Medical Questions > Conditions and Diseases > HIV and AIDS Forum

Certain HIV positive, but negative tests (Page 6)

Must Read
Do you know what causes HIV? Get started by learning the facts on HIV and AIDS here....
Do you know what puts you at high risk of HIV? Debunk the myths and get the facts of HIV risk factors here....
Can you identify early HIV symptoms. Learn what to look for and when to seek medical help as we review symptoms of HIV here....

April 22nd, 2012
Experienced User
Hi friends again
I still have symptoms. More than 6 months now. Still have broken skin inside mouth and swolen left neck node
Dalton i had pins and niddles and tinggi on face and arm but gone now
I will go for herpes test this week and see if i have herpes or not
Im just lost. I tested 6 times up to 8 months and all negative and it was 4 th jen hiv test
|
Did you find this post helpful?

replied April 22nd, 2012
Experienced User
Hi everyone, uk_worry, dalton, Casper, jr79, Ustas, guys get tested for herpes 1 and 2 this virus causes a lot of symptoms. Also get tested for EBV, CMV, and have your doctors examine you for hpv as well. Sorry for not responding much here lately been working 12 hour shifts 6 days a week. Wish you all the best guys good luck.
|
Did you find this post helpful?

replied April 23rd, 2012
Experienced User
Hello guys\friends,
AS UK_Worry say exactly , i still have the broken skin inside my mouth & cheeks from inside,some ulcers in my tongue ,all of that with the swollen lymph node in my neck & the sore throat for the last 7 months now,
i just got another HIV test two days ago(i'm not afraid as b4 to take the test)the result came back NEGATIVE AGAIN)so i think that 7 month is more than enough to show antibody for HIV, we all just have to think\consider that it is not HIV at all,
thank you Elizabathmay for sharing your thoughts\experience with all of us ( i think we should listen to you & to Scared49 also) definitely it is something else BUT NOT HIV ( i'm really happy to say that ) Smile Wink
thank you Scared for sharing your thoughts,keep on good work man..
all the best guys
|
Did you find this post helpful?

replied April 23rd, 2012
Experienced User
My Dr. told me not to test for HERPES. He sait it always produce sores, and i did not have any.

I'm sure it wouldn't cause any pain in doing a test, so maybe i'll do one soon.

I've posted on other forums and experienced persons said my symptoms are not related to herpes. All of that caused me to erased HERPES from my mind.
|
Did you find this post helpful?

replied April 23rd, 2012
Experienced User
Hi guys i read and find out virus called HTLV

http://htlvhelp.com/
Have a ready guys
|
Did you find this post helpful?

replied April 23rd, 2012
Experienced User
Hi guys read about htlv virus
Its smiler to hiv virus
|
Did you find this post helpful?

replied April 23rd, 2012
Experienced User
Good idea uk_worry, I'm gonna get tested for that as well. Another thing guys do a ESR blood test this checks for autoimmune diseases just a thought guys.
|
Did you find this post helpful?

replied April 23rd, 2012
Experienced User
wisegeek. com/what-is-htlv.htm
Have a read
|
Did you find this post helpful?

replied April 24th, 2012
Experienced User
Hello UK_WORRY ,What is this HTLV , it is exactly similar to HIV,but without a deadline for attacking your body ( not 10 years as most HIV sites say),i have read the site that you send us , i found also http://hospitals.unitedbloodservices.org/f orms/BS_352.pdf
this file,read about it guys,thanks a lot UK_WORRY ,you are a star man , god bless you
|
Did you find this post helpful?

replied April 26th, 2012
Experienced User
Hello Guys ,
how is everybody over there,i wish you all the best in the results (&) in finding what we all suffering from !!!
*How Are you Scared,Any updates man about you & your wife ?
*How are you UK_WORRY, how is your research man, have you see the .pdf I send you.?
*How Are You USTAS, how is it going on with you man ?
*How are you Delton,any more updates man about your situation?
all the best guys
|
Did you find this post helpful?

