mcoulstring,
By convention, all range of motion measurements are the passive range of motion. But, usually, the physician will mark down both active and passive (or they should).
Usually, the distal screws are placed above the flare of the femoral condyles. The tenor fascia lata muscle comes down from the lateral hip to the lateral knee as the outer most structure (just under the skin and subQ). So, there is actually quite a bit of muscle (vastus lateralis) between the screw heads and the ITB (which is the distal tendon of the tensor muscle). This is not to say that you don't have some type of scar band snapping over the screw head, and it may be connected to the ITB. When the screws of put in, the ITB is split in line with it fibers (an inch or so), the the muscle underneath is bluntly dissected down to the bone using a pair of forceps. Then a soft tissue protector is placed through this area (just sort of a big tube that the drill bit, screw, and screw driver can be put down through). The protector keeps the drill and screw from chewing up the muscle tissue. But, that little defect still has to heal and it can heal with scar bands. So, again, you may have something in there snapping around the screw heads.
The VA provides the best care they can, with the resources they have. But, they are just so overwhelmed with the number of patients they are trying to take care of. And, they are always short staffed.
If you can get insurance, it will probably be to your benefit. Just be aware, that many health insurance policies will not cover "pre-existing" conditions. Or, you have to pay extra for them to be covered. If you can get a policy to cover your residual problems that would be great.
Yes, unfortunately, orthopedic surgeons will try to do everything not to operate on stiff joints. They are taught that surgery will usually just make things worse. And, it is better to just keep pushing in physical therapy, to obtain as much as possible. Then whatever you get, well, that's what you get.
I wasn't happy with what I had and I had been trying to get more motion for almost two years. Luckily, I found a surgeon who, though he did not do the surgery, knew a colleague who was trying a new technique to get more motion in late arthrofibrosis cases. I was put off twice by this surgeon, who said, try more PT. I just became a pest basically. I kept showing up back in his office. He'd give me the speel of the risks and that the amount I would gain would not be great. But, I kept saying I would be happy if he could just get me to 90 degrees. So, finally, he relented.
I had what is called a tibial tubercle cephlad slide, with lysis of adhesions. They actually cut the connection where the patellar tendon attaches to the tibia and move it up towards the knee. This can really mess up the quad mechanism, so it is a real balancing act. And, he cleaned out as much scar tissue from inside the knee as he could. Then, I was kept in the hospital and placed in a CPM machine (continuous passive motion) for almost five days, around the clock. I got my 90 degrees, but it took me awhile to regain control of my quads (before surgery I only had around 45-50 degrees). Would I do it again, yes, because it worked in my case. It doesn't in all cases.
And, this was for well established arthrofibrosis with severe patella baja. Usually, if it is gotten to fairly early, the sportsmedicine guys will do an arthroscopic lysis of adhesions and manipulation under anesthesia, with CPM after. Bony procedures are usually reserved for late cases.
But, you are the one living with the knee and know how it is doing. If you can get insurance, it would probably be best. You might even in the next few months, see if you could get in to see one of the orthopedic sportsmedicine guys in your area for an evaluation and recommendation. Unfortunately, the VA may just never get around to doing anything, not because they don't want to, but because they just don't have the resources.
Oh, just a thought on the snapping around the lateral distal thigh. Sometimes, an injection of cortisone will help to breakdown scar bands. Again, just a thought. I'm sure your PT has probably also recommended friction massage to see if that could break it up. It's not generally recommended to use ultrasound around metal implants, or that could also be used (some PT's will do ultrasound over screw heads, if the US head is kept in continuous motion, while others are very rigid on the contraindications. It's really up to the PT.)
Hang in there. Wish you the best on the rest of your college days (they are truly some of the best times of your life).
Good luck.