LINK TO: TCD International: Patient Map
Tarlov Cyst Disease International: Patient MapIn recent years Tarlov Cyst Disease patients have connected on an International level allowing access to new and older information for "new" or "experienced" patients.
Our Goal?
To ensure quick and easy access to the growing International Tarlov Cyst Disease, Peer Support Networks.
This Map is, and will forever be, under construction.
As new patients are diagnosed we hope to add their names, information and International locations.
The development of this Map is aimed at showing how many of us are out here, and that maybe this rare disease is in-fact not actually that rare, but instead a misunderstood and commonly misdiagnosed Disease.
We welcome all Diagnosed Patients to share their location, diagnosis specifics, age, photo's or any other information you feel best describes how a diagnosis of Tarlov Cyst Disease has effected your life.
We look forward to meeting you, helping you access any and all Peer Support Groups or Programs available and also adding your name and information to the Map that will speak through image, what some too easily deny.
Sherri Jones or Sharon Jones-Gillece
tarlov.canada@gmail.com
Tarlov Cyst Disease International: Patient MapIn recent years Tarlov Cyst Disease patients have connected on an International level allowing access to new and older information for "new" or "experienced" patients.
Our Goal?
To ensure quick and easy access to the growing International Tarlov Cyst Disease, Peer Support Networks.
This Map is, and will forever be, under construction.
As new patients are diagnosed we hope to add their names, information and International locations.
The development of this Map is aimed at showing how many of us are out here, and that maybe this rare disease is in-fact not actually that rare, but instead a misunderstood and commonly misdiagnosed Disease.
We welcome all Diagnosed Patients to share their location, diagnosis specifics, age, photo's or any other information you feel best describes how a diagnosis of Tarlov Cyst Disease has effected your life.
We look forward to meeting you, helping you access any and all Peer Support Groups or Programs available and also adding your name and information to the Map that will speak through image, what some too easily deny.
Please feel free to contact;
Sherri Jones or Sharon Jones-Gillece
tarlov.canada@gmail.com
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