I was just diagnosed with AVMs in my lower intestines. I presented with lower abdominal pain, blood in stool and iron deficiency anemia with a RBC of 7. I was given 2 units of blood on three different hospital admissions in 2 months. Two of the upper GI ATVs were cauterized during an endoscopy. Apparently mine are inoperable and I will have to go for weekly transfusions. I also have Lupus and taking prednisone. I don't know if either could have been a contributor. Also, my blood pressure is high even on medication.
Even with pain around a constant 7. Is this how my life will always be with this condition and can I do anything to get even some of my stamina back?
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