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Conditions and Diseases > Arthritis Forum > Bilateral Sacroiliitis
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Q: Bilateral Sacroiliitis
asked by: aussie29f on April 6th, 2009
New User
I’m a 29yr old female and diagnosed with bilateral sacroiliitis... The pain is constant and unmanageable for me. I have been continuously to a chiropractor, physiotherapist who practises acupuncture. I have also been to an osteopath. I have been on anti inflammatories and pain killers for months. I don’t sleep for more than an hour at a time, because as soon as I move the pain is enough to wake me. I use heat creams, heat packs, warm baths, ice packs, sleeping with pillows between my knees, I don’t sit for long periods, no lifting, minimal bending, I had a week of rest off work, but to not much relief. I bent over and emptied the dishwasher and almost immediately pain returned. I had some relief from the acupuncture as it releases the tense muscles I have in my lower back, buttocks and thighs, but the pain returns or the acupuncture is 'undone' with 24 hours or so... I am the process of trying to get an appointment to have CT guided cortisone injection, which I am not that keen on, (I have heard stories about infertility, its lack of effectiveness, weight gain... INFO ANYONE???) I may have to wait 3 months, so I don’t know where to turn now and until then. A feeling of hopelessness is growing in me. I’m too young for this and it is affecting my entire life. I’ve become a burden/bother to my family, boyfriend, friends, because after I struggle through a day at work I cannot manage to socialise without extreme determination and self convincing that I can which is exhausting in itself. I can’t manage to spend a few hours walking around a shopping centre or sit down in the movie theatre comfortably. Play with my puppy, do my housework etc. I cannot perform my job properly (I manage a liquor store, a lot of heavy lifting, moving, bending, kneeling which lead to my sacroiliitis). I seem to be rambling. It is so hard to get anybody to understand the pain I’m in 99% of the time; I have very little time without it... I am wondering if anybody out there has found anything to relieve their pain and discomfort. Even the tiniest 'tricks' they use for relief. Or what treatment has worked the best? I really would like to discuss this further and hear other experiences.
My true hope is that I can get back to full living/working/functioning capacity, lose the 20kg I have put on since I have had this (about 6 months), I use to be very fit and my physical job helped with that. I am hoping to have children soon, but have been told I would not comfortably and painlessly be able to carry them, And would have to be on complete bed rest for majority of a pregnancy. And I want to enjoy a pregnancy! I want to be the fun, lively, fit self I use to be. These last 6 months has changed me dramatically; I am a completely different person than I was 6 months ago. I have always suffered from depression, since I was a teenager. This is making a lot of progress and work that I had made with my depression come undone.
I’m sorry for rattling on, but I have needed to let this all out (I feel better just doing so!)
Thanks 29f, Australia
Thanks for listening/reading... Hope to hear from someone....
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kinetico
replied on April 15th, 2009
Experienced User
sacroiliac condition
Hi there

I think your condition relates to allergies.
It is important to realise that the cells of every part of the body are constantly being renewed
All the power of health and healing is built into your body. Your body requires specific essential nutrients through food, exercise, sufficient sleep, pure clean water and a relatively stress free lifestyle.

Your first action should always be the restoration of your immune system by supplying the essential nutrients through food sources and nutritional supplements that are safe, without running the risk of potential adverse reactions to synthetic drugs.

Your body will repair itself, regenerate itself, restore itself, and defend itself as long as you provide your body with the right tools it requires to function correctly.

It�s not about curing disease, Nobody but you can do that. It�s about restoring the proper function of your immune system. When you supply your body with the essential and required nutrients, exercise, water, sleep and many other needs, and avoid the foods(?) you are allergic to, your body will use these resources to defend, restore and protect your immune system, bodily systems and cellular systems.
this is not about curing disease, but about restoring your health where life begins.
At the cellular level.
Your body has the ability to fight cancers and other disease very efficiently, if you supply your body with the right ingredients to function properly at the cellular level.

Every cell has the blueprint (DNA) and even a carbon copy (RNA) to produce the perfect cell and most organs renew themselves every 2 or 3 years.
If, after that time, you still have the same health issues you are making the same mistakes and have failed to provide what your body needs so it can restore the proper function to your immune system.

Healhy cells can not survive in a toxic environment. They need to mutate and become anaerobic. This means they can survive in a toxic environment.
It is called cancer.
Allergies cause a toxic environment because of a lack of nutrients.
Your digestive system does not work in an allergic reaction and if you have the allergic reaction every day, your immune system is up the pole.

Vitamin C and Zinc are the 2 main fuels the immune system needs. Plus an avoidance of anything you might be allergic to.

The most allergenic foods are; Dairy products.
wellknown for being the causal factor in Arthritis, Osteoporosis, Heart disease and a list of other health problems as long as your arm.
Avoid anything that comes out of a cow!!!
Take a Vitamin C supplement (at least 3000mg) and a zinc supplement (at least 50 mg) and eat heaps of vegies, avoid meats, in particular, deli meats because of the nitrate and nitrites, they are poisonous, avoid soda's and cola's, sugar and anythig else that is acid forming. You need alkaline foods to restore the PH, Find those on the net.

