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Born without uterus and cervix (Page 1)

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When I was 15 years old my mother took me to the gyno. I had never had a period and it worried her. After a number of tests and follow up appointments, they came to a conclusion. I was born without my uterus and my cervix, but I have tiny ovaries and parts of my fallopian tubes (they didnt fully develop). I chose not to have the surgery thinking over time sex with my boyfriend would stretch out my vaginal canal. It worked a little bit, but now I am almost 20 and my vaginal canal is only 3 inches deep.

Anyway my question is:
This is a really difficult thing for me to ask. I am really nervous even writing this.


When I am getting ready to have sex sometimes I get aroused ( I dont know how else to say it other than "getting wet") and sometimes I dont.

What is the cause of this?
Does it have to do with my disorder or am I just nervous?


Thank You.
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First Helper urlela
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replied May 19th, 2009
Experienced User
That may be normal.

When you don't get aroused when getting ready to have sex, does the arousal come later or not? It's normal not to be fully aroused every time you go to have sex. Some times you're just not feeling it. Nerves can also have something to do with it. Arousal for women is both mental and physical.

I would suggest relaxing and trying your best to focus only on you and your partner. Think about things that make you feel sexy. you can even try doing things to get prepared beforehand. Light some candles, wear lingerie, put on soft music, have your boyfriend wear silk boxers, whatever gets you in a sexy mood. Also, tell your boyfriend when you need a bit more foreplay to get yourself going. Using lubricant in the times when things aren't as wet can help, as well.

If you have other problems, you should see your doctor, but I don't think this is anything to worry about. If you said you never feel aroused, that would be a different story.

I hope some of my suggestions help. The main thing you can do is relax and enjoy the moment. But don't get frustrated if sometimes things don't go as smoothly. Frustration is the biggest arousal killer.
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replied May 31st, 2009
I am 20 years old also and I was born without a uterus also, I also have fallopian tubes and overies, I was also 15..same scenario...I have the same problem and I am married have been with him for 3 years...sometimes I "get wet" and sometimes right in the middle of it, it goes away! I havent been to the gyno since the day I found out, but I really should go again to find out why this is happening...theres some other questions I have also such as, are my hormones balanced? because I have really been very moody and emotional towards my husband the past 6 months! Ive always been so happy and bubbly my whole life until now. Its great to find someone that is experiencing the same thing as me, I wish there was a way we could get eachothers email and talk more!
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replied March 30th, 2011
I was 18 when I found out I didn't have a uterus but I do have overies and fallopian tubes. I go to a Ohio State Hospital for my gyno and my hormones are balanced and I have talked to them about me hardly ever getting wet. They said it is normal because you know the pain is coming so my body loses the good feeling. I go to my gybo every 4 to 6 weeks over this. I am using dialtors off and on to stretch my vagina out but its so painful to use I don't always use them. They have also tried estrogen on me which really helped me out a lot along with Replens. What it does it when you put it inside of you it cleans away all of the dead skin cells and allows new and good ones to come back which in turn takes away some pain. both of those have helped me so much. if you have any questions or just wanna talk to someone else who shares your experience PM me.
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replied April 12th, 2011
I AM 43 YEARS OLD AND ALWAYS THOUGHT I WAS ALONE.
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replied April 23rd, 2011
Its nice to know people around just like me. I just had sex with my bf last night and I was bleeding. This really made me sad. I am 35 Sad
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replied October 22nd, 2011
Was it the first time you were bleeding?
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replied June 16th, 2012
I to was born w/o a uterus and a vagina/cervic.i found out at 16 yrs old I was devistated, I had reconstructive surgery when I was 18 on my vagina to make it longer by useing skin graft from my butt I felt so alone and scared and sad I had to watch my sisters have babys but when I was 32 I was determined I wanted to be a mom so I adopted a baby girl on my own from india she is now grown and just grauated from college and I believe I was born this way because god knew I was special and I would be able to love any baby as my sisters told me they would never be able to do what I did but it was the best thing I ever did and made a difference to a little girl I love so much. I have had a good sex life I had to use ky alot as when i grew older things got drier When I was 47 I went through the change and had bad hot flashes. but now am 56 and I can say dont give up you can have a good life only you have the power to change your life to make it better and thats what I did ask me any questions I will be happy to
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replied December 21st, 2012
I WAS born like you my womb is hard as a rock small as walnut partial vagina my other parts aren't developed I grew breast though I also only have one kidney I just found out a few years ago about that my husband is understanding
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replied July 6th, 2011
I was born with out uterus and vaginal. I have ovaries though. I had to grow my own vaginal to it was so painful. Now I'm 38 my ovaries shut down on me in 2004. I started having Premenopause in my early 20's. Than my sex drive went down in my late 20's. I do take natural stuff for my menopause. It is helping me alot. I do sometimes bleed after sex. KY warming jelly helps. I wonder how many of us in this world.
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replied June 16th, 2012
I to was born w/o a uterus and a vagina/cervic.i found out at 16 yrs old I was devistated, I had reconstructive surgery when I was 18 on my vagina to make it longer by useing skin graft from my butt I felt so alone and scared and sad I had to watch my sisters have babys but when I was 32 I was determined I wanted to be a mom so I adopted a baby girl on my own from india she is now grown and just grauated from college and I believe I was born this way because god knew I was special and I would be able to love any baby as my sisters told me they would never be able to do what I did but it was the best thing I ever did and made a difference to a little girl I love so much. I have had a good sex life I had to use ky alot as when i grew older things got drier When I was 47 I went through the change and had bad hot flashes. but now am 56 and I can say dont give up you can have a good life only you have the power to change your life to make it better and thats what I did ask me any questions I will be happy to answer you.
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Users who thank suzyQ1955 for this post: awesomeeric 

