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Q: adenomyosis

asked by: Shandris on October 18th, 2008

New User

Hi I am a 30yr old married woman with three children. My oldest is 12 and youngest is 9. They came from a previous marrage. My question is, I knew that i had endometrieosis for the last 7 yrs. When me and my new husband started trying for one of our own I got pregnant two weeks after stoping the pill. But come to find out it was a mollar pregnancy, so I had to get a DnC. I was heart broken I was SO verry excited to have another child. Since then for the last three years we have been trying to concieve with no luck. Test after test we found out that i now have adenomyosis wich is the same and endo except its inside the muscle wall of the uterus. Which makes my uterus soft.. Ive tried clomid for nine months with no luck so I stoped taking it for two months Now im back on it Im going to try the hightes possible dosage possible. Which is not good for endo but how else am i going to get prego? Is there any one out there who can help me feel better about what im going threw?? I have days where i just loose my head and cry my brains out It dosent seem fair.. Im verry happy that i have three children I love them to pieces But i was so young when i had them that i didnt appreciate it. Now that im ready It seems like its not going to happen. When do i give up?

Replies(6)

rooted

replied on October 21st, 2008

Supporter

Pain medicine may be prescribed for women diagnosed with adenomyosis in order to help manage the symptoms. A hysterectomy may be necessary in younger women with severe symptoms. Most treatment attempts using hormones have been unsuccessful.

That's for the condition.

Unlike endometriosis, adenomyosis doesn't usually affect fertility. However, if you experience prolonged, heavy bleeding, chronic anemia may result. I'd suggest that you seek advice from your gynecologist...or search for another one using this directory:

https://www.acog.org/member-lookup/

Shandris

replied on October 21st, 2008

New User

My pain is controlable, and a hysterectomy is out of the question. If i have to bear the pain of 100 knives to be able to grow and give birth to a child then so be it. What my dr. told me, is that my uterus gets soft every month, and because of the trapped blood it turns into a big bruise, and it wont let the egg attach because its a harsh inviroment. Every month I go in for a vaginal ultrasound to measure my follicules, and every month there is always ONE that is mature. (no matter the dosage of clomid)" Every thing looks perfect" he tells me. "There is no sighn of adenomyosis, and my uterus has never been swollen. I've done so much research, I feel like I could rite a book. If adenomyosis dosen't effect fertility why would my dr. tell me different?

rooted

replied on October 22nd, 2008

Supporter

I'm not sure ... the information I found was from the Mayo Clinic site here:

http://www.mayoclinic.com/print/Adenomyosi s/DS00636/DSECTION=all&METHOD=print

I'd suggest that you ask your doctor the same question. Good luck, Shandris! And let us know he says!

toxotis

replied on January 28th, 2009

New User

hi, i,ve been trying for 6 yrs for a child (i have 1).I too have endo and just this week was told i poss have adenomyosis...do you have old blood in between your periods? I have continuously and i,m told its because my uterus has changed shape with the disease and its blocking the blood from flushing out after period. I know wait to hear whats next from my gyno...Had 3 failed ivf and very sad...i feel your pain,your not alone ..good luck to you x

Clear_S

replied on September 1st, 2009

New User

hi guys,

I was diagnosed with a small section of adenomyosis, the doctor simply removed it with a laser, and since ive had no more problems.

ILovetheLord

replied on November 19th, 2009

New User

I am 37 and have 3 children they are all I need! I have been have extremly heavy long periods for the past year and finally went to the GYN. I had a saline ultrasound and found a polyp before they even put the saline in. I had a D&C one week ago today. While in there they found a polyp and alot of other tissue. I will see the Dr on Monday and hopefully will get results from the pathology report then. Should I be worried? Obviously I am! Anyone?

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