During two tests that my sister just had (Colonoscopy and Endoscopy), these conditions were found: Prolapsed rectum; 3 blood vessels doing a slow bleed in her stomach, proctitis, an ulcer on the rectum, and something with a really long name, but with the initials AVM. I do not know what that is. I would like to know more about what these conditions will mean in the long run. My sister is 62, small, slim, and until she began having problems about 3 years ago, quite healthy. Lots of vitality.
She is in the hospital now, due to a catatonic state from which she could not be roused--at least for 36 hours. She is now speaking, and knows where she is, etc. The more information I have, the better.
An AVM is an arteriovenus malformation. This is where the vessels are in a knotted up ball, like tangled yarn. They usually are congenital. Some people have no ill effects from an AVM but many people learn about it due to bleeding from the AVM. It can be treated with surgery. I do not know if there are currently any new treatment options for an AVM. Are you able to have a discussion with the doctor? The doctor can tell you what the options for treatment are.
Via Pillcam and scopes my wife was just diagnosed with multible AVMs in her stomach and small intestines. One of the AVMs in the stomach was bleeding. The Dr. place three clips in stratigic locations to stop the bleeding. What is the probability of the other AVMs starting to bleed? TIA, "K". PS: The only symptom my wife had was blood in her stool.
A a.v.m is a artiel venous malformation my daughter was born with one since hers was internal and external it took a long time to diagnose as you usually cant see them, it was treated 8 yrs ago at johns hopkins by a interventional radiologist by the name of Dr, sally Mitchell. The treatment was embolizations one every 6 weeks until it was gone. Since the treatment is harmful to the body you can only do so much at one time in my daughters case , i have heard of other cases where they were able to just clamp off the main vein and that solved the problem check out birthmarks.org for alot more information
My 17 year old daughter has a massive High flow Avm in her leg it also looks like she has one in each wrist and 3 in her foot we are awaiting a special meeting with Vascular surgeons and Radiologists at Princess Margaret Hospital In Perth Western Australia to work out a treatment plan on the 14/10/2011. We have search extensively to find a vascular Surgeon who understand Inherited Hemorrhagic Telingdictacia in Perth and Dr Marek Garbowski is the first surgeon who has made my daughter feel she has found a specialist who talks to her listens and explains to myself as well she also has Juvenile Arthritis and Hyper mobility disorder and Reynard's Phenomen so much for one child to deal with she has had 3 ultra sounds and shall have her 4th MRI this Monday night Her stomach is being investigated and her spine now can you help me with idea's on how to help her through this I have 4 children who inherited HHT from me and I am feeling like I am drowning at the moment coils or radiation are the agenda for discussion with the specialists I just dont want her treated like a guinea pig as she has been through so much I have experienced the wrong treatment through my son having a stoke/brain abscess which left him with a phoronchephalic cyst at 6 yrs old I was informed the treatment of going into his brain through surgery to measure the level of fluid in the cyst and to then put a camera in his brain to see if he had lesions in his brain may actually have made his condition worse and not to mention he has horrible scar tissue in his brain now so I do not want to experience this treatment again