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Blue Purple Toes (Page 2)

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November 17th, 2010
VASULITIS
Auto Immune Disorders: I have had Rheumatoid Arthritis for years and was doing well taking Methotrexate weekly. Gradually went off of it over a period of two years. Shortly after going off of it, starting getting red blotches on my feet and red toes. This gradually moved up my legs and then the numbness started. My GP sent me to a skin specialist first and was told I have livido reticularis. He sent me for extensive blood work including testing for lupus. The lupus test came back negative and he then told me to take aspirin daily as I was at risk of a stroke. Next my doctor sent me to a rheumatologist as the numbing in my legs had increased and also moved to my arms. I was put back on Methotrexate and also prednizone to try to get symptoms under control. She sent me for extensive blood work also. In the meantime I was sent to a neurologist and given an EKG to check for nerve damage. That came back positive. When my blood work came back I was diagnosed with Vasculitis, ANCA positive. Since then I have had pneumonia, and also chemotherapy to get the vasculitis under control and stop the never damage. IF YOU HAVE BEEN TOLD YOU HAVE "LIVIDO" DON'T JUST ACCEPT IT. This disease is caused from an underlaying factor, in my case VASCULITIS. I would appreciate communicating with anyone that has this rare disease.
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replied January 11th, 2011
Re: Blue Toes/Fingers During Showers
Ok, I have read this whole page, no answers. My 8 yr. old daughter was taking a shower this morning. During the shower, her fingers and palms started turning blue, so blue that they looked as if they had been dyed. After she got out and dried off it started fading. Now it is completely gone. The shower was hot, so I know it was not because of the cold. I am taking her to the doctor, I will post back with the doc's explanation.
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replied September 18th, 2011
sounds similar to my daughter shes 14 and she has had this happen but she also has blue feet alot lately but they dont feel cold ! having tests done at the moment.
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replied January 22nd, 2011
I have this same problem, and I am on a generic form of adderall. I switched to a new brand, a few days before this started. Very curious...
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replied February 7th, 2011
Purple/red toes and feet
I think you should look up Erythromelalgia and see if you have some of these symptoms. I went to several different doctors and test after test and nothing significant came about until I researched further and a doctor diagnosed me with Erythromelalgia which sounds somewhat similar to your symptoms. It's a very rare disease and most doctors are not familiar with it. If I were you I would see a Neurologist and have a spinal tap done. Good luck!
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replied February 28th, 2011
My husband and daughter have toes that sound like what all of you have. We were told by a doctor that it was "hydrotic eczema and were told to apply the "greasest" lotion/cream we could find. We did and it relieved the pain, reddness and discomfort. Here is a site that may be helpful or "Dogpile or Google" it yourselves.
Hope this helps.
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replied April 30th, 2011
Hey everyone. I was just wondering if anyone had heard back from their docs yet or have had new symptoms. ... I was so shocked to see how many of your stories read exactly like mine ...

The symptoms started about a year ago. The most consistent is the joint and muscle pain, which is, at times, debilitating. I also get what looks like the livedo reticularis rash on my elbows and knees (and occasionally on my legs, arms, and abdomen). The palms of my hands and my feet often turn bright red, a brownish-purple color, or blue. I have recently noticed significant hair loss (unusual, because I am still in my early 20s). I have become extremely light sensitive in the past few months. I am just generally tired all of the time, and lately will lose my breath just walking up 3 flights of stairs (just a year ago I was running a couple miles a day). I have also noticed that I have much more trouble concentrating in these past fees months ... sometimes this is so bad that I have difficulty writing an email.

I have been to a bunch of doctors, who have tested me for everything they could think of ... and still no luck. the results of my ANA were "suspicious" (according to the rhuematologist) but still considered to be in the normal range. I have been tested for Lyme several times ... all negative. As of right now, the best diagnosis the doctor had come up with is "unknown autoimmune disease". I am getting so frustrated ... I am way too young to be sitting home sick almost every day, and I am getting worried that while the doctor continues to look for answers, all of this could be causing some sort of serious damage to my body that I just don't know about yet. Any feedback would be appreciated!!
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replied September 18th, 2011
Sounds a bit like lupus ,do a bit of research on that see if it rings any bells....goodluck love
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replied April 30th, 2011
Hey everyone. I was just wondering if anyone had heard back from their docs yet or have had new symptoms. ... I was so shocked to see how many of your stories read exactly like mine ...

