Join Our Community!
Share
General Forum Topics > General Q and A Forum > Autoimmune/ Spinal Cord Disorders
Avatar
Q: Autoimmune/ Spinal Cord Disorders
asked by: mizzdanielle1202 on April 27th, 2009
New User
Hi. My name is Danielle. I am 21 years old and for the past few years, I have been steadily decreasing in my health. I have had numerous spinal taps, MRI's, blood tests, etc...My CSF WBC Count was at 112 when its supposed to be 0-5, I have lesions on my brain and spinal cord, my WBC Count in my blood was always high, I've had random RBC counts that are abnormal...wither high or low no happy medium, and I have had 4 specialists tell me this is not Multiple Sclerosis. My gut feeling is telling me that this is Lupus. All of those lupus tests come back negative, But I always get a rash in one place or another, and I have a ton of weakness, pain, vision problems, and flair ups. I get treated with solu-medrol treatment when I have an "attack". I am very concerned, and am hoping that I may be able to get an opinion from someone. I have done a ton of research myself. The doctor's have no clue what this is. My lesions are not "MS Shaped" and I do not have enough swollen lymphnodes for Sarcoidosis. Can you please help me? Just some advice? Maybe some info I can research? Have you seen this before? I am pregnant now- my 4th pregnancy, so far the only one that seems to be going well. My first was born at 21 weeks...didnt make it and the other 2 I lost at 5 and 6 weeks. They ruled out Antiphospholipid Syndrome...I am so lost, and I want to know that I am going to be able to take care of my baby, and that my baby will not be born sick. Please please help. Thank you so much.
Did you find this post useful?
|
Quick Reply
Search