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Aseptic meninigitis

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I have had three attacks of aseptic meningitis in the past 6 years. The first two, I was completely feeling fine in about 3.5 weeks. I had my last attack in September and I have not been able to recover. I have had constant horrible headaches, confusion, confusion, weakness, and fatigue. My doctors think I may have damage caused by the last attack, but have no idea how to treat or even help. I have tried all the known medicines that help prevent headaches/migraines and nothing is working. vicodin takes the pain away for a few hours, but I don't want to live on pain killers. I can't work, think, and even enjoy my 4 year old. i need some help or advice to give my doctors. i've been tested for all the usual suspects that may cause recurrent meningitis and all have turned up negative. someone please help
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replied October 10th, 2010
Experienced User
Hi dowens8,
I had aseptic meningitis 8 years ago. I had severe Migraine headaches for 9 months, bed ridden. Eight years later, I still struggle with memory problems, fatigue etc. It is difficult to live with pain, but it sounds like you don't want to live on pain meds. It may be that like me, there will need to be a period of time you are on medication to treat the headaches. Talk to your doctor about alternative meds, maybe a low dose opiod based med. Phenregan has helped me tremendously, although I only use a small amount and take it when it is at night as it makes me very sleepy. It is my last resort if my headaches are insane. Although I did not like being on pain medication for a long time, and was physically addicted, (as opposed to mentally addicted-there's a difference) for a long time, I could have not survived without them. Research has shown that patients who are truly in pain do not get addicted to pain medications. If you are absolutely opposed to pain meds, maybe try acupuncture. I hate needles and was a huge skeptic, but have to admit that on some of my worst days, I walked out after feeling great. I also started out the biggest skeptic towards hypnotism, but am utterly surprised how it has helped me. I was only open to the idea because it was the reason my dad stopped chain smoking suddenly and never picked up one again. I found a trained doctor who has been doing it for a very long time. Open up your ideas of treatment and ask around how people treat their pain. It may seem hokey, but if there is a chance it works, it would be worth it. Best wishes, CharlieJane
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