The symptoms started about a year ago. The most consistent is the joint and muscle pain, which is, at times, debilitating. I also get what looks like the livedo reticularis rash on my elbows and knees (and occasionally on my legs, arms, and abdomen). The palms of my hands and my feet often turn bright red, a brownish-purple color, or blue. I have recently noticed significant hair loss (unusual, because I am still in my early 20s). I have become extremely light sensitive in the past few months. I am just generally tired all of the time, and lately will lose my breath just walking up 3 flights of stairs (just a year ago I was running a couple miles a day). I have also noticed that I have much more trouble concentrating in these past fees months ... sometimes this is so bad that I have difficulty writing an email.

I have been to a bunch of doctors, who have tested me for everything they could think of ... and still no luck. the results of my ANA were "suspicious" (according to the rhuematologist) but still considered to be in the normal range. I have been tested for Lyme several times ... all negative. As of right now, the best diagnosis the doctor had come up with is "unknown autoimmune disease". I am getting so frustrated ... I am way too young to be sitting home sick almost every day, and I am getting worried that while the doctor continues to look for answers, all of this could be causing some sort of serious damage to my body that I just don't know about yet. Any feedback would be appreciated!!
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replied July 10th, 2011
Red palms, face, feet, and mercury toxicity
Alright, I had scoured the net for months because I suddenly would turn bright red on face, neck, shoulders, and chedt after eating anything. I was further motivated to discover the cause of this when I started getting red palms and feet (mainly the toes and about 2" inward) from doing activity requiring standing or walking. I have had horrific migraines for years, so I dont know if they are necessarily related.
To cut to the chase, I stumbled across a description of mercury toxicity (poisoning). I was shocked at how many syndromes and diseases this condition can rightfully take credit for. For me, it also makes sense because just prior to the "redness" issues (oh, and extreme exhaustion along with it if I had to perform tasks that triggered the reaction) one of my molars chipped which then exposed a "silver" dental filling.
I dont beleive everything I see/hear/ read. I did some research. Lets just say this: if dentists need to call hazmat when they need the amalgam materials disposed of, why are they rooting it in our mouths? I have read the arguments for and against these mercury fillings. But, how many do you have? How large are they and how long have you had them for?
I have read a significant number of posts here mentioning Adderall. Though it may be worth investigating, let me ask you to read up on the stuff mercury can cause. ADD (or AD/HD) is one of the "side effects" of this condition. Therefor, I think it would be worth finding the cause and dealing with it, rather than blaming a medication you take to help you deal with a symptom.
Please consider what I have said. The laundry list of symptoms only seems to grow longer as time goes by. I have an appointment with my doctor in a couple weeks. We have been looking for anwers as all the top causes (pheochromocytoma and carcinoid syndrome being amongst them) were ruled out and she says she has never seem my kind of problem before. I will post again when I get results. And the best part, is, most of the damage can be reversed upon removal of the source (for me its my fillings) and then chelation therapy. There's two kinds of chelation therapy. One is fairly simple: using natural chelators (stuff that will bind and facilitate the removal of toxins) and being patient. The body can heal itself if you facilitate the healing. The other is done with IVs and hours of them to pretty much pump man-made chelators to do the job. It seems both have the same number and types of risks
and benefits. So its kinda a preference. I have begun the natural approach though I have to save a bit of money to have the two relatively massive amalgam fillings removed and an alternative employed.
I hope this helps someone. Oh, and today I noticed, for the first time, my toes (not the big toe, though) had turned a dirty purplish brown. That is what led me to this thread.
Good luck all.
CC
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replied August 28th, 2011
Purple feet Go Away
Amazing, I have been diagnosed with everything, Lupus, RA, Reynauds, Fibromyalgia since 1997. Positive ANA titers but Sed Rate is normal enough not to cause worry. Body scans shows me lighting up like a X-Mas tree but blood test come back negative. I'm in pain daily and take alot of meds, but have learned to live with my "condition", I refuse to lie down and do nothing. I came to this site just to see if others have had these similar symptons, I've been experiencing the purple, redness, numbness and tingling toes, feet and ankles swell (look like Fred Flinstones feet and ankles)etc..sounds like alot of you huh? Yet my Doctors look at me like "OK" because they don't see it, but thankfully they do believe me that it happens, problem is its annoying above all else cuz when I wake up my feet are normal, after 2 hours they begin to look darker and darker with intermittent purple, red swelling tingling and itching and now seems like its moving up my calves and thighs. By the end of the day I weight 3-5 ibs more than in the morning, more if I don't lay down and put my feet up with pillows under my knees. BTW, I do drink 1-1/2 cups of coffee every day but little soda and do drink 4-6 bottles of water a day. HUMMMMM I wish it would just go away!!!
