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Born without uterus (Page 1)

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Im 20 years old, When I was 15 I found out by the gyno that I was born w/o a uterus, although I have fallopian tubes and ovaries...all these years I have never really told anyone but my mother and father, not even my closest friends...I would feel so bad when all the girls would talk about their periods I never had anything to say LOL,. I was dating my bf (now husband) for a year and never told him about my condition....my mom finally came over and let the cat outta the bag! I was so upset at the time, but Im thankful now that she told him because God only knows how long it woulda been before I told him! But since the day I found out, that was my 1st and last time ever going to the gyno...I need someone to talk to with the same problem so we can share different opinions and answer each others questions! It is very painful at times not having anyone else that knows exactly how you feel!
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First Helper AngWad
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replied September 12th, 2009
hey...this is so weird i too have been looking for someone to talk to about our problem,i was born without uterus and i found out like a yr ago...i know all to well about th the awkard period talks for i have never had one too...its really hard I understand..I havent told anyone even my closest friends....the thing that has really begun to bother me is the not being able to carry a baby....and i also had another question...i have ovaries also,but no uterus or period so where are the eggs going/doing that are supd to normally be release during periods????......sorry if i bombarded u wit so much info its jst that i have so many questions and ive never known someone with the same condition
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replied April 25th, 2011
well if you have ovaries every month just as if you would have your period, youre ovaries make new eggs... hence why you make have cramps every month and may have random mood swings....
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replied April 25th, 2011
well if you have ovaries every month just as if you would have your period, youre ovaries make new eggs... hence why you make have cramps every month and may have random mood swings....
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replied December 27th, 2009
I have the same 'condition'.. I'm 30 and now seeing all my friends having babies, and am faced to start dealing with this. I saw the 1st post of this, which coincidently is my birthday (thought that was a bit strange)so had to reply to this. would like to talk further, but dont know how to get intouch with the users, who are going through this, directly.. dont want to go back and forth over posts.
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replied May 15th, 2010
I too was born without a uterus. I didn't even have an opening in order to have sex. lots and lots of surgeries I had to go through. I would love to talk with you all. My name is Lisa
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Users who thank pallmall for this post: hasasecret 

replied April 7th, 2011
hi!...we do have the same situation...only my father and mother knew about it..and my problem is..i do have a boyfriend..and i didn't bother to tell him about it..i thought im the only having this problem..and its really hurt especially when my friends talks about thier minstration..i'll just pretend that i have but i;m delayed..hahah! funny but when night comes tears fall from my eyes..thinking for ther future what if my bf ask me..hope to keep in touch with you...just call me Charm..
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replied January 18th, 2012
same problm
hmmmmmmmm i know even i feel very pity god will help u
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replied April 25th, 2011
Hi Lisa!

I found out about a year ago about my "situation" and my doctor told me that I am not deep enough, and I may have to go and get reconstruction surgery done... But I'm super scared, the one thing that bothers me is not having a normal sex life Sad

Love to chat if you dont mind (:
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replied October 7th, 2011
Born witout a Uterus
Hello, Baby Green. Born the same way. I am now 42. I was fine but my sister (Same condition) had the reconstruction surgery done 26 yrs ago and everything works fine. She claims GREAT? They took skin from her thigh?
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replied November 11th, 2011
Re: Surgery...
The surgery is totally worth it! Email me
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replied November 15th, 2011
Hi Everyone,

I am a twin and was born w/o a uterus. At 18 which was 10 years ago. I went through the surgery to create a vagina so that I could have a normal sex life. I had the skin graphs taken from my glutes instead of my thighs. It has been a rough but good road due to marrying a great man and happy that I did the surgery so that I can have a normal and healthy sex life with my husband. I am now dealing with the emotions of watching friends have babies and my heart aches b/c I will never know what that's like.
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replied February 9th, 2013
I also have the same 2 problems! I was born without a uterus and had no opening fro sex, So far I have gone through 2 surgeries
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replied June 4th, 2010
Dear friends,

I am almost 20 years old, and I found out I didn't have a uterus when I was 16. It was very difficult for me at the time because my sister was pregnant. I have my sad times when I am reminded of not being able to carry a baby; usually in church or when I am around my friends. As far as I know, I do have my ovaries. Would like to chat with anyone about this and would like any information you can give me.
Thanks, Emmer01
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replied June 5th, 2010
Community Volunteer
Hi Emmer01 and welcome to ehealth: There are chat rooms that you can find on this subject...Actually it happens quite often...I would suggest you try to google what it is that you are looking for and go from there..Yes, you can have a child if you use a surrogate woman and have your ovaries...The eggs then could be withdrawn and mixed with the male sperm...Honey, it could be so much worse....I wish you my best...Take care....

