I have been suffering for five years with fear. Fear that Christina who once spoke beautifully and now can hardly speak was going downhill and I couldn't find out why, Specialist after specialist, clinic after clinic, to no avail. I don't want to scare any new moms so I only made vague references to it here. But it ate at my heart, making it difficult to be positive about our lives together. I felt as if I were failing her, even though I never stopped trying new therapies, doctors, techniques. I kept praying for the intercession of Dr Lejeune to find the reason she was not her old self. I believe he has brought me an answer to that prayer, and that of nearly a hundred friends from all over the world who encouraged me on Facebook. I had asked for their prayers for her PPT meeting (Pupil Planning Team this is a meeting of all her teachers to decide what her Individual Education Plan will be).
Today in her PPT meeting the Special Ed Administrator was helping me plan for a future in which she will use an Ipad to speak. That she will have very limited functioning as an adult, that our hopes for her to speak as she once did were at an end. As you can imagine I left that meeting numb and dispirited.
BUT THAT IS NOT THE END OF THE STORY!
Now I have a resurgence of hope. Later today, Christina was evaluated at Crossroads Physical Therapy in Columbia, CT. and the therapist offered not only a diagnosis, but a possible cure. I was in tears when he told me her left eye is higher than her right (never noticed it, being too close for objectivity I suppose) and that this is causing her stress. All the problems are from this. AND there is hope it can be healed.
I can't go into details because I would state it incorrectly, however, ALL the behavioral symptoms which have troubled me, her increasing lack of cooperation and isolation, repetitive gestures, negative reaction to crowded rooms (she prefers to watch her favorite films alone with her doll when we have lots of noisy guests). These symptoms are a result of the extra stress on her system from the eye. The speech center of the brain is located just behind that eye, and when Christina was five, she nearly died from double pneumonia, causing a chain reaction of stress, robbing her of her ability to speak, to interact with others, and isolating her in her own little world. It is very hard to draw her out. I knew that she was being hampered, I didn't know what was causing it, now its all clear, and I am dancing with joy and praising God with all my heart. But the therapist explained in great detail why this is a problem which had a solution and he was most optimistic that together we can help my beautiful daughter speak again.
|Servant of God, Dr Jerome Lejeune|
Now I understand it was because her overwrought senses are bombarding her and she is seeking peace. She is not able to speak and is withdrawing, but no longer. She was very happy to cooperate with the therapist today, and I think she feels better when he works with her. Stay tuned because I want to document this miracle of a diagnosis. I want to document her progress, or people will say it never happened, that this is wishful thinking, that I am delusional.
This is a miracle thanks to the intercession of Servant of God Dr Jerome Lejeune for whose intercession I have been begging, and a result of the prayers of nearly 100 of my dear Facebook friends!
Thank you from the bottom of this mother's grateful heart!!