replied June 9th, 2012
Me too
Hi, I have the same condition. It is impossible for the gyno to find my cervix. I still don't know if i have an uterus. anyway I have never had periods and everything else is mostly the same as you guys. It's good to know that I am not the only one.
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replied September 19th, 2009
Reading your post brought tears to my eyes. I am 31 and was born with the same problem. I had the surgery when I was 18, and then my vaginal canal started to close up because I wasn't advised to use the proper equipment to keep it open. This has been the hardest part of my life and so unfair. I have never spoke to anyone else who had the same problem, it's horrible but I try not to think about it. I have a bf and have been with him for years I Also have thought about getting the surgery again, only thing that is stopping me is that it was a lot to go thru. I get wet when I am aroused the doctor said after the surgery that would stop but it didn't thank God. I don't believe it is because of ur problem a lot of women need lubrication. I know what you go through and if I were you I would opt for the surgery and do the proper after care. It feels good to type this all out because I never speak of it.
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replied September 15th, 2011
What do you mean by Vaginal canal closing, I to was born without a Uterus and cervix and never hear of a vaginal canal closing and Im 43 years old, did I miss something ??? and what kind of surgery are you talking about ???
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replied October 10th, 2009
Rokitansky-Kuster-Hauser Syndrome
hey, I'm 17 and have just been diagnosed with Rokitansky-Kuster-Hauser Syndrome.
Its quite amazing to know that there are so many people out there with this condition, but also sad.
I've been told I cant carry my own children but a sarrogate mother can, and i have a 3 cm dimple for a vagina. I'm waiting on the call from sydney to go down and stay in hospitial, and they are going to try the dilater thing with me, which im not to sure will work as i pee anytime something goes in my vagina, i find this quite odd btw and does or did anyone else experience this? anyway I'm not to sure what the point in posting this is, but i thought i would anyway. Anyway goodluck and sorry to hear that you's too are going through this, if not worse situations as i.
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replied January 31st, 2010
Hi I'm 35 and I was born without a cervix, I do however have a not fully developed uterus, I never started my period's but did get the warning pain's, my mum used to tell me it won't be long now, but they never came. I'd been with my boyfriend from the age of 16, and at 18 we decided to take our relationship further. I did get wet and aroused but when he tried to enter me he "couldn't get in" he was older than me and wasn't a virgin. I bled like mad after tryin sex and mis-took that to be my first period. I went to the doctors 3 or 4 month's later to find out why I'd had a period but non after.

