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Certain HIV positive, but negative tests (Page 58)

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December 18th, 2012
Side-note: Had a few minutes spare to Google 'HTLV'. Has anyone ever heard of Richard Engnath? Google him and read the bilerico, chronogram and woodstock articles. If any of you are in the States he might be a person worth contacting.
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replied December 18th, 2012
Experienced User
I dont know what kind of mycoplasma, but again it was with a homeopath and not a dr from the regular hospital. I have not yet taken medication for it, but I will start with it tomorrow. But again this is no regular medication so I dont know what to think of it.

The girl where the condom broke said she was fine, she also looked healthy. The unprotected oral sex girl she looked kinda unhealthy without make up. Also she had a dark sunken left eye, which I now also have in the morning. She also said she had a car accident the week before, one night while we went out she had to get medication because she had a lot of pain for it. I assume it was just a painkiller since it was already during the night. Later I also saw photos of the car accident etc.

It happened 6 months ago
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replied December 18th, 2012
Extremely eHealthy
@hivlikevirus,

With HTLV, there aren't hundreds of us, there's 25 million of us, and probably more since no one's tracking this disease.

We've discussed Richard Egnath in the past, he is friends with a lady I talk with on Phoenix Rising dot me - he doesn't have access to the Internet, like those people you mentioned, so he's not much help.

Yes, HTLV is tested for in blood donations, but again the test for HTLV doesn't work, so this is another big joke with this disease - since they don't care about it, they don't have a conclusive test for it.

HTLV is like HIV, but MORE contagious, meaning all the funny lines about HIV not being transmissible during oral equates to HTLV being transmissible during oral. I know this because I infected two girls via me receiving oral sex. No, HTLV does not travel through the air, but it is in all sexual fluids.

I am not in contact with the person I got this from so I won't go to jail for murder. I've been upset about this everyday for over a year, so not having contact prevents me from committing murder.

The people that wrote in to TheBody site about dying of NHL can't be contacted, it's a one-way posting. If a few of them were dying a few years ago, it's reasonable to expect that all of them are dead by now, and the government and medical authorities didn't do a thing about it.

Please feel free to publish the stories you mentioned at the HTLVhelp dot com web site that I paid for.

Best wishes.
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replied December 18th, 2012
Experienced User
How bad would you rate your symptoms? In what grade are they affecting you life?

To me its prorbably only a 4 out of 10, my throat is really messed up, some weird rashes, slight pain in my joints, and sometimes very tired. But nothing extreme I think. I still can go to school and study and go out.

Tony, I dont think its a good idea to spread fear by saying people have died because of this disease only because you have not heard of them.
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replied December 18th, 2012
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Well, the people in the posting admitted some of them had died of NHL, a deadly disorder. Alberto from Italy is at the beginning stages of leukemia, a leukemia that most people die from - he's not going to be able to e-mail me anymore once he's dead. While it might be scary to discuss this as a deadly disease, I don't think that we should pretend that our biggest problems are going to be rashes and joint pain. People actually die from this disease.

Best wishes.
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replied December 18th, 2012
Experienced User
Do you have any tips as far as discussing this with my gp, since i know she will act very skeptic about this. I want to test for htlv, even though the tests might not be really good they still have a slight chance of finding it, am i correct?

best wishes

me
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Users who thank msamsamsa for this post: TonyDewitt 

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replied December 18th, 2012
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M,

Since HTLV is a big problem in Brazil, they have come up with a testing protocol that involves all three types of testing:

(1) HTLV Antibody.
(2) HTLV PCR.
(3) HTLV Western Blot / Line Immunoassy (LIA).

You should tell your GP that you want all three of these tests performed. Please let us know how that goes.

Best wishes.
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replied December 19th, 2012
tony,

Have you tested positive for HTLV or has a DR said you have HTLV or do you think you have HTLV..i am just confused. please help
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replied December 19th, 2012
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N,

No, I have not tested positive for HTLV.

AdviseMe & I are both certain that we have HTLV because we have all of the symptoms of HTLV, which match what everyone's been writing in about.

Discussing HTLV with a doctor is problematic because the medical industry is in denial that HTLV even exists - even the idiot doctors on MedHelp don't consider to be a STD !!! One competent doctor in South America described it as "the most ignored disease, so much that it's not even on the list of ignored diseases".
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replied December 20th, 2012
msamsamsa wrote:
How bad would you rate your symptoms? In what grade are they affecting you life?


10. I've already lost my job and I'm almost definitely about to lose my girlfriend because of this. If her period doesn't come soon then: 15. If I'm sick, fine, but if she's infertile for the rest of her life(?)

Thanks for the info Tony, much appreciated.

Just a few more (very) quick questions (after a few hours reading here-and-there today):

Most sites say HTLV carriers don't usually show symptoms - if any (and most of them don't anyway, ever) - for months, usually even years after infection. This seems to have affected us all perhaps within hours(?) Maybe it's not HTLV.

When - if ever - were you last tested for HTLV? If never / not for a while then when do you think you'll next try?

Also, saw the post on Facebook / a few web links regarding the positive health benefits (and symptom reduction) of Green Tea and Shiitake Extract capsules. Is this something any of you have tried? Bought some today; will let you know how I get on.
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replied December 20th, 2012
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H,

Everything you read about HTLV has to be tempered with the fact that the medical industry is in denial that this disease is:

(1) Widespread - 25 million people minimum have it.
(2) Crippling - people are paralyzed in wheelchairs.
(3) Deadly - people are dead in less than ten years.
(4) Symptomatic - it's easy to say that people don't have symptoms when the doctors aren't looking for symptoms.

Instead of worrying about your gf being infertile, you should be more worried more about her having a baby - Alberto in Italy gave the disease to his wife, who then gave it to their child. If you think being an adult with this disease is bad, imagine how horribly a child would be suffering with this.

