all the info.
I read the plusone article you linked.
Some of the test performed by Labcorp, like the hiv aptima rna qualitative detects every known strain including group O. If you ask for test panel 366855, you will get the aptima rna mentioned combined with hiv 1/O/2 abs-icma which is an automated antibody test refined to detect every known hiv strain including group O hence the name type1/group O/ type2.
The panel was available to me for $250.
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replied May 31st, 2013
Experienced User
Thanks Depressedman.
For the past few weeks, my stomach was feeling great but act up back recently. I have had upset stomach for months, but not so bad now. Something is wrong yes, but just cant find out what it is. IVE JUST SAID TO MYSELF THAT I'M DOOMED. If doctors cant help me, then what should i do? There is phlegm in my throat everyday.

They said that antibiotic is good for the treatment of bacterias. The amount ive taken already should clear things up, but i'm still fighting my problems.
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replied May 31st, 2013
Experienced User
Whoknows, goose, Ustas,

Whoknows,

Yes I to have the red and white blotchy palms my wife as well. It's fine when my hands are elevated. I mentioned this in one of my posts. It's something to do with the liver.

Goose,

I to have pain under my arms that comes and goes, my neck glands are sore, and I get pains in my groin as well.

Ustas,

I share all of your symptoms as well I've had moucus in the back of my throat as well since the exposure. (11-25-11)
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replied June 1st, 2013
Extremely eHealthy
Same with the throat mucus, and same with the lymph node pain (armpits, groin, neck, etc).
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replied May 31st, 2013
Experienced User
Acejoey268,

Hi, welcome to the forum. It could be anythings possible BUT highly unlikely. For one you had a very low risk exposure, and two it was mostly protected. Hiv is not transmitted as easily as you think. Go ahead and get tested the not knowing is going to drive you insane. There's not a doubt in my mind it will be negative.
Good luck,


REsperanza,

Hi, welcome to you as we'll,

Reading your post as well your WAY past the window period for hiv. You are negative my friend. Unless you have a severely depleted, I mean SEVERELY depleted immune system a 13 week hiv antibody test is 100% conclusive. You do not have hiv my friend. TRUST me I know exactly how you feel.
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replied June 1st, 2013
Thanks a lot. I'll keep y'all posted.
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replied June 1st, 2013
Thanks a lot. I'll keep y'all posted.
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replied June 3rd, 2013
Hi Scared:

Thanks for the encouraging words. You are right, my CD4 are above 900 and the VL in HIV-1 & HIV-2 is still UD. But what if I am one of the 2-5% of the caucasian population who has an CCR5-32 (probably just the single gene, otherwise if I had the double gene, I would not be infected and wouldn't have symptoms). Would an HIV infection still be detected by the standard tests (Ab,Ag & DNA/PCRs)? I.e THe Berlin Patient has no VL, but does he still has Ab/Ag ?

What do you think ?
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replied June 1st, 2013
Experienced User
The worst thing for me is that I'm still in contact with the girl I had possible exposure too and she has no sympoms and has been with a couple of guys from work. Y me? Unlucky or is it something else??
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Users who thank Whoknows1 for this post: Definatelyworried 

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replied June 1st, 2013
Extremely eHealthy
WK,

That's how viral infections work - some people get sick, other people don't even know that they're infected! We don't even have HIV, but imagine the millions of people who are infected with HIV & don't know it because they feel fine.

Best wishes.
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replied June 2nd, 2013
Experienced User
Whoknows
Have you asked her if she would get tested for you?
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replied June 2nd, 2013
Experienced User
She told me she did the std and hiv hep tests which were negative.. She has seen a couple guys from work and none have shown symptoms including the new guy.. My stress and anxiety had been crazy the last couple months. Don't know of it could be the cause..
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replied June 2nd, 2013
Experienced User
Whoknows
I don't doubt it was your anxiety. It's stressful for sure. But you used a condom, i wouldn't worry if i were you. I think your fine.
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replied June 2nd, 2013
Experienced User
No... It was without condom. 3 times during December and January ..

