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Q: Best's Disease prognosis
asked by: maureen43 on February 12th, 2009
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Hi, I have had bests disease (Vitelliform macular degeneration) most of my life..I have never worried about it until recently while talking to my sister..My eyes arent good while reading, but I just wear reading glasses..I get eye exams every year but have only gone to an eye speacialist maybe once or twice..My doctor told me that I can never go blind, just loose some vision in central vision..I am a worrier by nature so I dont think about my bests disease very often..And my sister on the other hand goes to a speacialist every six months to get her eyes checked..She said that I should go and that they will inject a dye into my vains to take pictures of the eyes..I do not think that sounds very fun..and refuse to go..I heard that there is no cure for this disease..so why go through some dye injection..? and go back to doctor continuosly? I am so confused about this disease..It is very rare and I am having such a hard time finding info on it..My sister also said that if I get a sudden change in my vision I should immediatly go to doctor and that they can give me a pill? I have never heard of this..
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MandMs
replied on February 13th, 2009
Extremely eHealthy
This disease goes through several stages linked with progressive deterioration of vision.
The more severe changes, usually, happens in individuals older than 40 years.
Various studies have shown that most individuals retain reading and driving vision in at least 1 eye into adulthood (88% have 20/40 or better vision)
In other words, the deterioration of vision usually is very slow and is not significant in most individuals until after age 40 years.
Some patients will never have progression beyond the earliest stages of the disease.
Your sister when says injected dye, means about test performed to detect a complication of this disease, known as choroidal neovascularization (new blood vessel develop and are associated with severe worsening in central vision, and this usually happens in the last stage, atrophic stage of best's disease).
The eyes check ups are usually done every 6 month.



Continue to be a worrier!
Best wishes!
Marija
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gmj
replied on April 9th, 2009
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Bests Tests
I've been diagnosed with Bests since I was four, and my vision isn't very good but is still better than 20/40 corrected. I just went to my eye doctor yesterday, and she keeps telling me that I need to go get tests (like an OCT scan) and I'm really not interested in doing it-- not only is it expensive, but I feel like the information is so inconclusive that it's a waste of my time and money. Does anyone have any insight regarding tests like this? The doc says it could help to catch vascularization, but I'm still pretty nonplussed...
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MandMs
replied on April 10th, 2009
Extremely eHealthy
The OCT scan is usually performed to detect some retinal changes like plaques of white subretinal fibrous tissue, that can develop in conjunction with the atrophic stage (stage when the visual clearness is often reduced to 20/100 or worse).

Since, your ophthalmologist finds OCT important to be performed, you may reconsider your decision!
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