He sent me for a pregancy test, (because i'd been sexually active) when that came back neg, he did an internal and told me I can't have had a period. He sent me to a specialist, who after a physical exam thought I'd been born without any of the bit's until my mum told her I got pain's in my tummy. she explained that the vaginal canal had been stretched because I'd been having sex. Regular sex has stretched me to the size of my boyfriend and kept it there.
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replied February 13th, 2010
I to was born without a uterus
Hi, I am 51. When I was 14 and still hadn't started my period my mother took me to the dr to find out why. They put me in the hospital and did exploratory surgery and that is when they found I had no uterus also, my vagina was also closed up and not developed right. I do have my tubes and ovaries though. Of course I was devastated to find out that I would never have children. I did not have the surgery until I was 17 and getting ready to start my Sr. year in High School. But yes it hurt never having had a child of my own. But I know that God had his reasons and I have learn to except them. I have a wonderful husband who loves me unconditionally. I can relate to all the posters here. Now my dr told my mom that although I never had a period that I would go through a change of life. Sometimes I think I am going through it now. But it is hard to tell. I felt the need to post this to let you all know you are not alone. There was at the time I had my surgery another woman who had the same problem.
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replied September 15th, 2011
I am 43 years old and always knew Iwas born with a uterus but didnt find out that I dint have a cervix untill I was 35 years old Yes I was very sad i could never have childeren of my own but like you i know god has his reason and mom said we should never ? what they are.as for the change I was told I would never go through it because I have never had a period but 3 months ago I started getting hot flashes and night sweat and i thought ok if I have to deal with this my life is over and I didnt want to go oh hrt so I went to walmart and bought Black Cohosh Extract pills and started taken them and no more night sweats and hot flashes are gone and never got the mood swings, but I laways thought I was the only one born this way hate to see there are others but glad to fine this site after all these years,,
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replied June 23rd, 2012
hi I am 56 and at 47 I started having hot flashes so bad and I took premerin for years and have trouble getting wet so I use ky to help also use premerin cream once a week which helps and will thicken the walls of my vagina so the gyno says but I dont feel like I want sex to much anymore do you feel that way?
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replied February 14th, 2010
HI Everyone,
I was born like the rest of you. No uterus, and a very small "dimple" that they called my vagina. I was 16 years old when I found all of this out. I went thru the ultra sound " the nurse pulled me aside and asked if I was sexually active" the answer was no, then told me I might just have a small uterus or a thick hymen. Then the MRI when they told me they couldn't really tell. And then finally the exploratory surgery when my life changed forever. I was devastated and to this day still am, 10 years later. I went to the specialist to talk about the surgery to make me a vagina but decided I couldn't go thru with it. So I started to dialate. Before I was ready/done I was raped. I was tore open and bled like crazy. After this there was no more reason for me to dialate. I know had a vagina, or at least the very good start of one.
Since all this I'm now married to what I think is the greatest guy in the world. we have been to the fertility clinic and were going to go with a surrogate thing, but as luck has it my ovaries are too high and can't be reach. We would have to go out of provence so I could have surgery, and we still wouldn't know if my eggs were usable. I decided that I could go thru with this, if my eggs weren't usable I know I wouldn't survive. So then we were off to the adoption agency. There we found out that according to the government we are unfit parents until we prove are selves otherwise. So it's ok for the crackheads down the street to have kids and raise then but I'm not good enough yet. They also let us know that for 21 day the birth mother could take the child back without any warning and there would be nothing I could do about it. And for myself I knew that I would never survive that. So that was now not an option for me.
Then came my next step which was international adoption. Which I was looking forward to. I was hoping to get a child from ethiopia. So we went to the bank to remortgage our house so we could afford to adopt. At the time it was 10 thousand dollars. By the t
me everything was said and done with the bank, the prices of doubled and now the adoption agency is no longer taking applications.
Yesterday I told my husband that I'm done. I can't keep going thru this heartbreak. I can't keep getting my hopes up only to have them shattered again and again. When I first found out about my problem I was a mess. I use to cut myself, and for you who don't understand that, physical pain felt better than emotional pain. I also became anorexic, and suicidal.
My friends all try to make me feel better but the they say I want to smack or yell at them for. They tell me things will work out or that there are worst things, but to me there isn't. I guess I just want to hear what someone with the same problems think. Am I being weak? No one else will ever understand but someone who has had to live with this. Please give me feed back. I've been looking for a chat room for people with this problem but have yet to find one. I need to talk to other people who have gave thru this time of experience. I need some help.
Thanks,
CJ
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replied June 24th, 2011
Hi CJ! I have the same problem and understand everything you are going thru. I would love to chat with you and help you get thru this. I was also devastated about not having kids, but we are in the process of adopting a little girl. It has been a rollarcoaster! please email me!
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replied September 15th, 2011
I to know what you are going through your story sounds just like mine...
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replied March 13th, 2012
I too have the same issue. i was 15 or 16 when i was diagnosed with vaginal angenesis, and it didnt really bother me when i was younger (i was actually thankful) no period and no chance of babies at a young age..AWESOME! but now that i am in my mid 20s and im watching all of my friends around me have children im bothered. I have gone through a great deal of depression, i question why me, i cry, ive distanced myself from my best friends who have kids, i dont feel like anyone understands, im angry, i have the worst nightmares about it. Its the worst when i dream that i am pregnant and it feels sooooo real, and i wake up and im not and not only that i know i will NEVER be! i hate it....im just so sick of waking up crying and upset and wondering why me?!? I havent tried to actually have kids yet, but i fear the process of it!
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replied June 9th, 2012
Hi. Everything in my life sounds just like yours. I have never had a period in my life. At age of 15 i found that i had hypoplasic uterus. everything was Very small like a baby. I thought that that problem would solve itself with time as the doctors said. But it never changed. I'm 25 now and everything still the same. Years ago, I vent to the Gyne and he could not find my cervix. I thought that it was just because my vagina is very small. A couple of days ago, I went to the doctor for a cervical exam and surprise. No cervix again. No lubrication and nothing. That's why it hurts so much while having sex with my husband. Now i see more impossible the option of having children. But I feel relieved that I am not alone as I thought I was.
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replied October 3rd, 2012
Wow! Here I was thinking I was the only girl born with this problem. My mom also took me to the gyno when I was 15 because I had never had a period. I found out on my 16th birthday that I was born without a cervix (I have ovaries, fallopian tubes, a uterus & started with a very small vagina) and would never be able to carry my own children. I'm 22 now...the only people in my life who know are my parents and my doctor. When I first met with my specialist (who is so fantastic and encouraging) she told me I had two options--dialating or surgery. I chose dialating. I've felt so embarrassed and ashamed even though I know it's not my fault and that I was born this way. I'm pretty good at pushing it out of my head and not thinking about it, except that for me that also means pushing guys away. I am so scared to tell my best girl friends about it, so I've never mentioned it to guys which is why I'm a virgin at 22. I have no idea how to even bring it up with the guy I'm with right now. Obviously for him sex with me will be very different since my vagina isn't totally stretched. Any advice ladies? I so appreciate finding this forum tonight. Feel free to email me Smile
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Users who thank mss2 for this post: GRK 