replied April 26th, 2012
Experienced User
well, I have noticed that a lot of stuff that I was going thru last year, and the first of this year is gone, but there are times that my bones are in a lot of pain. Mainly in my shoulders, elbows, and knees. I still bruise very easily since it all started, my neck is more stiff and hurting than before, still have bowl changements, I get pains in my ears at times, still have the thrush on my tounge, and canker sores inside my mouth, and I'm still loosing weight. I'm tall, and use to weigh 245lbs, and now I'm 213lbs. I never lost any weight at all until all of this happened about 14 months ago.
|
Did you find this post helpful?

replied April 26th, 2012
Experienced User
dalton ...
listen to me........

u DONT HAVE HIV.....
if you keep thinkinh hiv ur symptoms wont go away ...
|
Did you find this post helpful?

replied April 26th, 2012
Experienced User
Casper012, i'm not too bad at all, even though i'm still having abdominal issues, pinching headaches, joint pain, loose stool, and eyes getting a dark colour (in my opinion). The amount of test i've done at the lab, i've gained friend there. She called me in today to do ESR to see it there was any inflammation in my body. NORMAL was the blood. I've told her that i'd love to repeat my HEPATITIS B test.

Dalton76, are you still concerned about HIV? I hope not, because you r more in the clear than i do and it's off my shoulder completely since i did my last test weeks ago.
|
Did you find this post helpful?

replied April 27th, 2012
Experienced User
no, I'm not thinking about it anymore. I'm just waiting to get some insurance, and I'm going to get tested for everything. Something is very wrong, that's all I know. I woke up this morning, and my left hand hurt so bad that I had to take something for it. It's like the pain is getting worse by the day. I'll get tested for those things that you guys have talked about.
|
Did you find this post helpful?

replied April 30th, 2012
Experienced User
HIV test negative but I have symptoms everyday
Hello my brave people.. Well im going thru the same thing as you guys. I had protected vaginal sex with stranger, but I fear condom broke or something went really wrong, now 11 Weeks later im still feeling sick and I dont recognize my bodys reactions.. I got really scared when I started feeling the pins and needles, my feet /ankles and hands/wrists like a burning sensation. Never felt nothing like it. And my skin is like have allergic reactions like I get a hive or insect bite looking bumps on my arms mostly but also sometimes on random body parts. Also I had red spots on the head of my penis. Right now im expierencing sore throat. My joints on my left side of my body ache, I get light head and dizzy at times. I confessed to my GF what I did and shes trying to forgive me. we got tested at week 5 and week 8 both NEGATIVE but im scared we just havent made enoigh anibodies for hiv. Its really freaking me out becuase shes also getting the same symtoms as me. Im lrayimg to GoD everyday for me and her and everyone whos going thru this. May God Help us. Any feedback is wanted im trying to figure out wats wrong with me.. Goodluck everybofy..
|
Did you find this post helpful?

replied April 30th, 2012
Experienced User
Hello my brave people.. Well im going thru the same thing as you guys. I had protected vaginal sex with stranger, but I fear condom broke or something went really wrong, now 11 Weeks later im still feeling sick and I dont recognize my bodys reactions.. I got really scared when I started feeling the pins and needles, my feet /ankles and hands/wrists like a burning sensation. Never felt nothing like it. And my skin is like have allergic reactions like I get a hive or insect bite looking bumps on my arms mostly but also sometimes on random body parts. Also I had red spots on the head of my penis. Right now im expierencing sore throat. My joints on my left side of my body ache, I get light head and dizzy at times. I confessed to my GF what I did and shes trying to forgive me. we got tested at week 5 and week 8 both NEGATIVE but im scared we just havent made enoigh anibodies for hiv. Its really freaking me out becuase shes also getting the same symtoms as me. Im lrayimg to GoD everyday for me and her and everyone whos going thru this. May God Help us. Any feedback is wanted im trying to figure out wats wrong with me.. Goodluck everybofy..
|
Did you find this post helpful?
Users who thank Depressedman for this post: TonyDewitt 

