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Q: Born without uterus and cervix
asked by: malpal on May 19th, 2009
New User
When I was 15 years old my mother took me to the gyno. I had never had a period and it worried her. After a number of tests and follow up appointments, they came to a conclusion. I was born without my uterus and my cervix, but I have tiny ovaries and parts of my fallopian tubes (they didnt fully develop). I chose not to have the surgery thinking over time sex with my boyfriend would stretch out my vaginal canal. It worked a little bit, but now I am almost 20 and my vaginal canal is only 3 inches deep.

Anyway my question is:
This is a really difficult thing for me to ask. I am really nervous even writing this.


When I am getting ready to have sex sometimes I get aroused ( I dont know how else to say it other than "getting wet") and sometimes I dont.

What is the cause of this?
Does it have to do with my disorder or am I just nervous?


Thank You.
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Replies(4)
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Lydia32
replied on May 19th, 2009
Experienced User
That may be normal.

When you don't get aroused when getting ready to have sex, does the arousal come later or not? It's normal not to be fully aroused every time you go to have sex. Some times you're just not feeling it. Nerves can also have something to do with it. Arousal for women is both mental and physical.

I would suggest relaxing and trying your best to focus only on you and your partner. Think about things that make you feel sexy. you can even try doing things to get prepared beforehand. Light some candles, wear lingerie, put on soft music, have your boyfriend wear silk boxers, whatever gets you in a sexy mood. Also, tell your boyfriend when you need a bit more foreplay to get yourself going. Using lubricant in the times when things aren't as wet can help, as well.

If you have other problems, you should see your doctor, but I don't think this is anything to worry about. If you said you never feel aroused, that would be a different story.

I hope some of my suggestions help. The main thing you can do is relax and enjoy the moment. But don't get frustrated if sometimes things don't go as smoothly. Frustration is the biggest arousal killer.
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sarahrocky1
replied on May 31st, 2009
New User
I am 20 years old also and I was born without a uterus also, I also have fallopian tubes and overies, I was also 15..same scenario...I have the same problem and I am married have been with him for 3 years...sometimes I "get wet" and sometimes right in the middle of it, it goes away! I havent been to the gyno since the day I found out, but I really should go again to find out why this is happening...theres some other questions I have also such as, are my hormones balanced? because I have really been very moody and emotional towards my husband the past 6 months! Ive always been so happy and bubbly my whole life until now. Its great to find someone that is experiencing the same thing as me, I wish there was a way we could get eachothers email and talk more!
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Rosie01
replied on September 19th, 2009
New User
Reading your post brought tears to my eyes. I am 31 and was born with the same problem. I had the surgery when I was 18, and then my vaginal canal started to close up because I wasn't advised to use the proper equipment to keep it open. This has been the hardest part of my life and so unfair. I have never spoke to anyone else who had the same problem, it's horrible but I try not to think about it. I have a bf and have been with him for years I Also have thought about getting the surgery again, only thing that is stopping me is that it was a lot to go thru. I get wet when I am aroused the doctor said after the surgery that would stop but it didn't thank God. I don't believe it is because of ur problem a lot of women need lubrication. I know what you go through and if I were you I would opt for the surgery and do the proper after care. It feels good to type this all out because I never speak of it.
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Rachel_12343
replied on October 10th, 2009
New User
Rokitansky-Kuster-Hauser Syndrome
hey, I'm 17 and have just been diagnosed with Rokitansky-Kuster-Hauser Syndrome.
Its quite amazing to know that there are so many people out there with this condition, but also sad.
I've been told I cant carry my own children but a sarrogate mother can, and i have a 3 cm dimple for a vagina. I'm waiting on the call from sydney to go down and stay in hospitial, and they are going to try the dilater thing with me, which im not to sure will work as i pee anytime something goes in my vagina, i find this quite odd btw and does or did anyone else experience this? anyway I'm not to sure what the point in posting this is, but i thought i would anyway. Anyway goodluck and sorry to hear that you's too are going through this, if not worse situations as i.
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