I have been suffering for 2 years without
a definitive diagnosis on these symptoms.
I have undergone many tests which have not
connected my symptoms with any disease or
condition. At this point I just don't
know where to turn to get relief. Maybe
someone has experienced such symptoms and
can give me direction on where to turn.
First, 2 yrs ago my BP began to creep, not
bad but significant enough for med.
Cholesterol high as well, put me on med
which caused elevated liver enzymes.
Stopped med for liver after a year liver
enzymes down. Through extensive blood
work my ANA (auto immune antibodies)
levels were high. Went to Rheumatologist
ruled out Lupus, Sjorgrens, etc. Soon
after starting new BP med I started
experiencing burning in my mouth, tongue,
roof of mouth. Now I have burning on
face, throat, inside nose, legs. It has
been nasty. I have been on Klonopin,
didn't work, neurotin didn't work. All
the meds make me have panic attacks and
the burning is worse. I went off all BP
med at some point thinking that's what
caused the burning but I still have it
even being off meds. I have had enough
and am sitting here totally frustrated,
anxious and at a dead end. If anyone has
another idea or specialist to see. Let me
know. I'm all for suggestions. I am on
synthroid for hypothyroidism. Have been
to Endocrinologist also. My BP is running
144/80 or so. I have tried different
compositions of BP med and they all make
me crazy. Doctors think its mental, but I
am a totally sane, responsible person and
not a lunatic.