I'm not worried about hiv. It's htlv... I have tested neg for it too.. My anxiety and stress has been really bad.. Could that cause my symptoms?
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Users who thank Whoknows1 for this post: TonyDewitt 

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replied June 2nd, 2013
Experienced User
Oh sorry i thought you had used condoms. I'm in the same situation except it been 10 months for me. It's been 6 for you.
What state or country are you located in?
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replied June 2nd, 2013
Experienced User
About 6 months ago.. From australia.
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replied June 2nd, 2013
Experienced User
Can you get an htlv test for her?
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replied June 2nd, 2013
Experienced User
I have asked her if she has it n she didn't know what it was. That's what she said anyway. I told her I was neg for it. Don't think she will get it done
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replied June 2nd, 2013
Experienced User
Most people don't know what it is. How expensive are the htlv test out there?
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replied June 2nd, 2013
Experienced User
Not sure how much. The dr just organized it coz I requested it. Where r u from? Have u been tested for it
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Users who thank Whoknows1 for this post: Definatelyworried 

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replied June 2nd, 2013
Experienced User
Yes I have been tested for it. I had a 6 month antibody test also.
I'm from california usa.
I been talking over the phone with 2 people that tested positive on an antibody test. I'm learning a lot from them i will try to pass the information to you, maybe it will help you rule it out.
The girl that got you worried seems pretty stable, it sounds as if she works at the same place you do. She is in no way a sex worker or IV drug user.
It would be extremely surprising if you test positive for htlv.
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replied June 2nd, 2013
Experienced User
Ill inbox u in a min...
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Users who thank Whoknows1 for this post: Definatelyworried 

replied June 2nd, 2013
Experienced User
DefW! The people you have talked to regarding HTLV that have tested positive...do their symptoms mimic ours? If so, have they found any relief? What info would you have that would help rule it out?
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replied June 2nd, 2013
Experienced User
Goose
It seems to me not everyone on this forum has the same symptoms.
Some of the symptoms on this forum might match but not precisely.
If you used a condom correctly then it should be easy to rule htlv out because there is practically no way you could get htlv through protected sex.
Did you use a condom?
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replied June 2nd, 2013
Experienced User
I can't rule out improper condom use because those things happen. I'm not sure.

My question is, for the ones who have tested positive, do they seem to have the same symptoms as most of us? IBS, Skin issues, random body pains, lymph node pains and throat problems?
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replied June 2nd, 2013
Experienced User
G
Neither had IBS problems, one had sub clinical skin problems he mentioned two new moles and 17 little pimple like bumps, he didnt say where. Both of them had body pains that don't necessarily go away like joint pains, tingling hands, fingers, feet and toes.
One of them had pain in their lymphnodes, but with significant swelling, neck, ears, armpits, and growing.
What country or state do you live in?
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replied June 2nd, 2013
Experienced User
G
Neither had IBS problems, one had sub clinical skin problems he mentioned two new moles and 17 little pimple like bumps, he didnt say where. Both of them had body pains that don't necessarily go away like joint pains, tingling hands, fingers, feet and toes.
One of them had pain in their lymphnodes, but with significant swelling, neck, ears, armpits, and growing.
What country or state do you live in?
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replied June 2nd, 2013
Experienced User
G
Neither had IBS problems, one had sub clinical skin problems he mentioned two new moles and 17 little pimple like bumps, he didnt say where. Both of them had body pains that don't necessarily go away like joint pains, tingling hands, fingers, feet and toes.
One of them had pain in their lymphnodes, but with significant swelling, neck, ears, armpits, and growing.
What country or state do you live in?
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replied June 3rd, 2013
Experienced User
DW