User Profile
replied April 30th, 2012
Extremely eHealthy
Anyone testing negative for HIV after the window period but still experiencing symptoms should test for HTLV. The window period for HTLV is longer than HIV, but the symptoms are very similar. Hats off to the person who mentioned HTLVhelp.Com - not only does that site have a forum, but also it has a petition to have a clinical trial for Azacytidine to cure HTLV as was done with a patient in Greece.
|
Did you find this post helpful?

replied April 30th, 2012
Experienced User
Hello friends, I just got my 22 week home access test result back it's NEGATIVE! My wife also seen her blood doctor a couple of weeks ago and had him test her for all std's everything came back negative. He assured her that she does not have HIV saying it would have deffinately showed up by now and she does not need to test for it anymore. I'm completely lost here guys something is not right with us. This HTLV virus is really starting to get my attention, but they say it's really rare in the U.S.

I wish everyone the best, hang in there guys we'll figure this out.

Depressedman, me and you have the exact same symptoms I know how you feel man trust me, but you have to believe the test. Test up to 13 weeks for your conclusive result which will be negative I know it. Have your girlfriend test up to 13 weeks as well just to be safe. Do a full std pannel both of you. Good luck.
|
Did you find this post helpful?

replied April 30th, 2012
Experienced User
Hi DEPRESSEDMAN
I had same symtoms
Pins and niddles and burning
But testedmany times up to 9 months and all clear

Im sure somethink causing this symptoms but not sure what!!!
|
Did you find this post helpful?

User Profile
replied April 30th, 2012
Extremely eHealthy
Like I said, test for HTLV. If you've tested past the window for HIV, then that's not your problem.
|
Did you find this post helpful?

replied April 30th, 2012
Experienced User
Hey guys!
Still having symptoms but can't help it. I want to test for HTLV, but just giving myself some time. Also, not sure if it's done here in my country. If there has never been a case of it then, they might not do it here. I hope that's not the case though.

I know we will fing out what is happening to us. Doctores have said that they do not keep up to date with that virus, so they cant say much about it. It's HPV in a man's body, they can't help us with that problem.

I hope one day we will be able to smile again knowing that the 'beast' is gone. Stay strong everyone.
|
Did you find this post helpful?

replied April 30th, 2012
Experienced User
Thanx for responding guys I finally feel like theres people that actually understand me. My GF is sick and tired of me talkingabout this everyday and linking all my problems to hiv.. Ive been tested for clymidia,gonnerea,hep b, syhpillis and HIV THREE different times all NEGATIVE.. Doc started giving me hpv shots which are 3 I got 2 to go.. ive seen three different Doctors and have called multiple HIV clinics and they all tell me my symptoms are not HIV related which is hard to believe.. Ive tested at 5,6 and 8Weeks my last Doc said I should trust my 6 week negative but thats impossible for me.. Im going in this Monday for my 12 week test which I seen is conclusive. I will test for HIV , herpes, and sypillis I hope I can accept my results becuase this situation has ruined my life and im stuck becuase I cant conentrate on anything but my bodys reactions.. I will keep u guys posted on my results and what my Doc tells me and suggests.. I pray we are all negative may God help us.. And please give us a second chance in life.. Talk to u guys soon take care
|
Did you find this post helpful?

replied May 1st, 2012
Experienced User
guys,thanks all for sharing our thoughts together,
Depressedman: your 12 weeks is a 100% conclusive man,it will come back negative,then you don't think about HIV at all please,
tonydewitt : if you have any more information about HTLV,can you share it with us,we don't have alot of information about it.what shall we do if we have it (+),what is the next step for anyone got it.
Scared: Congratulations man for you & your wife,all the best man on finding out what both of you & all of us have...
|
Did you find this post helpful?