I am 32yrs old and had an ankle replacement in 2008 at the age of 28 at Duke University. I had had problems with the ankle for many many years with doctors telling me nothing was wrong and then I finally went to Duke and found out my ankle bone (I do not know the correct terms) was deteriorating. They performed the ankle replacement because they said I was too young for a permanet fusion. After the recovery process I seemed to do pretty good but I was limited to activities of course because it was still new and fresh , well after a year and a half and getting back into routine it constantly ached. I went back to Duke who told me I had small ankles and the hardware looked a little big so they did another surgery in 2010 and cut away some of the bone to make more room. After recovering from that I did good for about 6 months or so but then the constant pain came back. I used to workout some, eliptical, walking around the block but never running, jumping or anything straining as I didnt want to 'wear' the hardware out, but now I cant even walk from my car to the inside of a store without the most uncomfortable weakness and 'giving out' feeling. I went back to Duke in Sept 2011 and they took more CT Scans and test and said and I quote "There is nothing wrong with you take tylenol like everyone else."
I would like to know if anyone else has had a replacement and still has chronic pain and what kind of things do you do to help it?
Unless you have decided that you are going to be in that 5 to 10% of total joint patients that have continued chronic pain in their joints, you need to get a second or third opinion.
Since Duke has basically written you off as one of the 5 - 10% chronic pain patients, and you are not yet willing to go with that, you need to continue to search for an etiology.
Collect all of your studies and medical records and find another foot and ankle specialist to look at your case.
It may eventually come down to the fact that you unfortunately fall in that small percentage of patients with chronic pain, but right now, you would probably do best mentally, if you exhaust all possibilities. Maybe a new set of eyes on the case can come up with the etiology.
Of course, if it is finally determined that there is nothing else that can be done with the total joint, and you are living in intolerable pain, there are always two final options: an arthrodesis (fusion) or an amputation (usually only done for cases of chronic infection or nerve damage). It's just a matter of how badly you hurt. And, actually, fusions of the ankle have been done in young patients for a long time. Before total ankle joints were available, it was the procedure of choice for young patients and in those with heavy manual labor jobs. Even children underwent ankle fusions in some cases. So, an arthrodesis can be done at any age.
But, before considering the salvage procedures, get another opinion and maybe even another if that one doesn't help.
I had both of my ankles done in 2013 and at this time I continue to have pain which can tire me to the point that I would like to cry at times BUT I will tell you that compared to before I had them it was much worse.When you read the info it does not tell you that you will be pain free and that the degree can flucuate and when the weather changes I know before anyone else.It does give you the stability as you are not slidding on bone to bone.
I stay away from pain killers and I will use massage,heat and cold and hebs wich will help also mine swell up pretty much at times and my ortho Doc said it is because it is the ligaments and tendons that are inflamed which also carry the nerves the area of the replacement there is no pain just the surround ing tissue so it might be that you are feeling.
I would hesitate on fusion for a few reason as there is always always a possible that you may shatter the long bone in your leg and that fact that you are not moving the foot bones and the calf muscle the normal way and you can be predispose to muscle deterioation and foot bone issues.If you want to keep me posted on hoe your are doing you can always reach me .I figure it will take the tissues to adjust to the new alignment a wile.Do not give up hope.If you ask me would ask me if I would do it again the answer is YES.
I had ankle replacement in March, 2015. Long recovery and after 1.5 years, still wear my brace and on pain meds. Just recently in last 2 weeks, my ankle "catches" and extreme deep shooting pain along the outside of my foot and up back of heel and leg. Brings me to tears immediately. Any pressure on my heel sends me through the roof. I then feel a "pop" and the severe pain is gone but then my foot feels bruised to walk on. Something is not right and I have made an appt with same surgeon in about 1 week. I am thankful to be walking upright, but a bit disappointed that this replacement isn't working as I had expected.