replied October 3rd, 2012
hi my name is suzy I am 56 yrrs old when I was 16 I went through what your going through and it was a big secret no one knew about it but my parents and doctor. i did not have a chose back than they just did surgery and made a vaginia from skingraft on my butt, they had to remove the hymmn i have no cervix, a few nubbin tissues where my uterus should be my overies were fine and i have my right fallopin tube and partial of my left tube so with the diolation did you have your hymmn or did they have to remove it? I never told any guy i was with because i was ashamed.but maybe you need to tell your boyfriend you were born with a syndrome called mrkhs and let him know .i read another girls that said when she had sex with her boyfriend it findley stretched to his penis size you might have to use ky jelly so theres not so much friction but take your time when you first have sex and tell him he has to be gentle
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replied October 4th, 2012
Cervix
One of my cousins daughter around 14 is diagnosed with no cervix and lower one third vagina is formed and remaining is closed, last year. Uterus is good other organs are good. Since the absence of passage(vagina) menstrual blood was accumulated in the pelvis and she developed abdominal pain. Doctors are tried to retain uterus as it was functioning good and made a vaginal canal by grafting. Then they put a T-tube in to the uterus coming through the vagina. Evry thing was fine for one year, as she was geting menses regularly without any complaint. Recently she again complained the abdominal pain and with continuous bleeding.
We rushed to the same team of doctors, on the ct scan they said the tube may be blocked and the vaginal canal which is created is also collapsed. They advised us to get the tune removed, but they are not understanding the next proceedure. As per the doctors it's better to remove the uterus for the betterment of her health. We are in a big confusion now as it will spoil the life of the girl. Will definitely approach other doctors to find a better solution . Will post if we get some source,
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replied April 19th, 2010
sans uterus
hello, I''m in my mid 40s and have the same story. No mens. then dr. informed me I had a dimple which he said I could use a diolator (instead of surgery) I''m still grateful for that, and also grateful they didn''t have to do exploratory surgery, this was 1982 (?). Dr. said when I became sexually active I wouldn''t need the diolator, which was true. I did however suffer thru some painful sex at first. Had a lot of anxiety during sex in my early twenties. I did however have no problem with wetness when I finally knew how to enjoy things. My worry was that I''d be too tight for my partner. Ugh! What we girls go thru. I''ve always had painful ovulation, which for years didn''t even know what it was. all you girls have my compassion, it sucks not being able to choose to have a child etc. My dr. told me when I was 16 that I''d still go thru menopause, I''m sure he''s correct cuz I have some crazy mood swings with ovulation, hormones are still there so pretty sure we''ll all go thru the change!
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replied April 30th, 2010
Community Volunteer
It is possible that she was born without a uterus or cervix...If this is the case she will not have her period...It is important to doctor with a competent physician on this....X-rays must be taken as she cannot be forced to make this opening happen....It is highly possible that as she ages and comes into the time in her life where sexual relations will be part of her life, that this will have to be surgically opened to allow entry...Not to worry...Many women have this and lead a happy life...Right now if I were you I would not worry....Take each day at a time and enjoy life...Believe me it could be much worse...Take care...

