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Certain HIV positive, but negative tests (Page 56)

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November 20th, 2012
Experienced User
Dear Tony,

Thanks for your response. But I think I mispresented myself so let me ask again.

1. How alberto starts suspecting HTLV?
a.Does he get symptoms right after suspected exposure? How fast is it?

b. Did his family members get symptoms?

c. did he gets non ham/tsp symptoms apart from leukimia?

2. I am thinking if we have some different symptoms from textbook htlv ones, because,

a. our incubation period is too short
b. we have lots more symptoms than we what can find on the net.
Here are mine,
'Normal' symptoms
Dry mouth, lips
Oily hair and face
Fatique
Ear ring
initchy skin
Chest pain
Stomach cramp

'Aging symptoms'
Cracking bone and joints
Degenerated spine (curved and disk problem)
Heat intolerence (thryroid checked normal)
Muscle pain with atrophy
Vision problem
Thinning skins, fats under skin can be seen.
Darken skins, wrinkled and aging
Gum astrphy

Other weird symptoms
Crp and esr not elavated
No joint swelling but pain
No inflammation and fever

c. the way we gets the virus seems much more easier than how htlv sspread
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replied November 21st, 2012
Extremely eHealthy
Hope,

I share your symptoms, we all have the same symptoms. Alberto had HAM problems. The way the virus is spread is through sexual contact, that's how we all got sick.

Best wishes.
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replied November 21st, 2012
Experienced User
Dear Tony,
What i worry is that alberto only get HAM. He doesnt get the symptoms we get. That makes me suspect if we really got htlv
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replied November 21st, 2012
Extremely eHealthy
Hope,

I didn't ask Alberto what his other symptoms were. We all have HTLV - the medical industry never warned us about this, they pretended that it didn't exist. We all worried about HIV, only to get infected with HTLV - very ironic. All we can do now is either pursue treatments or wait for paralysis and death. I provided several treatment options, it's up to you to try them.

Best wishes.
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replied November 23rd, 2012
Experienced User
Tony,

For your reference.

a bunch of us tested in a lab and out of 14/15 of us tested PPD positive. By having NTM treatment many of them have their oral thrush, bone cracking gone and skin returned to be in better condition. Not sure if what is behind but Many of them did get great improvement.
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replied November 23rd, 2012
Extremely eHealthy
Hope,

What's PPD positive?

Best wishes.
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replied November 23rd, 2012
Experienced User
Non-Tuberculor Mycobacterium.
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replied November 23rd, 2012
Extremely eHealthy
Please let me know what happens when you get treated for that.

Best wishes.
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replied November 27th, 2012
Extremely eHealthy
Does anyone on this forum STILL believe that he has HIV, or has the hundreds of tests convinced all of us that none of us have it? I really hope that it's the latter case.

Best wishes.
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replied November 29th, 2012
Experienced User
Hiv still haunts me.. I can't help it.. so does hepatitis abc.. or home kind of virus scares me.. yes including htvl. But I'm praying to God it's a bacterial disease.. leg joints are what bothers. Me these days. I'm going to the gym again but I can't lose the weight like I normally would.. and my legs never stop getting sore like if it's the 1st daybback in the gym everyrtime.. I keep getting bad folluculittis also bad pimple looking things on my face.. I just feel so ugly and dirty sometimes..
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replied November 29th, 2012
Experienced User
when was your last test Dman ?
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replied November 29th, 2012
Experienced User
another one here,
HIV still in My head, i have now a swollen lymph node below my chin/jaw, it is hard and bumpy,
i just did an operation in my nose ( Nasal pockets ,Polyps ) as the Master Genius doctor Advised me, so i did it and i'm recovering now,
but all return to Zer0 when i got the swollen lymph node below my jaw and same old pimples on my tongue.
IDK what else to do ,,
i have a question Tony, Do they perform an HIV test Pre any operation ( like the one i had recently).?
BTW : my throat still sore , i can't swallow easily. Sad
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replied November 29th, 2012
Extremely eHealthy
D-man / Casper,

I hear both of you, please be strong, we are all in the same boat - none of us can swallow right because the virus affects out sphincter in our esophagus. You won't be tested for HIV pre-operation, but it's not HIV, you can take an HIV test every day for the next ten years and it will never be positive, I promise you. And we got to be grateful that it's not HIV, Ustas said that & he's absolutely right - we all know that we could have contracted HIV doing what we did, but thank God we didn't.

I've been contributing to the forum at Process dot Org (so has AdviseMe). We're trying to find a way to (legally) set up a corporation so that we can move Doctor Rider's DRACO treatment forward. Nothing solid has come out of it yet, but if DRACO were to become a reality, it would work against ALL viruses, including ours. The only thing stopping DRACO from becoming a reality is time & money - the more money the effort has, the less time it will take to test it against every virus known to man and then move it into human trials.

Yesterday I called the National Institutes of health & left a message for Doctor Palmore, in the epidemiology department. Assuming that she doesn't think that I am a nut & returns my call, I want to give a vial of blood so that they can figure out what the f*ck we have. If the same people can discover HTLV in 1980 & HIV in 1982, they can figure out what the h*ll we have thirty years later. They have to acknowledge what we have as the next big epidemic, they have to stop pretending that we aren't very sick and are going to die from this sh*t.

