Medical Questions > Womens Health > Vaginal and Uterus Health Forum

adenomyosis

Must Read
A D&C is a standard procedure. But it can be scary when you don't know what to expect. Learn about what happens during dilation and curettage to prepare yoursel...
Dilation and curettage, or D & C for short, is a procedure that is used to diagnose and treat a number of womens health conditions. What are some goals of a D a...
A D&C usually is free of problems, and the recovery period for the procedure is short. But knowing about possible complications can help you detect problems ea...
Hi I am a 30yr old married woman with three children. My oldest is 12 and youngest is 9. They came from a previous marrage. My question is, I knew that i had endometrieosis for the last 7 yrs. When me and my new husband started trying for one of our own I got pregnant two weeks after stoping the pill. But come to find out it was a mollar pregnancy, so I had to get a DnC. I was heart broken I was SO verry excited to have another child. Since then for the last three years we have been trying to concieve with no luck. Test after test we found out that i now have adenomyosis wich is the same and endo except its inside the muscle wall of the uterus. Which makes my uterus soft.. Ive tried clomid for nine months with no luck so I stoped taking it for two months Now im back on it Im going to try the hightes possible dosage possible. Which is not good for endo but how else am i going to get prego? Is there any one out there who can help me feel better about what im going threw?? I have days where i just loose my head and cry my brains out It dosent seem fair.. Im verry happy that i have three children I love them to pieces But i was so young when i had them that i didnt appreciate it. Now that im ready It seems like its not going to happen. When do i give up?
Did you find this post helpful?
|

User Profile
replied October 21st, 2008
Supporter
Pain medicine may be prescribed for women diagnosed with adenomyosis in order to help manage the symptoms. A hysterectomy may be necessary in younger women with severe symptoms. Most treatment attempts using hormones have been unsuccessful.

That's for the condition.

Unlike endometriosis, adenomyosis doesn't usually affect fertility. However, if you experience prolonged, heavy bleeding, chronic anemia may result. I'd suggest that you seek advice from your gynecologist...or search for another one using this directory:

https://www.acog.org/member-lookup/
|
Did you find this post helpful?

replied October 21st, 2008
My pain is controlable, and a hysterectomy is out of the question. If i have to bear the pain of 100 knives to be able to grow and give birth to a child then so be it. What my dr. told me, is that my uterus gets soft every month, and because of the trapped blood it turns into a big bruise, and it wont let the egg attach because its a harsh inviroment. Every month I go in for a vaginal ultrasound to measure my follicules, and every month there is always ONE that is mature. (no matter the dosage of clomid)" Every thing looks perfect" he tells me. "There is no sighn of adenomyosis, and my uterus has never been swollen. I've done so much research, I feel like I could rite a book. If adenomyosis dosen't effect fertility why would my dr. tell me different?
|
Did you find this post helpful?

User Profile
replied October 22nd, 2008
Supporter
I'm not sure ... the information I found was from the Mayo Clinic site here:

http://www.mayoclinic.com/print/Adenomyosi s/DS00636/DSECTION=all&METHOD=print

I'd suggest that you ask your doctor the same question. Good luck, Shandris! And let us know he says!
|
Did you find this post helpful?

replied January 28th, 2009
hi, i,ve been trying for 6 yrs for a child (i have 1).I too have endo and just this week was told i poss have adenomyosis...do you have old blood in between your periods? I have continuously and i,m told its because my uterus has changed shape with the disease and its blocking the blood from flushing out after period. I know wait to hear whats next from my gyno...Had 3 failed ivf and very sad...i feel your pain,your not alone ..good luck to you x
|
Did you find this post helpful?

replied September 1st, 2009
hi guys,

I was diagnosed with a small section of adenomyosis, the doctor simply removed it with a laser, and since ive had no more problems.
|
Did you find this post helpful?

replied November 19th, 2009
I am 37 and have 3 children they are all I need! I have been have extremly heavy long periods for the past year and finally went to the GYN. I had a saline ultrasound and found a polyp before they even put the saline in. I had a D&C one week ago today. While in there they found a polyp and alot of other tissue. I will see the Dr on Monday and hopefully will get results from the pathology report then. Should I be worried? Obviously I am! Anyone?
|
Did you find this post helpful?

replied May 11th, 2010
adenomyosis
I''m 36, had a section of adenomyosis removed during a laproscopy about 4 weeks ago - but am still having a great deal of pain.
Considering a hysta - but massive decision. We''ve been trying for a baby for 14yrs, had numerous attempts at IVF with 3 early miscarriages.
I have been trying to get the adeno pain under control with progesterone and synarel - all in hope for another chance at a miracle later on....but really don''t know that I can stay living in pain like this for much longer.
I''d be interested in hearing if anyone else has gone thru something similar and how you managed, and got it under control.
|
Did you find this post helpful?