Caroline
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replied November 8th, 2011
To CarolineEF, the community volunteer...I feel your "Honey, it could be so much worse" comment was a little insensitive. Maybe you have the same condition, and maybe you don't, but until you are in this situation it feels as though you are alone, and the only one going through it. I found out when I was 16, and now 17 years later it is still a struggle for me. Especially now when my friends are having children, and I see women who I don't feel should be mothers. I was also very reluctant to tell people, including my friends. Afraid that I would be talked about, or that I was different. I told my husband on our second date, thinking that he was never going to call again. He called, and was understanding. I just thought I would share a little with you all.
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replied June 15th, 2010
Daughter Born without Uterus byt has active ovaries
I am so glad to find this forum. We(my daughter and I) just found out she was born without a uterus. She is 17 and I am not sure how she is taking this. She says she is okay but I am not sure. I do not pressure her to talk about it but when I mention anything about it she gets aggravated(could be her age) and does not want to discuss. She will have to go thru the dilation procedure to lengthen her vagina for sexual ingtercourse and she does not act interested in doing that and I dont see any point in rushing her decision on that I think that has to be her decision. As her mother I am so worried about the long-term effect this might have on her and after reading all the posts I am certain we need to talk to others about how you handled dealing with the whole situation. Would love to hear from you all.
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replied July 3rd, 2010
i have a daughter who was born without a womb i am really upset about this she is 23 now and we discovered it when she was 17 would love to hear from other paents
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replied July 13th, 2011
hi, we found out yesterday that my daughter has no uterus, and are still reeling from the news, my daughter is only 16 and we have so many questions to ask, she isn't taking it very well and neither am i, she is 1 of 8 children and she always wanted a family herself, i know this is still possible but its not the same is it?
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replied July 7th, 2010
I, too, was born without a uterus, cervix and vagina, and I tried the Frank method (dilation) but it was too painful, so I had the McIndoe procedure (the surgery) to create a vagina, and I am very glad I chose that route! My surgery was in Dallas, TX by Dr. Karen Bradshaw. She is EXCELLENT!!!

If any of you want to talk to me, I am here. Just send me a message. I have always thought to myself that I was the only one born this way, even though I know 1 girl out of 5,000 girls have this condition.

The "official" name of it is Mayer-Rokitansky-Kuster-Houser Syndrome (MRKH for short). Between weeks 6 and 9 in utero, the mullarian ducts fail to meet/form correctly, which results in the uterus, cervix and vagina not forming. I am 32 years old now and found out when I was 14 years old.

My twin sister carried a child for me, and I am the proud mommy of a beautiful 3 year old daughter!
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Users who thank AngWad for this post: rosemarysbaby 