Caroline
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replied May 1st, 2010
HI XXVINTAGEXX,
I don't want to scare you but if it should happen that she was born without, if you could find out before she hits her teens if she was born without a uterus or cervix it might be easier on her if you explain things to her before all her fiends start talking about their periods so she doesn't start wondering whats wrong with her. I remember all my fiends talking about it and me wondering why I haven't gotten mine yet and them thinking it was weird; therefore me thinking there was something wrong with me. Also if it turns out she was born without I know it will be hard on you but you can't let her know how bad it bothers you. My mom still to this day cries and blames herself over this even though she had no control over it. My mom is my best friend and I can tell her anything but when it comes to my "problem" I can't talk to her openly because I don't want her hurting or blaming herself. I hope this helps. Good luck to the both of you.
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replied September 15th, 2011
I do agree talk to her before she is a teen i didnt find out untill I was 16 and knowing i would never have any kids was the hardest thing to deal with and the thought of never giving my mom grand childeren was even harder but mom use to say that god made this choise for me and maybe I was this way so I could help my brother raise his 4 kids and their kids who i do love as my own,
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replied May 23rd, 2010
Born with CAIS
hi everyone, i dont really no where to start but after reading your stories i thought id post my story.

i was having regular hospital appointments when i was a child and never really understood them as i always felt the doctor was talking to my mum and not to me so when i was 15 i was told i would never have periods and i couldnt have children, at first i was very confused to why he was saying this but i got a printed booklet from the doctor explaining everything, i was born with no womb,my condition is called complete androgen insensitivity syndrome or CAIS. over the next few years i began to feel angry and looking for someone to blame, i thought its not fair, why me?. i never told any of my friends as i was too embarrased. my vagina is normal but im still a virgin.im now 22 and i still havnt come to terms with the fact i can never have children but i guess its something i got to live with. i have been on estrogen tablets since i was 13 and will be for the rest of my life. so if there is anyone out there who has the same condition as me please get in touch as i would really like to meet someone who knows what im going through. its nice you can all share your stories and im guessing you have had the same questions as me so thank you very much for listening to me babble on. take care
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Users who thank tigereyez01 for this post: psychobabble 

replied June 26th, 2010
Born without Womb and Cervix
Hi All,

Meet your sister, I too was born without a womb and cervix.

