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Q: Blue Purple Toes
asked by: AG4687 on April 7th, 2009
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I posted last week with no response but since then have received my 1st blood work results back. Basically I went into a GP office because my toes started turning colors usually sun burned red then purple and have consistently been turning color ranging from white, red, blue, to purple. When standing my legs often get red/purple blotches and itch (same happens after shower). My inner legs and arms have a dull purple lacy look and now my hands are beginning to show signs of the weird color changes as well. The Dr. suggested Raynaud's related auto immune disorders.... as I have had headaches, fatigue, redness in face, aching feet/legs, stifness in wrists, and an over all "off" feeling. My ANA test was normal - as were all my "function tests" my sugar/cholesterol/etc were all normal. The only things that showed up were high levels of white blood cells in my urine and high results with the joint test. He wanted to put me on a blood thinner and told me to stay warm as it appeared I just have Raynaud's disease. I am not satisfied with this because i've never had reactions to cold/raynauds like things before and am still not.... my toes just look like a raynauds flare up and thats what he was going by. He said he wanted to see what happened after a week and then look into other possibilities. BC i'm not in severe pain he said it was unlikely I had a form of arthritis. I also was not tested for lymes or anything other then the basic blood work and raynauds related diseases/disorders like Lupus etc. I am very concerned and have no idea where to go from here. Any feedback would be appreciated!
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aem04
replied on April 18th, 2009
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purple toes
I am suffering from the exact same thing. My toes tend to be purple after a hot shower or if they are not elevated. They also have episodes where they swell have itchy red places, and ocassionally small blisters. I am also suffering extreme muscle, bone, and joint pain. Like you, my ANA and other blood work as well as catscans and multiple other tests came back normal. The many doctors I have seen have called the purple-lacy discoloration on my arms and legs Livido (sp?). I just returned from the Mayo Clinic in FL this week with nothing more than a possible diagnosis of Fibromyalgia. I do not believe that is correct due to the fact the onset was too quick and multiple other reasons. We are waiting on several biopsies to come back and should know something in a couple of weeks. One of the many doctors who saw me at Mayo mentioned something called purple toe syndrome. It's worth looking into. Good luck to you. If you are anything like me at this point you are probably aggrivated out of your mind. Keep me posted if you find anything out.
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