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replied February 15th, 2012
need help thanks
AngWad i have my girl friend having the same problem not having uterus , and iam with her for ever an she is 19 and u said u had surgery and it went excellent i would like to ask you some question about that and if u accept to help me and iam a lebanies i live in lebanon so if any body have got solution from dotor or any thing if u guys can add me so u can give me advice thanks god bless you all
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replied December 10th, 2012
I'm getting the surgery done in a few days and am sooo nervous... They doctors keep saying its painful and stuff... Loved to hear about your experience
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replied February 9th, 2013
How long was the surgery and how long was the healing process after? I have MRKH as well.
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replied December 8th, 2013
Hey, was the surgery painful? I have been advised to use the dilation method aswell, but it just feels too awkward for me, plus it hurts a bit and i dont know if am doing it right.
How long did you have to be in bed rest for after the surgery? I am currently 21 and doing my degree at the minute, so I just wanted to see how much time I would be taking out of this.
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replied December 8th, 2013
Hey, was the surgery painful? I have been advised to use the dilation method aswell, but it just feels too awkward for me, plus it hurts a bit and i dont know if am doing it right.
How long did you have to be in bed rest for after the surgery? I am currently 21 and doing my degree at the minute, so I just wanted to see how much time I would be taking out of this.
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replied September 18th, 2010
Actually---i would like to know---where DO the eggs go from my ovaries if i cant have periods cuz of no womb?
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replied November 23rd, 2011
The eggs most likely are reabsorbed back into your body. They are so tiny that it is not a big deal.
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replied September 26th, 2010
Where the eggs go when you have no uterus
The eggs that are released from the ovary harmlessly dissolve and are reabsorbed in the abdomen. This is also what happens to women who have their tubes tied (tubal ligation) and so the egg cannot follow the fallopian tube toward the uterus. There isn't any health issue related to reabsorbing the egg material in the abdomen, since we're talking about a cell a month and the body is always replacing cells and reabsorbing material.
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replied October 13th, 2010
i have it too
Hi everyone Smile
im 13 and i found out i was born with no uterus i think this year but my mom knew a since i was born cuz the doctor told her ..so i am going throught the stage that all the girls are getting the periods and i have nothing so it is kind of awkward..so i pretended i have it just for the fun of it Smile i made my own date and everything haha Razz well my mom decided to tell me this year because i started wondering why ive been going to the gyno since so young when in health class i learned girls go at about age 16 or somethingg so yaa then she told me..im pretty much okay with it its just sad that i cant a have a baby Sad and im not sure if im also born without ovaries also i have to ask my mommy Smile well ya i thought id write on this cuz u all have the same thing as i do Smile
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replied October 23rd, 2010
hello! i found out that i was born without a uterus when i was 17...back then, i was just glad to know what was wrong with me and since i always thought it's better to adopt a child it was okay with me! but now i'm 22 and my feelings changed a lot... i can't have a relationship because i don't feel like i'm able to....my boyfriend broke up with me for another reason, he was the only one except for my sister and my mother who knew about it. i don't feel like i can ever tell this any person again...i had some surgeries as well because my vagina is not big enough...i feel lost and can't talk to my friends about it. why am i not like everyone else?
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replied January 4th, 2011
Also born w/o uterus & RELIEVED!
I am 32 and found out I had no uterus when I was 20. My mother had been taking me to the gyno since I was 14 because she thought it was odd that I hadn't had my period yet. I'd had ultrasounds and that big wand with the camera thing stuck in me, but nobody could figure out what was going on. Not until I was 20 and having bad stomach problems did my PCP schedule me for a CT scan of my abdomen. That's when I found out I didn't have a uterus and only had one ovary. I was depressed for a long time that I couldn't have babies but now that I'm older I am RELIEVED! I've learned that I don't have the patience for children of my own, and I just spoil the heck out of my niece and nephew! Until reading this forum I didn't know there were so many people out there with the same issue as myself. Obviously I don't have a cervix and I've had 3 different gyno's tell me I don't need to bother with papsmears anymore since what they're checking for is cervical cancer. Has anyone else been told this by their gyno's? My vagina is only 3" (approx) deep and it is very painful to have sex. Luckily my husband is very understanding.
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replied January 14th, 2011
Born without a womb
I too was born without a womb, I found out when I was 18 and am now 32. I have also just discovered that I have an ovarian cyst on the one little ovary that I have and am waiting on surgery in February to remove the cyst. Hopefully they can save the ovary as my husband & I were hoping to use a surrogate mother. We will just have to wait and see what happens.
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replied January 17th, 2011
You can servive this...
HI my name is Linda. I will be 49 in march this year. I was 15 had never started my period. Did the gyno. visit and found out I was born w/o uterus, my vagina was only about 3" deep and I only have 1 kidney. I had the reconstructive surgery with a skin graft from my right hip. It was successful but the news of never having a child devastated me. If any of you want to talk please contact me. I just decided about 3 months ago to seek therapy. After all this time. I have somuch to talk about concerning this condition. Thanks, Linda
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replied August 12th, 2012
Hi Linda,

