May 23rd marked a major day for change and understanding. It was the day I discovered there's a lot we don't know about Rare Disease; Especially the disease I thought I'd known so well. The disease I've been living with, or at least known of, for the past three years; Tarlov Cyst... Read more

This monster inside me laying in waitfor the slightestexcuse to flare,explodes with gut wrenching lashes of pain,no sympathy to spare.You can stroke it, pamper it,submit to its blackmailing greed,but no matterhow careful,I cannot appease it; I cannot be freed.This monster inside ... Read more

Have you ever heard the "Spoon Theory"Even though I'd been living with Fibromyalgia and my Tarlov Cyst TC Symptoms for a many years, it wasn't until I was properly diagnosed with Tarlov Cysts, and got involved in TC support groups, that I started thinking, "there h... Read more

One picture is worth ten thousand words - Arthur Brisbane, New York Times Editor, 1911.Ive always loved taking pictures and filming other people, but anyone who knows me knows Ive always hated being the focus of any video or photograph. Its almost like being a hypocrite. I love t... Read more

I can't believe how in this day and age there arestill people with the gumption to look at any person,but this specific person being me, and saying, "yup,you really looked disabled", as he showed a "thumbsup" sign when referring to my Mini Van being parked ina disability spot, wi... Read more