I'm from MI. I'm not sure whats going on and I am worried about everything because I'm just getting out of the 3 month window. I'll be testing for as much as they'll let me. The body pains, neck problems and headache are mean at the moment. The girl I was with would normally be considered low risk but the last guy she was with (before me) is HIGH risk and from the Caribbean where HTLV and all virus are big.
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replied June 4th, 2013
Experienced User
Do you still talk to the girl?
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replied June 6th, 2013
Experienced User
Not anymore...I didn't leave things hostile but I stop contacting her because i'm very angry about this situation...so i figure its better for me to just leave her alone before I say or do something I would regret...and if its something like HTLV, I really can't be angry at her because i'm sure she has never heard of it and has probably never tested for it and has not idea what the heck is going on. Plus i used a rubber.
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replied June 5th, 2013
Extremely eHealthy
Goose,

You're just getting past the 3 month window, and I (and many people here) are past 18 months, so imagine how crazy that is!

The more I hear everyone talk about their symptoms, the more I realize that we are suffering with mostly the same symptoms.

Thanks for recognizing that the Carribean is high risk (I caught this from a Puerto Rican), which proves that you can't determine an individual's risk, since a person's sexual past can be so varied. Women who were in relationships with IVDU's didn't want HTLV neither, but they got it nonetheless.

Best wishes.
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replied June 6th, 2013
Experienced User
Yeah man this is crazy! And I am sure she caught this from that guy. I've known this girl for years and she's been with less than 4 guys in her life so she's naive and inexperienced..she is not a high risk girl by the numbers but she got with the wrong guy. In a way I feel bad for her too....I just wish I woulda not seen her that night....damn it!
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replied June 1st, 2013
Experienced User
So many of the same symptoms
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replied June 4th, 2013
Extremely eHealthy
M,

I agree that so many of the symptoms are the same, we've been posting our symptoms for over a year, and there's too much consistency for it not to be the same thing.

DW,

Sorry for disagreeing with you, but our symptoms are the same (not different), and the 'safe sex' approach only works if you use a condom for all types of sex - recall I infected two girls that gave me unprotected oral sex, even though I used a condom for vaginal sex.

Best wishes.
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replied June 1st, 2013
Experienced User
Tony,

I was tested for htlv here in australia and retrned not detected. The test was htlv 1/2 serology... It's been 6 months now for me. My gf has phlegm now. Not sure if I have passed it on to her...
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replied June 2nd, 2013
Experienced User
A ton of phlegm here too, has been the most consistent symptom for me. Have had it almost a year now.
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replied June 2nd, 2013
Experienced User
Guys, I got my test paperwork from the new dr.

Everything is negative or normal - liver, kidneys, etc, all general infectious diseases.

I have 2 dr's who have now advised I am ok.

One test they did was a way to measure muscle deteriation and I am below normal, which is good from a muscle wasting perspective

For me - I am more inclined to believe a chronic entero virus

Take a look at symptoms and John chia.
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replied June 2nd, 2013
Experienced User
Great news abouts your tests. All mine hav com back normal too. I'm waiting on more tests that I have done also. What's ur symptoms?
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replied June 3rd, 2013
Experienced User
Wow...I need to talk to someone from that Enterovirus Foundation. The chronic entero virus fits also. Wyoming do you mind if I ask your age?
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replied June 2nd, 2013
Experienced User
.
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replied June 2nd, 2013
Experienced User
Symptoms vary.. Over time, . But now it is ibs, weird stomach nausea, headache, eye pain, limb weakness, and general tiredness.
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replied June 2nd, 2013
Experienced User
How long since your exposure? Have you done any tests?
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replied June 3rd, 2013
Experienced User
Our symptoms are pretty much exactly the same except the IBS. I have stomach nausea, severe headache, eye pain, weakness and fatigue but I also have body pain (neck, arms, under arms, legs(
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replied June 9th, 2013
Extremely eHealthy
WS,

Same here - right now my head is killing me. Im glad that your doctors are saying that you are okay, but the way that you & I are feeling is unacceptable. And thinking that this could lead to worse things or death constantly haunts me.

Best wishes.
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replied June 3rd, 2013
Experienced User
Has anyone noticed their gums are pale?
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replied June 4th, 2013
Extremely eHealthy
Yes.
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