I've had 5 HTLV antibody tests and one HTLV PCR test, all negative.

I've tried several supplements to feel better, I would say that the top supplements are Vitamin C (2000mg), Eclipta Alba (contains Wedelolactone), and Curcumin (tablet form of tumeric, 2000mg), in addition to a daily multivitamin, and green tea. HTLV sufferers in Japan swear by Shiitake mushrooms, so certainly that isnt a bad idea neither.

Best wishes.
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replied December 20th, 2012
Experienced User
One question: do you guys recommend me to test again for hiv?
HIV duo tests 87 days after oral sex and 105 days after broken condom with a girl who tested negative the day after.
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replied December 20th, 2012
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M,

The three month HIV test is conclusive; after that, if you are still experiencing symptoms, test for HTLV and other infections.

Best wishes.
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replied December 20th, 2012
TonyDewitt wrote:
I've had 5 HTLV antibody tests and one HTLV PCR test, all negative.


How long after exposure was the last one and are you planning to get another one any time soon?

I'm about 3 weeks away from the 3 month mark now I think; will try and get myself one then.
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replied December 21st, 2012
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H,

Im out to over a year already, I get an HTLV antibody test every two months. Because Rick Sowadsky from TheBody site said that it could take years to test positive for HTLV, I don't expect to test antibody positive anytime soon. As soon as I have extra money I will get a Western Blot / Line Immunoassay test for HTLV.

Best wishes.
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Users who thank TonyDewitt for this post: hivlikevirus 

replied December 23rd, 2012
Experienced User
HI Guys!

Hope you all are doing better these days.

For me, I'm not too bad, but i'm not good at all.

I did a MYCOPLASMA test recently and it came back POSITIVE. I cant tell the name of the one that I'm positive for. A general test was done for Mycoplasma and high antibodies were detected.

I hope after treatment, all my problems will be over.

Will let you guys know what is going on as soon as i start meds.
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replied December 23rd, 2012
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Ustas,

It's good to hear from you & I hope that you will feel better after being treated for Mycoplasma. Like I've said in the past, I appreciate everyone's efforts to continue testing until we figure this thing out. Certainly the Mycoplasma and Candida infections that we all are experiencing can be caused by immune suppression, but at least we know that we collectively do not have HIV.

Merry Christmas & Best wishes.
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replied December 23rd, 2012
anyone test for ebv or cmv?
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replied December 24th, 2012
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Its neither of those - I had EBV 17 years ago, it's a picnic compared to what we are going though now. Same goes for Parvo, JC virus, HHV8, etc. Ironically I am still CMV negative.

Best wishes.
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replied December 28th, 2012
Experienced User
Does hiv 2 have a longer window period than hiv 1? Do you guys think oral sex has longer window periods? Not to say hiv again, just wondering!
Does any of you have a chronic blocked nose inside the house and a lot of mucilage in their throats?
Meeting doc for htlv after weekend.

I tested positive for EBV but that was EBV from a long time ago. I have never noticed anything from my EBV. Tested negative for the other stuff.

Also tested negative for heli bacteri, parasites, etc.
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replied December 28th, 2012
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M,

I definitely much nose phlegm and throat mucus, especially in the morning. I've had more HIV tests in the past year than a porn star, it's not HIV. I know it's easy to worry about HIV, because it gets so much press, and no one ever mentions HTLV, especially doctors - it is that failure of the medical industry, doctors, government, and activists that has caused us to be sick with this disease.

Happy New Year & Best Wishes.
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replied December 28th, 2012
Experienced User
Hi Tony

Thanks for replying. Yes for me too in the morning. It resolves during the day to a lower level, but still noticeable. Also I mostly dont have any nose problems when I am outside, mostly just inside.

Ive been taking anti reflux pills since 2 days ago. I do this since all my problems started after a week of high dosage fruit smoothies, which gave me a lot of acid reflux problems. Could be the case that the acid causes my throat problems, perhaps the acid ''refluxes'' more when I am laying down etc. So far I havent noticed any differences.

Do you people also have really smelly gasses especially at night?

U too mate
M
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replied January 8th, 2013
Help Guys!
yes I do have the foul smelling gas issue as well. I have been feeling really ill with weight loss and fatigue for 8 months now. Been tested 4X since my last possible exposure over 20 years ago, all negative. I thought I was past this fear. I have swollen lymph nodes under arms and in my neck. Bowels have changed as well. Pains in my legs. Dark circles under my eyes. I had so many tests from hormones and CBC. Just feel so weak. Everyday i sleep for so many hours yet do not feel refreshed. Doctors want me to see Psychiatrists. Help!!
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Users who thank needurhlp007 for this post: TonyDewitt 

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replied January 8th, 2013
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N,

I (and others) have experienced your same symptoms (gas, bowels, leg pain, dark eye circles, fatigue, swollen lymph nodes). Like you, the doctor recommended that I see a psychiatrist - you are NOT crazy! HTLV is a real problem and it needs to stop being ignored. We need to fight the ignorance about HTLV and work towards effective diagnosis and treatment of HTLV.

Best wishes.
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replied December 28th, 2012
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M,

The cause of your gas & reflux is Candida, eating a serving of yogurt every day should help that.

Best wishes.
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replied December 31st, 2012
Experienced User
Ustas,

What kind of test did you take for the mycoplasma?? Also can you look into what kind of mycoplasma it is.. thank you..

I wanna test for it asap.. thank you ustas
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replied December 31st, 2012
Extremely eHealthy
Happy New Year everyone! Let's hope that the next year bring treatments (and possible cures) for HTLV !!!

Best wishes.
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replied January 1st, 2013
Experienced User
Amen brother.
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Users who thank adviseme for this post: TonyDewitt