Hi I have a 28mth old girl with spastic quad CP, she is mentally very bright, she doesn't have any drooling/swallowing or speech problems. Two weeks ago she had botox on her hamstrings, thumbs and long finger flexors with pretty good results.
She also had lumbar punctures and bloods done to check for metabolic disorders as she had a normal MRI.
Anyway, she is now booked in to have an adductor release and phenol nerve block on 22nd of this month and unfortunately I'm not having much luck getting information about the procedure or testimonials from others who have been through it.
I've tried other forums without much luck, so I'm hoping someone here can help me with what to expect. Thanks for reading.