My story is at 18 I hadn't had periods, everyone had told me they will come eventually. But I went to the doc and had scan done and it didn't show up. So just before my 19th birthday I was sent in for a D&C and much to the gynaecologist surprise he found nothing and was really excited (to my horror) and kept me in hospital for 2 weeks doing tests as he had never seen this, but didn't tell me until the end of the 2 weeks. So off I went and went into a depression which wasn't noticed for 4 years until I was on a student exchange and the mother I lived with who recognised my depression. I got some help for that and moved on as much as I wanted children it wasn't possible. After 4 years I had my 1 ovary and 1 tube removed and have been on HRT implants since, which make my life a lot easier. I got married to a wonderful man and we now foster 2 nieces, which is a bonus.
I do understand the pain and frustration others must be going through with this condition. If people think it's easy to live without periods, well it has it's pluses, but it has more pain than some people can imagine.
I believe I'm a survivor when it comes to life, but understand that my life has no future after me (without having children of my own)and that is a hard one to live with.
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replied July 3rd, 2010
Vaginal Agenesis
Hi everyone,

First I'd like to say a thank you to everyone posting. I was fifteen when my mom took me to the doctor because I still wasn't having my period and that's when they told me that I had no uterus. It wasn't until just a while ago that I found out the actual name for my little situation.When I first found out I cried...a lot, but my mom told me that God knew what he was doing and that I could be a great mother to a child who was in a horrible situation and needed a good home. Of course I didn't agree with her right that second, and while I am religious,I was too concerned about the fact the God would let crackheads, rapists, murderers, and all around disgusting people be able to give birth to children and yet I couldn't. I've seen so many stories about women who abuse their children, or watch them be abused and think "Why cant I have my own child when these monsters can? It's not fair." Of course I don't think that now, and for a while, I was perfectly alright with the way I was, but after reading a few articles about this condition, I started to feel a little bit.....lonely. I could tell that my friends, while supportive, only paid attention to the part about me not having any periods. (Seventeen? No periods? No possibility of kids? WooHoo!!!)They didn't understand how bad it felt not to have the choice of children, so for awhile , Ive been feeling like a bit of an outcast. Like a social leper. But after reading these posts, I don't feel as alone anymore. I realize that there are other women with the same problem that I have that went on to live great lives so I decided to no longer feel sorry for myself.

Thanks Again,
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replied September 15th, 2011
I TO FELT THE SAME WAY AS TO WHY GOD MADE ME THE WAY HE DID , I FELT LIKE GOD HATED ME I AM A GOOD PERSON BUT I WILL NEVER BE A MOMMY THEN MY MOM TO TOLD ME THAT GOD MADE ME THIS WAY MAYBE TO HELP MY BROTHER RASIE HIS 4 KIDS AND THEIR KIDS WHO I LOVE HAS MY OWN BUT WAS ALWAYS SAD I COLD NEVER GIVE MY PARENTS GRAND CHILDEREN OF MY OWN AND NOW AT 42 I STILL WOULD LOVE TO BE A MOTHER BUT HAVE LEARN TO LIVE WITH THE PAIN AND HURT..
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replied July 5th, 2010
Hi Beauty70,

I'm glad you have decided to not feel sorry for yourself as there are enough people out there who will. So pick yourself up and do whatever you want that makes your life feel special and full.

Go girl, life isn't that long but it can be good!!!
Enjoy
Babyless xxx
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replied July 6th, 2010
I, too, was born without a uterus or cervix, and my vagina was not completely formed. I found out when I was 14 years old. I had developed normally but had not started my period. My mom took me to the gynecologist. He did a pelvic exam and ordered an ultrasound. The ultrasound technician saw that I did not have a uterus or cervix, and my vagina was not formed correctly. This condition is known as Mayer-Rokitansky-Kuster-Hauser Syndrome (MRKH). At age 17, I had the McIndoe procedure (surgery) to create a normal vagina. I am very glad I chose that route. I have had a very successful outcome. I have a twin sister, who was born with a horseshoe kidney (basically only one kidney). On the day of my diagnosis, she told me, "It's okay sis, I will carry a baby for you one day". Fourteen years later she did just that, and I am the proud mommy to my beautiful three year old daughter! I have told my twin sister if she ever needs a kidney, I will donate one of mine to her. She gave me the BEST gift when she carried a child for me. I will be forever thankful to her and her husband for their unselfish act of love! If any of you want to email me, just reply to my post and I will be glad to talk to you about any of this. I will leave you with a quote I have always found very comforting:
"Do not spoil what you have by desiring what you have not; remember that what you now have was once among the things you only hoped for"
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Users who thank AngWad for this post: toots95 

replied April 11th, 2011
I need advice
my best friend is 21. She was born without a uterus also. She recently broke up with her boyfriend of five years. She thinks that no one will want to be with her when they find out she cannot have kids. The poor thing is gorgeous and fun-loving and it kills me and it just breaks my heart. I'm trying to help her find support groups. If any of you could give some advice on dating and how and when you told your boyfriends, I would really appreciate it. Thank you so much. You are all so strong.

