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Q: Autoimmune Craziness
asked by: healthstuff on January 9th, 2009
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I can't believe the amount of people suffering these days from autoimmune disorders (lupus, RA, polymyositis, dermatomyositis, scleroderma, juventile RA, etc). I too was given a possible diagnosis of an autoimmune disorder, which thankfully turned out to be negative. It's frightening. My sister is now in the latter stages of polymyositis. I never tire in my search for a cure for her. Yes... a cure, not a band-aid for her symptoms. She lives in constant pain, is weaker than a kitten, and has given up. Even her doctors have given up on her, and just keeping throwing prednisone at her, which of course comes with a multitude of hideous side effects Mad .

I have NOT given up on her... so... have come across something very interesting.... Seems there might be a light at the end of the tunnel... according to those people. I have been in touch with one of the members lifepreserver , and she has been wonderfully helpful and supportive since she has/had (yes HAD!!!!) polymyositis too. We are in the midst of investigating/implementing all that they have suggested there.
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kdlee
replied on July 22nd, 2009
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I know your post is from January of this year but I am wondering what you ahve found out and how your sister is? kd
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healthstuff
replied on August 5th, 2009
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Still here....
Hi:

My sister is still weak as a kitten, but she found a doctor who is working in conjunction with 2 other doctors with this treatment. Her CKs have dropped to more than half of what they were (4700). We all remain optimistic. I think had we implemented the treatment before her last relapse, she would have responded faster, but because she was in the midst of a severe relapse, the battle back to solid ground has been extremely trying. I could go on and on about her battle...
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kdlee
replied on August 5th, 2009
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Honey I hope you find answers for your sister..Like you all I tire of bandaide help..I want a cure all..k
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healthstuff
replied on August 17th, 2009
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Well, it is not new by any means. The medication is simply antibiotic therapy. Apparently, the thought is that the a reason why our bodies are "flaring", is some low-lying infection that is causing our immune system to react in an atypical manner. With antibiotic therapy (tetracycline antibiotics) which target skin and certain tissues (or so I have been told), help to eradicate the low-lying, "flying-under-the-radar" infection that is wrecking havoc and tricking the immune system into attacking the tissues where the "ghost" infection is hiding. Interesting concept and many people would rather try antibiotic therapy versus some more toxic drugs that have adverse effects on other organs in our bodies (liver, pancreas, heart, etc). What is the worst that tetracycline antibiotics could to do to one is have incredibly clear skin with no zits??!?!?... that adverse effect is something most of us would accept as a secondary result of this therapy.
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