My sister who is also 49 was also born without a uterus. She too had reconstructive surgery at 18 years old with a skin graft from her right buttocks to lenghten her vagina. She was recently admitted to a hospital as she is also suffering from sever depression. She has never had a true sexual relationship and needs desperately to speak to a good theraprist. I feel very sad and helpless but me and my family will do whatever it takes to get her back on the road to recovery. I just wanted to share my thoughts with you. It is good to know that such a forum exists and that she is not the only one dealing with this condition. Thanks for sharing your story.
sisdf
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replied January 18th, 2011
born without a uterus
hey ladies, Gosh I never thought anyone was in my same spot! I found out when I was 16 and hadn't started my period yet! I am now 28 and married and my husband is super understanding but I have dating men that were not! I would love for some of you to contact me! It is hard to deal with and nice to know there is someone else out there who you can talk to! please write me if you ever need to talk!
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replied May 19th, 2013
hi,i am 26 now,i am also born without uterus,is it possible to be married with this condition?
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replied January 24th, 2011
Uterus
I'm 32 & also have this condition. I never had the surgery but instead used test tubes to stretch the area & this worked fine & sex has never been a problem for me or my partners at all. If I decide to have kids my sister said she will carry it for me, but it is a lot to ask of someone.
To the mothers of daughters who get aggravated, I too was like this when I was younger. I would Lose the plot, yell,, throw things & once nearly crashed my car because my sister who has 2 kids (trying to make me feel better) told me I'm better off not having kids because they ruin your life. This does not help especially when it comes from a person who has or can have kids. It is also embarrassing so possibly a professional is easier to talk to. I also went to groups at the Royal Childrens Hospital in Melbourne part of the Adolescent Centre where my specialist Gyno ran groups for women with this condition to talk, this was helpful.
Generally, I'm ok with it now, benefits are not getting your period or needing contraception & not having to have pap smears etc. Telling people can be an issue but I've gotten over this & more freely tell people these days, though I didn't even tell my sister when I First found out bc I didn't want anyone to know or people telling others. Thinking about the positives, such as having overaries & options can be helpful. Talking about it helps & not dwelling on it & thinking the worste. It's hard at times but you survive & you can still do everything in life (except carry a baby) which some people without this condition choose or struggle to do. I'm a youth worker doing my Masters in Social Work, I have my own house near the beach & city & I travel every year. I've also had great relationships with men I was honest with early on & it didn't affect them at the time (most ended for unrelated issues, mostly my choice.) You can have a full life so don't ever think there is anything wrong with you, everyone is this world is different & every one has some kind of issue, some worse some better, all depending how you choose to look at it. Best wishes to you
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Users who thank JJazz for this post: vt9122 

replied February 16th, 2011
Re: You can servive this...
mscoop777 wrote:
HI my name is Linda. I will be 49 in march this year. I was 15 had never started my period. Did the gyno. visit and found out I was born w/o uterus, my vagina was only about 3" deep and I only have 1 kidney. I had the reconstructive surgery with a skin graft from my right hip. It was successful but the news of never having a child devastated me. If any of you want to talk please contact me. I just decided about 3 months ago to seek therapy. After all this time. I have somuch to talk about concerning this condition. Thanks, Linda



Oh my gosh ! My name is Anaeis. I am only 14 years old. I found out I dont have a uterus about 4 years ago? The thought of never having a baby really doesnt bother me now.. but I'm sure when I get older it wil. The only thought that scares me is how to tell my husband that we could never have a family unless he wants to adopt.. it always gets to me, I always think about it day and night. & everytime my friends talk about their periods I get so embarssed and have to lie about it. If you can give me advice on anything about this that would be great because youve been through this and I'm only 14 so it would be great to hear your advice! My mom doesnt really give me good advice shes just waiting for me to get the this other surgery when im 18 to open my vagina or something so I can atleast have sex when im married. but whats the point of that if you cant have a child? & the really werid part of all of this is how did I get this problem? I'm the only one in my whole family that has this. No one else does. It would be great to hear from you.
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replied April 25th, 2011
Hi Anaeis!
I found out about my condition a year ago and I was devastated and my mom didnt help me much get over the news... When I found out about this my bff was pregnant and that made this news that much harder for me... I know how you feel, hopeless Sad but dont lose hope, you can still have youre own kid just you need someone else to carry the baby... Also I need to get the surgery done as well but im super nervous Sad maybe you have some info on that...

it would be great to hear from you (:
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replied November 19th, 2011
born without a UTERUS
Hi,Anaeis and everyone i have the same situation am 31 now found out that i was born with out a uterus at 15 i feel the same way too..I'm the only one in my family with this situation. wow am so glad to know that there are others like me in a good way to share and learn from each others. Its hard trust me i been married twice and divorce just to the wrong person but i believe in miracles i will tell my story some day...lets all have faith just, ask your self who created us ? we just forget whos the creator of all things..thanks jes7
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