replied August 11th, 2010
Adenomyosis....
Girlygirl10,
I too have adenomyosis. I'm 29 and never had children. I also had stage III endo but had a lot of it removed. The pain suddenly switched from really bad to stabbing can't walk pain. I hurt more when I ovulate than on my period. An MRI showed its possible adenomyosis. I am struggling too now with the pain and trying to get pregnant...we have been trying for about 6 months and did get pregnant but miscarried at 5 weeks.. The Dr. started me on clomid 50mg and he told me that it may or may not help. Adenomyosis is tricky and some women with this go on to have children with no problem.. and some women never do. He's been telling me not to give up so soon that I may really regret it later.. And I know I would.. It's just really hard to live in pain. I really have no life at at all. I used to do so much years ago..now Im lucky I can walk most days. I guess it depends on what you really want.. I would love to have a baby with my husband.. I think I just need to be thankful for all of the things that I do have. And to just keep trying until you know in your heart you would be happier with a hysterectomy. If there is any doubt in your heart don't have a hysterectomy. And!! my dr. said that if he does do a hyster on me that I may still have pain after my uterus is removed. Kinda like endo.. even if you remove some there still might be some linked to ligaments in the cervis on on the ovary. He said it's not 100%.. It's about 50/50. I had a presacral neurectomy.. (he cut the nerves from the spine to the uterus.) and it has helped some what... He told me try not to think about having kids.. enjoy life the best way you can and prob when your not thinking about it.. you'll get pregnant. Just know that this is all for a reason... Something great will happen. I'll pray for you! Don't get down.. I have a break down every other day about all of this!! LOL So your not alone. It's hard.. Yes this sucks... but it's all for something! Maybe we'll win the lottery!! LOL That's what I keep telling myself! LOLOL... Best of luck to you!.
|
Did you find this post helpful?

replied November 12th, 2010
To all of you writing on this forum. Please don't take what I am about to say the wrong way.

I have had endo since I was in my late teens. I'm now 41 and in all of my relationships I have never managed to fall pregnant naturally. My latest ultrasound shows that I too may now have this adenomyosis.

I've had to be very philosophical over the years. A fortune teller once told me I would have three children & my answer to him was where from..... well!

My current partner has a young son from his first marriage & my neighbour across the road who is a single mother has two children that I'm either having for sleepovers on a weekend or minding during the week.

Some things just aren't meant to be. I stopped resisting what wasn't meant to be along time ago. All of us have a special purpose & for me I couldn't be a role model to my partners son who just loves me to bits & I couldn't help my friend to the extent that I do if I had children of my own.

Accepting the situation that all of you find yourselves in will actually free you.

Best luck to all of you xoxox
|
Did you find this post helpful?

replied November 12th, 2010
Adenomyosis
To all of you writing on this forum. Please don't take what I am about to say the wrong way.

I have had endo since I was in my late teens. I'm now 41 and in all of my relationships I have never managed to fall pregnant naturally. My latest ultrasound shows that I too may now have this adenomyosis. (Which I am being checked out for by my specialist on Monday.)

I've had to be very philosophical over the years. A fortune teller once told me I would have three children & my answer to him was where from? ........... well!

My current partner has a young son from his first marriage & my neighbour across the road who is a single mother has two children that I'm either having for sleepovers on a weekend or minding during the week.

Some things just aren't meant to be. I stopped resisting what wasn't meant to be along time ago. All of us have a special purpose & for me I couldn't be a role model to my partners son who just loves me to bits & I couldn't help my friend to the extent that I do if I had children of my own.

Accepting the situation that all of you find yourselves in will actually free you.

Best luck to all of you xoxox and I really hope that your dreams of being able to have children of your own are realised.
|
Did you find this post helpful?

replied November 27th, 2011
adenomyosis
I suffer from adenomyosis this was identified as I was having horrendous bleeding (for many years) and had a cist removed from an ovary I was told I had a very large and heavy uterus as a result of the adenomyosis. I now take mefenamic acid which has really helped lessen the bleeding during periods, before this I couldnt leave the house as could flood within about 10 minutes. I tried several contraceptives which turned me into a crying monster and the doctor also suggested an implant but I didnt like the possible side effects. So eventually I was prescribed the mefenamic acid which isnt a hormone so theres no major personality change. Its really helped me.
|
Did you find this post helpful?

replied February 27th, 2012
Adenomyosis
I, too, have adenomyosis and endometriosis. By the time I was 36, with two failed in vitros and one surrogate miscarriage at 7 1/2 weeks, I was sure I'd never be a mother. Then I found Dr. Shivani Sachdev Gour in New Delhi, India. My husband and I are expecting a baby, due April 29th--with my eggs (My RE here told me to go to donor eggs). Just this year was I diagnosed with the adenomyosis, but it was a relief in some ways because I finally knew why I never had a successful IVF pregnancy on my own. Surrogacy is awesome, and I thank God daily for leading me to Dr. Shivani. I may never be able to carry a child, but my husband and I will have the bio baby I never could have carried thanks to Dr. Shivani, Surrogacy Centre India, and our lovely surrogate. Best wishes to all!
|
Did you find this post helpful?