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Conditions and Diseases > Multiple Sclerosis Forum > Abnormal signals in brain stem
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Q: Abnormal signals in brain stem
asked by: malnwah65 on September 30th, 2009
New User
I suffer from the following symptoms;
severe vertigo
double vision
muscle spsticity
burning in legs
numbness in feet
clumsiness
dropping things
leg dragging
stiffness
fatigue
severe headaches
slurred speech
I have seen over 3 neurologists with the past 2 years and have got no answers. One lab test showed positive for EBV and striational antibodies, indicating a possibility of Myasthenia Gravis. After an EMG and a SFEMG, Myasthenia Gravis took a back seat. I decided to go to an Optometrist and he suspected optic neuritis. My neurologist ordered another MRI and a Lumbar Puncture. My brain MRI showed the 3mm lesion and significant signal abnormalities in the brain stem at the level of the pons. Optic neuritis was not found. I suffer from severe vertigo and cannot drive anymore. I am pending SSI Disability, but, I don't have enough evidence or a diagnosis. Is it possible to have MS with 1 lesion and the symptoms I have? I haven't been put on any treatment for my symptoms and this has my life on hold.. what can I do?? Seek another opinion?
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zigemyster
replied on October 1st, 2009
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Sounds like these neurologist are sitting back with the 'wait and see what develops' game.

MS sometimes will present itself with ON. Once ON subsides (pain and inflammation of the optic nerve)...it will not show on an MRI.

If I woke up in your shoes. I would find a qualified, well-versed MS specialist.

I told my neurologist that whatever I had...under no circumstances did I want him to tiptoe around me if it was a dx that he did not want to give...as I am stronger than I look...and that is exactly what happened...

Yes it is possible to have MS with 1 lesion (some docs prefer to see multiple ones)...others will wait to see what clinical findings would be. It's your health...demand answers!

Keep in mind there are other diseases that mimic MS and visa versa...have you been checked for Lyme disease (there are certain tests for that as well)

Best Wishes,

Zig
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malnwah65
replied on October 2nd, 2009
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Lyme Disease negative
zigemyster...
thanks for your info. Yes, I have been tested for Lyme Disease 7 times within one year and all of the tests were negative. I am at a loss for words when my neurologist told me after my spinal tap, that my follow up appointment is in December. Wouldn't you think a follow up would be sooner? I still have eye pain and double vision in my left eye. The vertigo has lasted 76 days straight and I just got meds that makes me woozy and more dizzy. I have seen a MS specialist who works with my neuro and she told me flat out that I "didn't have MS just by LOOKING at me." What kind of a statement is that? Looking at Montel Williams, I wouldn't have guessed he has MS. I would rather have shattering news than none. I don't know if I should wait that long to see my doc or just go forth for another opinion. I HATE having my driving priviledges taken from me. I can't go out for a walk without relying on my large dog, ZORRO for balance, and even then, he is not certified to go into public places with me so I don't go out. I have no income and need a diagnosis for my disability case. I can't keep living like this. What do you think I should do?
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