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replied September 18th, 2011
Hi Guys, alot of you sound like you have chilblains sore red itchy feet or hands with sort of little blistery things ,its from not keeping warm enough and (acording to legend of my father) it can be caused by sitting to close to the heating ! I used to get them as a kid and now my daughter at 14 has them bad!! she also has a problem and has had for some time with purple/ blue feet and I mean blue all over Reynauds was mentioned by the doc recently and she is about to have full blood tests ...Im not holding my breath on finding anything after reading your stories although maybe you should just listen to your docs and stop worrying or get a second oppinion !will let you know if I find out anything different.
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replied October 20th, 2011
Wow this is crazy I really wasn't expectiong to find anything on this subject. About a month ago I woke up early morning to go to the bathroom in which I had slept downstairs that night well upon standing my big toe on my left foot hurt sooo bad and even worse comming up and down the stairs. I had just figured I must have bumped it on something. Three days later the pain is still there and my toe is swelling. I finally go to the E.R. thinking I had either broken it or cracked it or something. The X rays came back fine it wasn't broked or fractured. He gave me some pain meds and sent me home with a script called Indomethacin (indocin) for Gout. He then told me to follow up with my Doc. So I did this and he also believed it to be gout but wanted me to get an ABI test just to make sure it wasn't anything circulatory. The indocin wasnt helping and was tearing up my stomach i couldnt eat or drink anything without my stomach clenching into a ball so the doc put me on Diclofenac. After the ABI test came back he then told me that he wanted to do an MRI bc in my left leg (where the prob started in my big toe) he had suspicion of stenosis, believed there were two places in the artery that were hardening. I just went back two days ago to get the results of that and it came back fine, he still has no idea what is going on or why it has gotten as bad as it has. My left foot turns red and purple from above my ankles to my toes. Alot of it I notice when I get out of the shower or tub and have either been sitting or standing for long periods of time. I was also tested for rheumatoid arthritis and that came back negative. I too have very bad muscle and joint pain in my legs arms and back and severe migrains atleast 2 or 3 times a week. So now the next step he wants me to take is to see a foot doc not sure what good that will do but I guess we will see, I have a feeling it will be another dead end. I too could use some answers so please if anyone can tell me anything I would greatly appreciate it. I have noticed a good many of you are in your 20s to mid 30s. Im 27. I dont know if that has anything to do with it either. I am so tired all the time and it makes things very difficult to get thing done aside from the pain and swelling in my foot.
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replied November 4th, 2011
Had a blood clot in leg in June 2011, was admitted to hospital, and I have been on warafin blood thinners, ever since. My problem, and concern is that I have a intense burning heat on the same leg, daily.
I also have purple coloured toes, which becomes more illustrated as the day folds. Both my legs are also painful, and they can be very swollen in the calf area.
I was very concerned, so l was sent to the hospital by my doctor to have both my legs checked. At the hospital, I was told that my warafin levels, had decreased to 1-8, also a test of my blood came back normal for another blood clot. I did not receive a scan of my legs, but they told me, to self administer, clexin injections, for 3 days, which is a fast acting blood thinner.
Extremely worried about another blood clot forming. My doctor seems to know little about my condition, in fact he knew nothing about possible purple toe syndrome. Apparently this sydrome is very serious and can cause amputation or even death. I must admitt, I do not know, if this is the correct information. If I do have purple toe symdrome warafin seems to be the cause, of this symdrome. Strangely though, my doctor has told me to continue with this treatment. I am very concerned and confused. Can anyone help me out there on what to do, I would very much appreciate any information or guidance to eleviate my constant fears. thank you. Also, If on warafin 11mg of warafin daily, can a blood clot still form? Thank you.
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replied November 4th, 2011
purple toe symdrome and blood clotting.
Had a blood clot in leg in June 2011, was admitted to hospital, and I have been on warafin blood thinners, ever since. My problem, and concern is that I have a intense burning heat on the same leg, daily.
I also have purple coloured toes, which becomes more illustrated as the day folds. Both my legs are also painful, and they can be very swollen in the calf area.
I was very concerned, so l was sent to the hospital by my doctor to have both my legs checked. At the hospital, I was told that my warafin levels, had decreased to 1-8, also a test of my blood came back normal for another blood clot. I did not receive a scan of my legs, but they told me, to self administer, clexin injections, for 3 days, which is a fast acting blood thinner.
Extremely worried about another blood clot forming. My doctor seems to know little about my condition, in fact he knew nothing about possible purple toe syndrome. Apparently this sydrome is very serious and can cause amputation or even death. I must admitt, I do not know, if this is the correct information. If I do have purple toe symdrome warafin seems to be the cause, of this symdrome. Strangely though, my doctor has told me to continue with this treatment. I am very concerned and confused. Can anyone help me out there on what to do, I would very much appreciate any information or guidance to eleviate my constant fears. thank you. Also, If on warafin 11mg of warafin daily, can a blood clot still form? Thank you.
