Epilepsy Forum - Carbatrol And Leukemia
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Carbatrol And Leukemia

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dolphin25

New User, Becoming EHEALTHy
Joined: 13 Feb 2004
Posts: 1
Location: Alabama
Carbatrol And Leukemia
Posted: 02-13-04 10:24am

Can taking carbatrol for epilepsy cause leukemia? I have had epilepsy since I was 15months and yesturday I went to the doctor to have my levels checked and they found something wrong with my liver. I have been on different types of medicine for epilepsy but I have been on carbatrol for about 2years. Before that I was on depakote for about 10 years. The doctor didn't want to scare me but spoke about leukemia. I am really scared
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kathy97123

New User, Becoming EHEALTHy
Joined: 06 Sep 2005
Posts: 4
Location: temecula, california
Carbatrol And Leukemia
Posted: 09-06-05 22:25pm

I've taken carbatrol for 7 years now. I went to the doctor 2 weeks ago to get my levels checked and he said that my white blood cell count and my platelet count is "alarmingly low". He sent me to a hematologist/oncologist to take more blood tests. I have to say, it was a bit scary to sit in his office with all of the books sitting around like "how to eat when you have cancer" and such. I'm going back sept. 12th. I'd really like to know what happened with you dolphin25. Please give me an update.

Thanks!
Kathy
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dolphin26

New User, Becoming EHEALTHy
Joined: 10 Sep 2005
Posts: 1
Location: Alabama

Posted: 09-10-05 08:13am

Everything turned out to be fine and I am sure you will be fine to. I will be praying for you. Let me know what happens. Dolphin26 is my new name. Something got messed up and I had to start over. :d
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kathy97123

New User, Becoming EHEALTHy
Joined: 06 Sep 2005
Posts: 4
Location: temecula, california
Carbatrol
Posted: 05-16-06 17:47pm

Hi dolphin! I'm so happy it turned out okay for you. I am still having trouble with my white blood cells. I am at 2,300 now. I have to get off the carbatrol and will start topamax. I hope that it doesn't have many side effects. Have you heard anything about topamax?

Kathy
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kathy97123

New User, Becoming EHEALTHy
Joined: 06 Sep 2005
Posts: 4
Location: temecula, california
Carbatrol And Leukemia
Posted: 09-04-06 12:36pm

I just received a bone marrow biopsy on thursday. I will get the results tuesday. Has anyone heard if carbatrol causes leukemia?

Kat
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sandyallen

Extremely EHEALTHy
Joined: 02 Feb 2004
Posts: 4580

Posted: 09-04-06 15:06pm

Kathy97123, I am not a dr but I have heard that about carbatrol, anytime that you get a new med they generally give you a hand out with it or look it up on the computer under side effects, that is the only thing baad about using prescription meds thing can cause worse problems sometimes then what you already have.
As far as topomax, someone told me it caused her hair to fall out, more brain fog, weight loss.
A lot of the pain meds is hard on the liver but I have to have it daily with my medical situations but we are not all alike and some of us may not have any side effects at all but we haaave two choices we can take it and it might help with that particular medical situation or maybe not or not take it and suffer.
Their is also herbs and naatural supplements that I have tried that did not help me but has helped others that with some people did not have all of the side effects, you might ask your dr about that.
All the best to you!
Keep us posted on what you find out. You too dolphine25.
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kathy97123

New User, Becoming EHEALTHy
Joined: 06 Sep 2005
Posts: 4
Location: temecula, california
Carbatrol And Leukemia
Posted: 09-05-06 10:03am

Hi sandyallen!

You are right about topomax. I have been taking it for three months now instead of the carbatrol and I have lost 22 pounds. I am hoping that it is because of the topomax and not because I am sick. I will know today or tomorrow.

Thank you for your message.
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