Good luck

Kinetico
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bhicks
replied on April 24th, 2009
New User
Sacriliitsis...You are singing my song
I am 28 and have had the same for 4 months. I have been in my bed 95% of the time. I ahve been off work, and unable to take care of my two children(thank God for my husband). I have had two guided cortisone injections and a third in another 5 days. I has given about 30% pain reduction. I TOTALLY understand what you are going through!! I have has a spinal tap, 5 MRI's a CT scan, a nuclear bone test and a million blood tests, I have seen neurologists, Spine specialists, spine therapists, artritis doctor. All within the 4 months. I am exausted and quickly losing hope that I will find out the cause or get out of pain 100%. I too want my life back! I want to play with my children and be a mom again.
I went through all kinds of pain meds, nothing got rid of my pain. Morphine helped me the best although you have to be careful no to become addicted to it. I was recently given a tens unit for pain. I am now off all drugs!!! It doesnt help 100% but it makes a HUGE difference. I put the probes on the area it hurts just enough to feel them, they should not contract, just vibrate the skin. This stops the signal of pain getting to my brain and it has helped a ton. I am returning to work in a week. Not sure how I will do but I need to get a part of my life back, sitting only causes more depression.
This pain, is so severe. I have two kids, I had one natural and can tell you this pain is worse than childbith because it doesnt end. The actual pain is comparable but you know there is an end to childbirth, this never goes away. My pain got sop bad there were days I wanted to give up, I was tired of the pain and couldnt take it anymore. If you find out how to take care of this, PLEASE respond to me! I hope you are better now than when you wrote this! Take care and research all you can and go to as many doctors as you can. One might know what to do.

Bhicks.
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mika91
replied on July 2nd, 2009
New User
Did anyone ever tell you that you had Anklosing Spondolyitis? I'm sure they would have of tested you for the gene marker HLAB27. If you do have this condition TNF blockers help somewhat. Thet are Remicade, Humaria, and Enbrel. My husband suffers every day with this and he has been on remicade for about 5 years. Maybe you can inquire good luck and God bless.
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esnowe
replied on July 28th, 2009
New User
3 years with sacroiliitis
I am a 31 year old female, and my sacroiliitis started about 3 years ago (when I was 28 ). After years of tests I finally got the diagnosis about 1 year ago. As someone who has broken a lot of bones in my life, the pain is 1000 time worse than the pain of broken bones - that is the only way I can come up with to describe it.

For a while, I was on 75mg extended release diclofenac tablets, which I took twice a day. They worked really well for several months, but eventually they just stopped working and the pain came back even worse than before. My doctors then switched me to the highest available dosage, with is a 100 mg extended release tablet that I take once a day. This worked amazingly well, and I got my life back for about 1 year, and have been essentially pain-free. About 2 weeks ago, I started to feel the pain gradually coming back, and it is increasing every day, so I know that my miracle pills are going to stop working soon. I don't know what I'll do next. About 10 months ago (during my "remission") I started a new job where I take a train to work everyday and then walk about a mile to my office. Driving isn't really an option, because of where the office is located. I don't know what I'm going to do. I guess I should be grateful that I had a whole year without pain, but I already feel myself panicking because I know that is all going to go away soon, and I'll be crippled again.

As for the child-bearing situation - I'm afraid I don't have any advice. I've never wanted children, so when my doctors told me that pregnancy would be a problem, it didn't bother me.

Why haven't there been more studies? Why isn't there a cure for this?
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cosmosia
replied on August 9th, 2009
New User
Living with Sacroiliitis
I have to tell you all that this sounds all so familiar and although I feel terrible for you all, but I am going through the same thing and it makes me feel better to know that others are suffering the symptoms that I am. I am a 47 year old single mother, and this started from an injury at my workplace. The pain has been terrible, and I have been dealing with this for 7 months already! I have had a series of epidural injections which help a little bit but only for a short time. Next week they are trying Facet injections. UGH!!! I have my good days and bad days, and hate being on painkillers!!! My poor daughter has had to hear me cry at night in my bed with agonizing pain! And whoever said it was worse than childbirth is right!!! I have a very high tolerance for pain but when this flares up, it is unbearable!!! I just want to go back to work and be normal again. Shopping forget it I have to use a cane wherever I go, but sometimes I just refuse. I am still in pain management and also see a physiotherapist. I have to have another MRI because it gets so bad I think that there has gotta be something else wrong. I went to physical therapy and that set me back even further instead of helping, although it felt good while I was there but afterwards I was in soooo much pain so I had to stop. I wish I could give you a success story but unfortunately as I lay here in my bed in pain I only wish for something that will help us all. Oh and by the way since I am on workmans comp, I hope none of you will have to go through the hell that I have. They only treat Sacroiilitis as a moderate disability, and they don't give you crap!!! It has been horrible for me but I cannot go back to work because my job duties require me to do all the things I can't. I want to go back more than anything, and can't live in pain and worry everyday about money and taking care of my child. All I could do is pray they find something that actually helps! Good luck to you all!
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