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replied November 10th, 2011
Okay, same symptoms, back has been in a lot of pain too. I am also noticing brownish purple more permanant discoloration on top of right foot. Last night after painting a staircase and being down on hands an knees a bunch, got up and red, purple and high heat was scary bad all up legs also revealing patch on top of left foot. Has never been this bad before. Still feels hot and itching and left patch now clear but red and purple almost gone. Everything else all have been saying including tired and depression. Lost job and subsequently insurance so hoping for some idea because all the tests mentioned above would ruin me financially. I do have small case of mitral valve prolapse, some arthritis in shoulder and lower back problems for most my life. 41 year old male. Any more info sure appreciate... thanks and good luck to everyone else is well.
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replied November 19th, 2011
purple toes
i just saw my purple toes. the two big ones and freeaked out. i dont know what to do
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replied December 28th, 2011
mommy21
i dont remember if i tripped or hit my toe on something but my toe is swollen and purple and im in so much pain i can berly walk with my right foot Sad
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replied December 28th, 2011
mommy21
i dont remember if i tripped or hit my toe on something but my toe is swollen and purple and im in so much pain i can berly walk with my right foot Sad
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replied January 5th, 2012
I have had this condition for 3 years now. The purple toes with blisters at times. Very cold to the touch and painful. I went to my GP who ordered blood work which all came back normal. I was sent to a cardiologist who performed EKG, stress test,angiogram ect.. everything was normal. I was then sent to a pulmonary Doctor who performed a bronchoscopy which was also normal. Lupus and lymes test negative. The second year the flair up wasnt bad. This year is horrible. Sometimes my toes are purple and cold, other times they are red with blisters and very hot. I get shooting pain up my leg in the middle of the night and unable too sleep. My skin looks mottled all the time. I am a nurse and am on my feet 12 hours a day which makes for a very painful shift. After reading the post's I found it interesting that a couple of you are taking adderal as I am also and took Yasmine 5 years ago. I am otherwise healthy only take one medication am a 43 year old female. This condition starts in November and usually lasts until March.
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replied January 12th, 2012
red, purple painful toes that are stiff
I have much the same as everybody else. I fell down my stairs a few months ago. Don't recall hurting my foot/toes but I did black out for a few seconds. Anyway, the next day or so I start to notice pain in my toe next to the big one on the left. Just the slightest touch even from a breath of air causes pain. I didn't notice discoloration, swelling or any abnormalities at first...only pain. If I lightly bumped it, if felt as though someone stabbed it. I did have a couple weeks of relief around Christmas. Fast forward to today...3 toes rotate from pain (mostly) to itchy (partly). I started noticing swelling, stiffness and redness. No purple until past few days. I feel the pinky toe is next. My right foot is starting with pain and no noticeable abnormalities. I have yet to show a doctor, only describe it. I was recently diagnosed with an auto immune disorder (lichen sclerosis) but have yet to see a connection between the two other than this disorder has been linked to other disorders but doesn't mean I would have another. I am trying to piece the puzzle of my whacky medical issues together. Chronic fatigue, memory issues, concentration, lack of coordination, vertigo, itchy this, painful that, constant nausea w/ no weight loss, etc. When I know something, I will surely post back. I see my neurologist and another one of my specialist next week. I will show both my toes as I can't take it any more.

Also, I drink little caffeine, no alcohol, I smoke maybe a pack a week. I do not worked for the past 6 months but am a full time mommy. No BC pills for many years. No adderall. I take meds for migraines for last 2 years. Also botox injections for the migraines. I am fairly active but do not work out. I am retired military in my 30s. I do not eat seafood, fish or much red meat. I do not eat a lot of sugar.
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replied January 21st, 2012
Purple toes, red hands.....connected to Implanon?
Hi all! reading this forum so far has been very helpful. I also have been having these problems. At night my feet and hands are always really cold. Today my mother pointed out that my feet were a shade of blue. I had started noticing that my hands get really red on the tops, almost like a sunburn but the palms of my hands are cold. I thought I just had dry skin because of winter. But now my toes and parts of my legs are turning a shade of purple, red, (and white when i move them) I also started getting a tingling in my toes. More over a numb feeling. I too take adrenal but have been on it for years. However, about 6 months ago I had the implanon birth control put in my arm, and all of this started. I thought maybe I had low Iron from bleeding from the implant for 4 months straight. But tests showed I was fine. Im starting to get worried. I have already highly entertained the thought of having this thing removed. Any thoughts?
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