If any of us can't take this decline anymore, our only existing treatment options are Xeljanz (5mg pill twice a day) or Azacytidine (one week of dosing each month for an entire year).

Xeljanz interferes with NF-kB processing (as a JAK inhibitor), which interrupts the lifecycle of both HTLV & HIV.

Azacytidine has not only cured an HTLV patient in Greece after 8 months, but also has been shown to induce "lethal mutagenesis" against HIV per a research paper by Doctor Louis Mansky's group.

Getting Xeljanz would require a sympathetic Rheumatologist, getting Azacytidine would require a sympathetic Hematologist.

I know getting treated for this with either medication is going to be extremely difficult, since doctors don't want our disease to be even recognized, never mind treated, but it's either try some treatment now or wait until paralysis and death later. Personally I'd like to try the heavier medication (Azacytidine) since it supposedly worked on the HTLV patient in Greece. I don't want to wait years for DRACO to get through the research pipeline, I'm afraid that I will be paralyzed by then, or leukemic like Alberto from Italy.

If this was 32 years ago, they wouldn't be able to do anything for us, they'd give us a wheelchair and a hospital bed and watch us die slowly. But nowadays they can treat us with two approved drugs, and research testing on a third drug that will cure all viruses is ongoing. I'd like all of you to please consider us writing a group letter to the National Institute of Health, signing our real names to it, so that they can realize that we're sick, we want acknowledgement of our disease, and we want treatment. The process dot org group has been using Google documents to develop comments and questions for their forum, and we could do the same here. I could write the letter and give all of you access to it so you could add your name and contact information. I know that might be asking much of everyone, but I truly believe that we are all at a point where we need to (peacefully) protest about this in order to bring about recognition and treatment, just like the people did in the early 80's for HIV, when that was being ignored and untreated.

D-man, you said that you are being haunted, and I am too; there's days that I go to get out of bed and can barely walk across the room, I start cursing this disease and the medical industry for hiding this from us for 32 years. There's times that a break out in tears because I can't believe this is happening to me, that I won't be able to take care of my family or even be alive to see my kids grow up. I'm tired of living in this h*ll, and I know that we all feel the same. Coming here to complain isn't going to change our illness or bring us a cure, so let's do something that will.

Best wishes.
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replied November 30th, 2012
Experienced User
Tony,

I think if you write this letter please do not be so assertive that we are suffering HTLV. We do not have concrete evidence.

On the other hand, if you write this letter, I THINK you might want to translate it into chinese as well. Dozens of China aids like dissease sufferer are seeking attention.

Finally, I received my report on mycoplasma fermentans, which is positive. I think you should check for yourself. As you mentioned, you have passed this pathogen to a few friends. The way you transmitt this thing doesnt look like HTLV at all. Please consider testing it.
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replied November 30th, 2012
Experienced User
I am going to russia for hyperthermia next week. Try to eradicate anything. Mycoplasma, mycobaterium, EBV, and other unknwon stuff? I wont wait anymore.

Tony, I fail to get tofacinib for a try. But i cannot wait as my right leg is wasting too fast and my right feet is suffering burning pain. I will try on hyperthermia and hope it gives me positive results.
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replied December 1st, 2012
Extremely eHealthy
Hope,

Good luck on your hyperthermia - a paper by Hatanaka asserts that it might eradicate HTLV infection. Please let us know how the treatment is for you, when I spoke with the treatment people on the phone, they said that they give three treatments, once every four days. I wish you the best on what might be the first time anyone in history has used hyperthermia against HTLV.

I hope that you & many people here dont this is HTLV, but this is very much like HTLV in terms of HAM/TSP, skin disorders, wasting, candidaisis, etc. Remember that Alberto from Italy took two years to test positive via PCR test, and never tested positive via antibody test. Clearly there is an undetectable strain of HTLV in our bodies, causing everything from high platelet counts to skin disorders to muscle wasting to back & leg problems.

Best wishes.
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replied December 1st, 2012
Extremely eHealthy
PS: Alberto was also interested in hyperthermia for his HTLV because he had a significant reduction in symptoms FOR A YEAR after having a severe fever from a urinary tract infection. So if a high fever can reduce symptoms for a year, God willing the hyperthermia can possibly be a cure.

Best wishes.
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replied December 2nd, 2012
Experienced User
reduction on ham symptoms?
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replied December 2nd, 2012
Experienced User
I am hoping it is htlv, too.
As for hyperthermia, I dont care what it kills. I hope it kills everything in the body. If it gives me a year of relieve I am fine as well.
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Users who thank IsThereAnyHope for this post: TonyDewitt 

replied December 2nd, 2012
Experienced User
Thank you Isthereanyhope.. I will test for Mycoplasma asap.. thanx for continuing to keep us updated.. I have a little relieve now.. please let me know if you get better after your meds
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replied December 3rd, 2012
Experienced User
DEPRESSMAN

my pcr for mycoplasma is negative. I got positive at a serum test offered by a japan lab.

Mycoplasma can live in any tissue so it can be hidden and not detectable in blood pcr
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replied December 2nd, 2012
Extremely eHealthy
Hope,

Yes, Alberto sent me an email that he experienced a reduction in HAM/TSP symptoms for an entire year after a severe fever, and he is also the one who introduced me to the paper by Hatanaka suggesting hyperthermia as a treatment / cure for HTLV. Please keep us informed of your experiences with the treatment and your health. I wish you the best.
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