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Q: cardiomyopathy
asked by: jj48nascar on June 24th, 2008
New User
Hello, I am new here and was wondering if anyone here has or has had cardiomyopathy?
I was diagnosed with this in March and just had my echo to see if it improved. My ef rate went up from 20% to 35% so I am not a canidate for a heart transplant but my dr wants me to get a defibulater and I am scared of getting that done.
My blood clot I have is in my left ventricle and I still have it.
I hear the normal life expectancy is 5 years. I have been depressed. Hard to do anything anymore and I am only 32 yrs old. I would appreciate chatting with anyone that had or has this disease or someone that knows about it.
thanks alot

Matt
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Dr. Nikola
replied on June 26th, 2008
Doctor
Cardiomyopathy is not a precise diagnosis for any heart disorder. It is only a general term that there is something wrong with the heart.
Ejection fraction should be greater than 55% which means your heart is not pumping the blood well enough (chronic heart failure). You didn't gave me any precise data why
your heart is not pumping the blood well.
Presence of blood cloth in the left ventricle is a consequence of disturbed heart function. This is potentially very dangerous condition because the cloth (or part of it) can be cut off and then stick into some organ causing infarct (embolism).
You can consult some cardiologist or cardio-surgeon about your heart condition.
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jj48nascar
replied on June 26th, 2008
New User
cardiomyopathy
I have been seeing cardiologist and i do have dialated cardiomyopathy. I also am very weak and eghausted all the time. I am also takind coumidan to thin my blood because of the blood clot. thank you for responding

Matt
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Dr. Nikola
replied on June 27th, 2008
Doctor
Treatment of dilated myocardiopathy includes:
1. MEDICAL TREATMENT: Patients are given the standard therapy for heart failure, typically including salt restriction, angiotensin-converting enzyme (ACE) inhibitors, diuretics, and digitalis. Anticoagulants (coumidan) may also be used.
2. SURGICAL TREATMENT:
- Inserting left ventricular assist devices;
- Endoventricular circular patch-plasty (Dor procedure);
- Partial left ventriculectomy (Batista procedure);
- Heart transplantation;
- Cardiac resynchronization therapy (biventricular pacing);
- Implanting automatic cardioverter/defibrillators.
You can consult some cardiologist and cardio-surgeon about the possible treatment options.
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dilated_cardiomyopathy
replied on August 14th, 2008
New User
5 year prognosis
the 5 year prognosis is nearly always untrue, there are MANY people who live way longer and this please get in contact or search for a cardiomyopathy forum - message me
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mrsmc
replied on September 16th, 2008
New User
viral cardiomyopathy
I was diagnosed with viral cardiomyopathy this past June 08. I am going back the my cardiologist tomorrow for a 3 month check up. I guess reading these has made me realize that this is more serious than I thought. My husband keeps telling me I am doing too much and need to rest more. I really want to go back to work. I am a teacher and have missed the first month of school. I am watching my salt, taking my meds, taking my blood pressure regularly and walking 2 miles a day. When I was admitted to the hospital, my ejection fraction was 15%. I am hoping for a good report tomorrow, but after reading all of these, I feel like that might not happen.
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amt93
replied on October 15th, 2008
New User
familial dilated cardiomyopathy
My husband was diagnosed with familial dilated cardiomyopathy in April 1996. He was 33 years old at the time. His ejection fraction was 25 at the time of diagnosis and would tire easily upon exertion. Treatment for this condition has come a long way. Considering his condition is hereditary, chances for a full recovery doesn't exist because it's a genetic thing. Anyway, he had an AICD device implanted in August 1997 after going into cardiac arrest. His doctors have all been very aggressive with his treatment and with medication alone, his ejection fraction is now 40 almost 13 years later. His mom had a heart transplant April 1999. She was 62 years old at the time. She is still alive and kicking and hasn't had an ounce of rejection. Don't panic and don't listen to anyone who says there is a 5 year life expectancy. My husband leads a fairly normal life and we are conscientous about his medications and doctor appointments. I wish you all the luck.
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