My daughter was prenatally diagnosed with enlarged ventricles in her brain (ventriculomegaly). She has routinely (every 3 months since birth) had ultrasounds on her head to monitor whether the ventricles have increased/stabilized. Every time I meet with the neurosurgeon, he says her ventricles look fine and seem to be stabilized, but we'll do another scan in a few more months....yaddayaddayadda. Now, with her fontanel closed, her neurosurgeon wants her to get a CAT scan in order to continue monitoring her brain.

I am hesitant to schedule her for this appointment for several reasons:
- she is developing normally
- I don't want to expose her to the radiation
- I don't want her sedated (she'll not be still for the 5 minutes the scan takes)

The nureosurgeon obviously knows what he's talking about, but I still need to be my daughter's advocate because I don't trust that what the nureosurgeon tells me is in my daughter's best interest. I wonder if he continues to want her to have these tests either to milk the insurance or for research purposes.

Any thoughts would be appreciated. I'm going nuts over whether I would be doing the right thing to stop all this testing since she is doing well. I might add that had I not opted for the prenatal test, she wouldn't be having all of these tests to begin with.

If anyone knows where I can find more information related to the safety of CAT scans on infants, please let me know! The fact that CAT scans are not recommended for pregnant women make me wonder why they would be considered safe for infants.

Thanks for your input!!!