Sincerely,

Kylee
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replied September 15th, 2011
I know how she feels I was so scared to tell my boyfriend but I know he needed to know and it turns out he told me he didn't want kids I still think he just said that to make me feel better but 24 years later we are together he is the best husband i still feel sad that i cant make him a daddy but we have the best niece's and nephew's that we keep all the time so lifes not so bad you just have to keep in mind god has a plan for you and one day he will let you know what it is,
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replied December 9th, 2011
Hi my name is Ramona I have questions for you about someone else to carry the baby if you can please email me thank you
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replied May 20th, 2012
no womb
Hello. My name is Canice, i am 36 years old. At 19 I was told I was born without a womb, the most devastating news ever. I wonder if you might provide your email address so we can chat. I have so many confusing, unexplained questions and fears that come with this condition. I would love to have someone to discuss with. I am amazed that there r si many people out there facing the same trials. I look forward to hopefully speaking with you, Candice.
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replied June 29th, 2012
I was told I have mullerian agenesis
Hi...I just found out about a month ago that I have mullerian agenesis so no uterus & a short vagina. I'm 33 & had been to many different doctors before because I've never had a period either but no one really told me why until now. I hadn't been sexually active until recently & that's when I found out that besides the problem of having no periods there was something wrong with my vagina because he couldn't penetrate me. Knowing that I couldn't have kids was bad enough but the fact that I can't even have normal sex just makes me feel like I'm not normal & like others have mentioned I wonder why me, but then again I think that it could be worst & I try to think positive but it's so hard. I've only told the guy I'm dating about me not being able to have kids & he said he didn't care but I'm afraid to tell him about not being able to have sex. Can someone tell me dilators work & how long it takes to feel a difference?
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replied July 12th, 2010
Born Without a Uterus or Cervix
Hi i'm 14. all of my friends have gotten their periods.
i haven't gotten my period yet, last week my mom took me to the gynecologist.
i had a vaginal cyst but then it burst, so we went for a check up on it.
the gynecologist told me i might have no ovaries or it could be no uterus.
i'm very nervous about it.
but thanks to all your stories it's helping me.
so i'd like to thanks yous and wish me good luck!
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replied July 16th, 2010
RE: livyd
To livyd: Have you developed breasts and/or pubic hair? Because if you have, that means you have at least one ovary. If you did not have any ovarys, you would not have breasts or pubic hair. It is possible that you just haven't started yet, but it's also possible that you do not have a uterus. Write me.
Take care,
AngWad
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replied August 5th, 2010
My Daughter was born without a cervix
My Daughter was born without a cervix. She's 16 goin on 17 and she hasnt had her menstrual cycle so I too took her to the dr and also because of a hernia that she had on her abdomen. When she was a baby she had a hernia surgery then when she was 6 years old she had another hernia and had to have surgery again. My question is wouldnt they had noticed then after two abdominal surgeries that there wasnt a cervix present? I am so worried and sad for my baby!! Question
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replied August 5th, 2010
Bruce,
The answer is no. There would have been no way, unless they performed a pelvic exam or ultrasound of female organs, for them to know during the abdominal surgeries...it takes a pelvic exam and a ultrasound of the female organs to diagnose this. I don't know of any female born without a uterus, cervix, ovaries or correctly formed vagina that have found out earlier than age 12. It's when the girl develops normally but her period fails to come, that finally the mom or dad decide that she needs a check-up at the OB/Gyn. I was 14 when I was diagnosed with no uterus and cervix. Curious: does your daughter have a uterus? I hope this post helped some...I am here if your daughter needs someone to talk to! ~Angela
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replied October 23rd, 2011
Hi,
I am also with the same sad story that i was born without uterus. I am married for 5years, my parents have married to the guy, but they have never told him that i can have kids of my own, i never have guts to say the truth to my hubby, he is nice guy, but now if say the truth my marriage will be broken and it will cause lot of family problems, i am not having guts to say the truth. But my husband wants to have a child and even i too want to have a child. But not sure how to deal with this situation. kindly please help me.
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